The conditioner is a special wig conditioner for fake hair. I got mine free when some kind lady on here sent me a wig along with shampoo and conditioner but I am sure wig shops will sell them. I am just sat here trying to decide whether to wear my wig to the hospital today to sit with all the other oncology patients waiting for bloods and onc and look “normal” or to go bald with a Santa hat on and look like “cancer patient trying to be funny”!!!
Ostrich, I,d go for the Santa hat LOL. I took photos of myself when I looked like an orang utang and circulated it to all my friends. I figured they needed to see what I look like behind closed doors.
I would be interested to know where your Dad lives. I,m about 4.5 hrs from Marmaris. I hate Marmaris itself but there are some beautiful places around there.
How is everyone else today? Exhausted after the weekend?
Tanya I hope you enjoyed sleeping in your own bed last night.
Soo xx
Wooo - so many posts to catch up on today. Seems everyone had a hectic weekend - so many parties going on!
Different story for me - not been great since Saturday lunchtime. Think I spoke too quickly about the wbc shots not being too bad, as the aches and pains they gave me that evening were so bad I called the hospital. They advised me to visit A & E for painkillers, but being a bit of a hoarder myself I rolled off a list of stuff I had in the house and was advised to start on co-dydromol. They did the trick within an hour but totally knocked me out… I slept all day yesterday and have now developed a cough:( Kimo Nurse has advised to keep away from the hospital (don’t need telling twice) and ease the cough with linctus.
So who else other than Cat is partying this week? Cat - let me know what meds they give you for tax. Also as wbs hits all time low around day 5-7 on tax let’s hope we get to dump the jabs this time round.
Tanya…pesuming you are home now, from what Soo has said. Keep well!
Glad you are feeling a bit better today Soo…I hear liquirice is good for the morale!
Hiya - so good to be back in reality and with a proper internet connection!!
Go with the Santa hat Ostrich :-). Went au naturelle most of the time in hosp as wouldn’t be wearing anything on my head at home - got mixed reactions - lots of people look and turn away quickly but lots just ignored it too. Answered the door yesterday just after I came home and gave a neighbour I have never formally met a shock. She wasn’t too bad but scurried off quite quickly.
Have enjoyed reading all these posts of people out and about having fun. Hope hangovers have not been too bad - can’t be worse than having a kimo-head! I will never look at liquorice comfits in the same way again 
Got let out of the hossie yesterday and told that I would most likely be postponed for this week as chemo due tomorrow but the onc nurse spoke to the consultant this am. Surprise surprise, because my neuts were 1.7 yesterday and despite lots of blood culture tests no infection was found they are going ahead tomorrow - so Tax for me. A bit scary as have to start the dexamethasone today. Going to paint my nails deep purple/black too even though I detest nail varnish on my fingers - makes them look gross. Hey ho.
Good luck to everyone else joining the kimo party this week or having associated treatments. Hope bloods are alright for everyone. I hope that you are feeling a bit better Pheebster. These SE’s stink don’t they.
Hugs to everyone
Morning Ladies,
Welcome home Tanya, bet it was great to be back in your own bed last night! Best wishes for tomorrow.
Pheebster sorry you’ve not been too well, those aches and pains from wbc shots are like no aches and pains I’ve ever had before. Hope all is ok now.
Cat good luck for tomorrow and also to anyone else having kimo this week. I know some of us ( tho not me ) are moving on to a differant one this week, hope transission is ok.
Ostrich, good luck with bloods and onc today, I’d go for Santa look, might cheer some people up. hope you enjoy Carol concerts too, I’m sure you will.
Hi to all I haven’t mentioned hope its a good week.
Caz xx
Love the idea of the Santa hat!!! Photos, please 
I have wig shampoo and conditioner. I got mine fromt he lovely nurse who runs a ‘salon’ at one of my local hospitals, but you can get it online at most of the major wig sellers. If you can’t find one, PM me and I can send you back the web address of the company I’ve used, they’re fast, efficient, and not expensive.
Tanya, have you been released? Makes it sound like you’ve been doing Porridge! Hope you’re OK, sweetie.
I’m shattered, Soo, don’t know about everyone else. The sprog’s party, Christmas shopping yesterday and then deciding that the Christmas tree and some decorations had to go up in the evening weren’t the brightest ideas I’ve ever had. I feel exhausted and can’t even type straight, it’s taking forever to unjumble the letters I’ve been typing to try to get them into cohesive and logical English - the brain is willing but the messages aren’t being passed correctly to my finger tips.
