ps can someone explain the tax/ dark nail polish to me please? Keep reading about it but think have lost the start of why its helpful!
My bcn said if you put dark nail varnish (darker the better) it stops the light getting on the nails, a lot of women’s nails fall off,that is as much as l know, because at the time she told me l had bigger things to worry about!!
Sandra xxx
Day 3 post second tax-c, no nausea, bit of a woolly mouth and took some nurofen for the muscle pains. Thanks for the nice comments on my wig! Can understand the anxiety about tax, felt like that and keep telling myself that it is my insurance policy! It’s as harsh on the psyche as it is on our bodies!
really do like your wi, am now considering getting a second one thats a long one, didn’t try any on! Wierd thing is i still have a fair spattering of hair even though have had 3 fec, though first was with cold cap. The hair is only about 1.5 cm long but has grown since i shaved it off on day 18 after first fec. I still have decent eyelashes and my eyebrows are still there, but am slightly concerned at what tax will do to those. That will upset me more than my hair i think.
my right forarm is soreish from where the drugs were put in, i can sort of feel the veins i think and they hurt a bit and tighten if i stretch out too far for stuff. The tax is supposed to be less harsh on veins apparently, i hope so cos i felt it going in last time and it irritated my vein. have to stop typing about that now as feel am going to heave even remembering it!
Hope evryone se free as far as poss…i have had a good day, feel a lot better, day 11 in the fec 3 house…
Yes tina your wig looks great really glam - I know everyone probably tells you this but really you can’t tell its a wig at all!
Sandra is right about the nails its to stop the light getting to them which should help them lifting (apparently) although nicky said that its not the colour that matters just the thickness of teh varnish. I have dark on my toe nails and thick ‘light’ on my hands I will see if it works.
Yes I agree with Tors its almost losing my eyebrows and eyelashes (and maybe nails) are worse than my hair… I am sure they are not its just in a long line of bits of my body that will disappear… ie breast,… hair… etc etc.
Yes I think Tax is a really good insurance policy and I know trials say that having Tax gives a much better chance of none re occurance (according to trials) so I will try and think positively about it - I am sure once I have had one cycle I will be fine - its just going into the unknown again which is worrying.
My veins too are sore in my arm and I have a strange lump on my wrist thats been there since my first FEC - no one seems worried about it (except me) but then again every bump and lump worries me. I have a pain in my right side at the moment - I have convinced myself its my liver… I feel ok but the pain came after my lunch today and has been there ever since - something else for me to have nightmares about tonight!! good luck to all xxxxx
its horrid the way all symptoms are suddenly cancer related, when will we ever get a sense of confidence in our bodies? I didn’t know that much about the differences with the tax effectiveness compared to othe chemo, have avoided a lot of that stuff as too scary, but that was good to read!
Vickie, my wig is from hairware.com, they have extensive and good choice, I am a usually long&brown haired so going blonde was deliberate to see if it suited me! Also have a sore arm from the session of epirubicin, the tissue underneath seems scarred and it’s sore when I move it. Bought a water resistant eyeliner pencil from boots with a little sponge tip on one side, find it’s good for defining the eye and making it look soft. Nails have gone dark purple this weekend. You will get more steroids with the tax to alleviate allergic reactions, nausea and water retention, there is a good website taxotere.com with info on tax.
Hi everyone
I like the style Tina so do you like blonde???
I have just returned from a weekend in Edinburgh. A team from where I work had put a team in for the Moonwalk, I had also entered back in January (just for the girlie weekend away). But as we all know I didnt expect to get BC myself. The girls continued there training with even more reason. I was so proud to go down and support them this weekend. It was such a fab event with so many people all with their own stories.
My husband and 2 of our friends also entered they looked great in their bras pink wigs and tu tu’s!!!
It was really emotional especially when a friend passed with my picky on t-shirt stating ‘a fighter’!
We supported with our pink wigs and had a great time but I think I will pay for it this week. It was not stop laughter!
I was so proud of everyone and I WILL be there 2011!
What a brilliant and uplifting story of your weekend, Sarah! Sounds very emotional, too! You will be fit to run next year I am sure! I like the pink! Still getting used to the blonde…hope you get a chance to recover, too. Xtina
Tina love the pic very glam ‘blondes have more fun.’ Or so I always said ( in jest to my daughter) hope on the other side of BC this may be the case Hope you are all OK and S/E bearable Hugs Jackie
tina, am off to look at wig website…so did you just order it without trying it on ? can you order a few then send some back?
hi everyone, hope you are all well and enjoying the lovely sunshine and warm weather and any SE are mild!!
Had my first TAX today. it was fine, no reactions or anything and to be honest was much ‘nicer’ than FEC, just sitting letting the stuff drip into me and no horrid red stuff to put up with. No pain at all with veins and I feel ok
Not too sure when the SE effects will kick in - I am sure they will at some point but at the moment have lots of energy (steriods) and feeling very well so am making the most of it.
I was really dreading today and quite emotional about it this morning - but it was fine - easier than FEC, it took a bit longer as they slowed the drip down just in case I got a reaction but then speeded it up again when nothing happened. so those of you who have TAX looming its nothing to worry about at all…
xxx
Thanks for that Saffronseed,
I feel better now
I had my 3rd fec yesterday and I am panicking about my first Tax. I did all I should not do and read about all the se of tax, I am going on holiday 10 days after my first one, so I am extra worried.
