It is quiet isn’t it. Not been sleeping went out for lunch with hubby and did a bit of shopping. Good luck for tomorow hope it goes well. I’m feeling fine today, no nausea or anything, touch wood it stays that way. I lost quite a bit of hair in shower today, bcn says that should die down a bit now - hope so - am sure can see a bald patch,wide parting, but hubby says my imagination. Just gonna start tea now as we are having a few fireworks for the kiddies tonight and dont want to be out too late - too bl**dy cold!!
Hope you’re all well at your various FEC’d out stages.
Pheebster, you’ll be fine with FEC tomorrow, I reckon the hardest part was just before #1 with the not knowing; at least this time you have a good idea how you’re going to react. Will be thinking of you for it tomorrow.
Caz, glad you had lunch out, sounds lovely, and so glad that the nausea isn’t putting in an appearance. Enjoy the fireworls!
I had my Neupogen shot at the doctor’s this morning, there were about 15 ill people in the waiting room! When I went in to see the nurse I told her that I had no problem going out for the shot but that I was concerned that my immunity would be compromised. She was really cross with me because she’d had to rearrange patients to fit me in this morning and couldn’t understand why I was moaning about being there. She told me that the district nurse had told her I’d insisted on going in to the surgery for the shots!!! So, when we uncrossed our wires, she was less than happy with the DN’s behaviour and was horrified that she’d left the needle out on my kitchen table for me to dispose of it. She said she’d arrange for the DN to do the next two shots but in the end we agreed that I’d go in and wait away from other patients so that my immunity isn’t compromised. I almost ended up in tears which is unlike me, but when I found out that the DN had said it was me insisting on going in for the shot when it was her all the time, I just reached the point of giving up. We all know what it’s like, there’s so much to think about or worry about with BC, kimo, drugs, emotions, and so on, to then have a horrid woman guilt-trip me so that she didn’t have to come to my house and then lie about it, it was just the last straw. Righty, moan over, feel a bit better now.
I have baked chocolate muffins with my son this arvo to cheer myself up, not that I get to eat them cos they aren’t vegan-friendly. All the neighbours are having fireworks and a barbie in an hour or so to celebrate one of the kids’ 1st Birthday so am looking forward to that. I think on Day 7 after kimo that I deserve a glass of something nice! My gorgeous neighbour Nicola has made mulled wine, I want to marry her for making it!!!
Everyone enjoy your evenings, especially if you have fireworks!
Cat…I am so glad you got to discuss the DN’s behaviour with your Practice Nurse…as I said earlier, my surgery were furious with the way she treated you. They really are a law unto themselves and have far too much freedom to make up the rules as they go along. I had one turn up at my house 4 weeks after I was discharged from hospital to check my dressing!!! Told her she was 3 weeks too late but thans for the afterthought!!! Jokers!
I just got a call from the Kimo Room - my bloods weren’t up to scratch so have to go for another test tomorrow. Apparently it was only my neutro-wotsits (the infection fighters) that were just below the acceptable level (which apparently are much more rigid at my hospital than others for some reason better known to the Havering PCT), so I am feeling a bit in limbo right now.
Anyway, worse things could happen so onwards and upwards.
Enjoy your evening you firework people. Just me and my daughter home tonight, and I know it will be quite traumatic for the 4-legged Pheebster, so it’ll be a bit a testing night.
Have a good night girls and enjoy that mulled wine cat…Mmmmmmm!
xxxxxxx
Haven’t managed to get on here much as was still feeling rough up unitl yesterday!
Had the Flu like night… day 6 this time… hard to regulate temp at night! then wiped out yesterday!
Saw my oncologist today… she told me it can happen that people react this way to 2nd dose! i’m always that One in! 1/10 … 1/100… 1/1000 … god i’m special!
She gave me Lansoprazole for the heartburn… have taken one already but obviously I shouldn’t have tried eating a curry SO SOON! have found that baileys is good tho :o)
Onc did say that if I am bad again they “could” reduce my dose from FEC75 to FEC60!!! but I dont see her again until after dose 4… so it would only be for dose 5 and 6… but maybe by then I will be begging them!
OMG Cat!!! that DN needs sacking! it’s understandable that you got upset! ((((((HUG))))))) enjoy the mulled wine… ummm perhaps I should try that for the heartburn :o)
Avonlea, I haven’t slept for more than 2 hours a night all week, perhaps it’s due to the wbc booster as well? I feel like sh1t and could sleep for England but just can’t seem to manage it.
Hope you’re all doing well today ladies, not too cold in this drizzly weather.
Got up this morning and dashed to hospital for more bloods. Back by 9 a.m., and hair started coming out. Not handfuls but more than I would care to see.
Finally found out 10 mins before my due time at hosp that kmo would go ahead, bloods ok.
Got to kimo…no friggin veins. Mortified! They had to go in at my inside elbow, which didn’t hurt and cut the administering time by half, but where the hell do they go next time? Luckily the guy who I saw has 25yrs experience (he said the other nurses wouldn’t have been able to get in at all) and he said he will have one more attempt next time (I must drink mega litres of water for at least 48 hrs prior) but if we have problems again he suggests a line. I sooo don’t want that. Cried today…for my hair and my veins.
Life is testing me today…
Hope you girls are ok…I’m concerned it’s been so quiet. I hope everyone is ok.
So sorry you’re having bad day!! My hair started to come out as well which totally threw me, however it has started to slow down and i’m sure that you are thinking it’s worse than it is, I know I was when I look at my head it doesn’t correspond with how much appears to be coming out. I think we are perhaps a bit sensitive to it - with good reason. As for the veins I have read that blackberries are could for vascular repair so have been having blackberry apple juice drinks in the hope that they will keep my veins good, perhaps you could give it a try, they taste nice so nothing to lose. : 0 )
It does seem quiet on here i agree. I think it might be that before kimo we were all so terrified that we were thirsty for opinion and help whereas now we seem to be getting on with it a bit so I suppose have less to write about. And some people don’t want to come on with negative things to say although we all have those days and I think its important to let it out if thats how we’re feeling.
Anyway hope you don’t stay down in the doldrums too long I’m sure you won’t. Sending big hugs and much love
Caz xx
Pheebster, sorry to hear that - I agree that the idea of a line is horrible - didn’t know that water could affect your veins either. I cried too when I lost my hair. But it will grow back. It’s actually better gone (once you have got over the initial shock.)
Sending hug,
Irina x
Irina…are you stil thinking about having the h/line ? I know there is thread on here but don’t want to hear anything that will freak me out. Kimo nurse suggested as much water as possible 48 hrs prior. Last time I was very good and drank loads. This time I was a bit cocky in hindsight and only started on the morning of kimo. I also had a bottle of wineTuesday evening…not ideal - what a prat! I’m back on the 02 now though, and am aiming for 2ltrs a day. I just bought loads of the Sainsbury basic range for 25p a bottle! Evian would bankrupt me!!!
Spoke to the nurse who i work with, and she said if she was in my position she would have asked for a hickman before kimo started…she said at Barts (I think) it is usual practice, or was at least when she worked there, for them to give a line for kimo/long term haemotology patients.
She also said it would be done in theatre (in our area) which means patient is lying very still and it is easy to guide in…not risky as I was lead to believe.
Don’t know if I am convinced, but maybe there will be no choice…
Hope everyone is ok today, and that you are also feeling brighter Cat…get jogging down to that surgery girl for your needle!!! I am debating taking Pheebs for a run but at the moment I have a big red face and hair resmbling Ken Dodd!!! Will wait for John to come in and we can go together later I think…my daily walk is my therapy and hate missing out.
Pheebster,
Everyone I have spoken to or who has posted on the threads has been very positive about having the line and wishes they had done it earlier. I am just totally freaked out about it so please read the threads and don’t be guided by me, I have a hardened vein which is making it impossible to straighten my arm and I still have 4 FECs to go so I may well have no choice but to have a line, already I am wondering where they will find a vein next Thurs, and whether I will get phlebitis again. Devil and deep blue sea choice! xx
I have a friend who has a line in and she said it was the best thing possible, made life so much easier. Not fancying it myself, but will take that decision if there’s a need. Am just back from my final stabbing of the week with Neupogen, hoorah! The Mary Poppins nurse at the surgery is so much nicer than the horrid DN, sweet, gentle, no desire to stab me in the gut with the needle, works for me. My legs do feel a bit sort of Pedigree Chum at the mo, but hey, some dog will love me!
Hope you are feeling better now. I understand how you feel when you hair come out. My hair start to fall 12 days after my first kimo.I used to have very long hair, sleek and no joking i think it is the best looking part of my body!! I am 31 lol and was always complimeted by my hair. I knewn it is going to fall off so i had it cut short before kimo and told myself to be brave. Still i brusted into tears when it first started to come out and called a friend to come to see me. But after that, i feel much easy about it - it is not nice to sitting in with hair falling all over you but it is not the end of the world!! I went out one day and it was very windy- i started to think about the people walking behind me- they might get hit on their face by some nice hair … hehe
My vein is very small too - i am a small person and my hand is very small. So i ended up with black and blue all oever my hand. My nurse said if you keep your hand warm it might help. Next time i might bring my own hot water bottle or something to keep it warm so they could find it easily.
Hope you have a nice walk and feel better later
Cat- gald you got a good one this time!! Mary Poppins haha - i now start to think who my nurses look like… hemm
Just to let you know i’m still here and fine. I’m trying to keep as busy as possible while taking it easy as well (if you know what I mean). sorry to hear of those having problems, hope you get sorted soon.
Hi Ladies…Hope you are having a good day and looking forward to your weekend.
I feel much better today…even erring towards the idea of the hickman. I spoke to my doctor who I work for and he told me very calmly to be guided by my team (who he personally set up for me, the sweetie) and that I should sit back and allow them to do their best for me. Bit hard for a control freak but I see his logic!
Hair still with me…looks filthy and itches like I have visitors, but am determined not to wash it til Monday…presuming I have any left of course!!!
Glad to see you back Bella, and Cat happy to see you have finished with all those little pricks for another week!!!
Glad you feel good Pheebster (2 legged) and every one else getting on with things.
I started to feel “good” today… out shopping shopping shopping! :o) even tho day 10 and should be careful … tut tut!
But just had a bit of a wake up call… !!!.. have a COLD SORE! am prone to when run down… and guess you could call this run down! literally just felt the tingly around 6pm… and thought O no… it’s viral!!! so phoned my on call chemo team… and lovely Ben who pumps me with the evil juice answered the phone… he was very calm and lovely… but said YES something to worry about! get to on call doctor and you must start Aciclovir 400ml tablets ASAP… so stopped drinking the glass of wine I had just poured… and have been on phone to out of hours… waiting for call back… off to hosp (where out of hours is) to collect prescription… off to Boots… back home and popped my pills!
Oh Lorna, gosh, I didn’t realise that a cold sore could cause such a panic! Hope the pills are doing the trick and that you’re OK. Thanks for sharing this with us, I wouldn’t have thought of it. Take care.
Another one for us to look out for then…a cold sore for chrissake!
Glad you are getting the pills down you Lorna…bummer about the wasted wine though…lol
I’ve had a lazy one today…quick trip to Tesco (hate that shop) and rest of the time reading and napping. Daughter has gone to Thorpe Park with a friend so it is just John, and I dossing around…head feels very prickly/tingly but I’m trying to ignore it.