We had nice weather here too and I did a little in the garden, It is so nice to have blue skies and warm weather.
Hi to Vickie and Tina and Tedoris too good to find your here. And Libby too.
Hugs Maria
Hi saffronseed, so glad the tax went ok for you, my se’s kicked in about 24/48 after chemo and it was muscle/bone pains no sickness. Tax is also much harsher on the WBC, your neuts have to be 1500 or over to have it. Vickie, I went to their offices for a consultation but you can order online, they are also very helpful on the phone, they went to the recent breast cancer open day here at the hospital and are used to dealing with breast cancer patients! Do blondes have more fun, hmmm, Jackie, long blonde hair seems to attract more attention than my usual brown locks. Very strange indeed. Looking forward to the ywf forum tomorrow. Hope SE’s are holding off for everyone! X
Hi girls,
back from FEC no2. Had a really difficult time locating a vein that wasn’t aching and finally just about managed on 4th attempt. i am now a bruised ppincusion who has to go to The Christie Hospital before next FEC to have a hickmann line in as the chemo nurses highly recommended that I do to ensure treatments can continue.
So far no sickness, no nausea, made tea emptied and put out bins and am now sitting down for a well deserved rest.
Sarah well done on enjoying your weekend and when you run next year we will sponsor you xx Love the pink hair it is so fun like you!!;-))
Tina have you got used to the blonde loook yet, it still suits you
Maria I cannot believe you broke the golden rule and read ahead about tax!! As long as your not wobbling too much we will let you off this once :-)) xx
saffronseed glad the effects are mild ones long may it continue…well…at least as long as the treatment eh! :-))
Hugs to Jackie…hope you are ok
Hugs and love to everyone else
Suze xxxx
Sorry I am going to have a moan! I just feel really down tonight. So far I have been able to ‘just get on with it’ as I say! But I am fed up with people saying well you’ve ‘passed half way’ 4th Fec next week. I dread the next chemo as just when you feel good again you know you are about to be knocked back!(Iget relly down day before) I’m not looking forward to onc appointment Wednesday as I get a Locum everytime and havent seen the same onc yet! I’m the sort of person who needs to get to know someone before being able to talk confidently to them. I go in with all the questions I want to ask and leave not having asked them. Last onc told me not to take temp when I questioned the fact I keep getting very low temp 35.3 I wouldn’t mind but I only take when really not feeling well! I just wish I had the confidence to ask away!
Im sure everyone has had a great weekend with the good weather or has it been too hot. Its just been nice up here north of Scotland but no rain so thats good!
Sorry to maon but this is the lowest and most emotional I have felt for a while. But I dont know why? Nothing h as changed!
Hi Tedoris, sorry to hear you are feeling a bit low,
I know how you feel, it’s understandable, you have been through alot
I often feel find then all of a sudden someone at home will say something trivial and that makes me cry, WEIRD, i am usually quite a hard faced person, it feels really upsetting, a comment that might not upset me one day, can bring me to tears another day.
I saw a t-shirt in asda, and it had a bald cartoon caracter on it, i think the saying on it said, DO I LOOK BALD IN THIS, it was funny to me at the time, i had to chuckle, my hubby said he had seen it in asda the previous day and was going to buy me it for a joke, but he didn’t know how i would take it, i know what he mean’t, as it made me chuckle when i saw it, but if i had seen it on another day it may have brought me to tears, SILLY really.
So i know how you feel, often we may not really know why we feel so down all of a sudden, but we have to remember we have been through some cr=ppy things.
I am due to have my 4th FEC in 10 days time, i am kinda dreading it but at the same time, looking forward to it as it means i’ll only have 2 more to go, then it’s on to the rads.
The ladies here are a great support, when i’m feeling a little low i usually get a quick visist from my twin 20 month old grandaughters, they have kept me going, and talk about brighten up your day, little chicks.
Hope you start to feel a little better soon, Take Care Sandra x
Hi everyone,
Suze, rules are meant to be broken, even if I am the first to remind everyone of them.
Tedoris, sorry to hear you are feeling down. We all have bad moments, wobbles or blips. Just remember we are all here for you and DO understand what you are going through as only we can.
Hugs
Maria
Hi everyone… Sorry you are down Tedoris… I agree though I too have done my 4th and whilst its nice to only have two to go - its been such a long treck and it doesn’t feel as if I am at the end. I am also getting tierd of telling everyone I a ‘fine’. I actually am not fine but its too complicated to explain exactlyy how I am feeling and again I don’t want to burden anyone else with my downs - I do feel guilty for crying and tend to do it on my own.
Generally though like everyone on here I want to stay upbeat and positive and manage it (just) but the good thing about this forum is everyone knows what it feels like and can read between the lines - I find its a good place to come for support or just for a giggle at others posts even if you’re not up to posting yourself.
Anyway another nice hot sunny day (too hot?) and we have the football to look forward too… hugs everyone xxx
Hi all,
Sarah…sent you a pm :-))( a bit garbled b/c of chemobrain though …sorry)
Saffronseed I know what you mean about reading between the lines and felling that the only thing you can say when people ask is that you are ‘fine’. Glad there’s more than one of us lol xx
Maria, yes still breaking the rules…it works for me lol Hope you are ok…anything cooking in that kitchen yet?? I can’t stop eating…going to look like a house end before long :-((
Laters Suze xx