I’m off to hospital this arvo to see the complementary therapy nurse for a massage or reflexology, can’t decide what I fancy. I’m making use of the volunteer car driver service for the first time and am a bit unsure if they’ll find my house and what it’ll be like. I don’t have a driving licence and can’t rely on James to take me - it’s not fair for him and the sprog to hang around for an hour waiting for me today. Also, my chemos are moving from Kettering to Northampton so it’s not a reasonable bus journey (would take lots of walking and an hour and a half on the bus each way - I know Soo has a worse trip, but I just don’t fancy it) so I thought I’d get used to the volunteer drivers now.
Hope you’re all doing well, ladies, and that those of us with bloods and chemo this week are fine
Cat xx
Go for the volunteer driver service Cat for sure
Just a quickie to say I’ll be thinking of you tomorrow Tanya…hope all goes well with the move over to the dreaded TAX. I’ll be checking to see how you get on (my turn next week). Who knows, we may be pleasantly surprised ?
xxxx
Hope the Volunteer driver was OK Cat… and hope all ok this week for you
And Ostrich… it was liberating going Au Naturelle! but not as brave you … yet :o)
Have been feeling wiped out today… had bloods… and only just OK …(1.1) !!! chemo nurse did ask if I was taking afternoon naps yet? said most do by half way! I said NO… no time!
Hope you are feeling less pains now Pheebster.
And good you got released Tanya! Bet the family are glad to have you home.
Everyone else… hope you are well
L x
Hi Ladies,
Just a quickie (probably not knowing me) before I head down for kimo party tomorrow (argh!)
Had a hell of a morning at hospital for bloods. Appt with Onc booked for 11am, always get sent for bloods first so wearing wiggy (decided against father xmas hat as had youngest’s carol concert at 1.45 and didn’t want to get stuck without wiggy for that as she would kill me) and scarf, coat etc in order to get veins to come out to play (have veins that run away from needles etc) I went upstairs to pathology dutifully at 11am and sat there until 12.30!!! By that time I was melting and fuming and wanting to rip wiggy off! Me and a old man both patiently waited whilst EVERYONE else came and went until the phlebotomist (pleb, LOL!) came out and said “I guess there are only people with numbers still waiting and no-one with an appt?” to which we both replied “NO!!! Been waiting since 11 (10.30 in his case!)”. Finally got in for bloods without passing out from the heat of clothing and wig and then rushed downstairs thinking my Onc’s tyrannical nurse would have binned me as a no show (even though I had checked in) and had been too afraid to go to the loo (therefore bursting!) or to see her (horrid nurse!) and tell her I was still upstairs incase I missed my bloods spot.
Sat looking nervously at watch at 12.45 knowing daughter’s concert started at 1.45 and reading sign stating Onc’s clinic was yet again running 1 and a half hours late and praying that meant from appt time (11 was appt with him) and not from getting down from bloods!! Having promised self to drink lots before tomorrow and forgetting to take any liquid with me I looked over to the WRVS coffee stall as tongue was stuck to roof of mouth and noticing that it was shut!!!
Hitler nurse came and went twice before I could utter a word before I managed about 2 syllabuls (she ALWAYS does that to me) before cutting me off and telling me I was next.
Got weighed and sent to a room to await almighty Onc at about 12.55 and thought “If I get out of here by 1.30 at the very latest I can still drive like a bat out of hell and get to concert”. Paced around the room (went to appt alone) until 1.15 when I was ready to cry as Onc and hitler walked past regularly and I tried to catch hitler’s eye in vain (during that time heard her talking to other women and partners saying “I never get chance to chat to you … yak, yak, yak” (she NEVER talks to me!!!))
I burst into tears at this point in rage/frustration/thirst/disappointment and decided that I was WALKING at 1.30 whatever and screw kimo! Tried and managed once to speak to hitler (well managed to say “I need to leave at 1.30 … daughter’s concert…” before she cut me off and said “Mr ? (not Onc) is working on your notes now and writing your prescription”
I waited until 1.25 steaming with impotent rage before Onc’s registrar (I think) came in and limply shook my hand whilst I wiped tears. I only managed to blurt out my tongue thrush last time and very very sore tongue (I’ll prescribe you something) and very very sore arm from chemo (we can use your other (mx) arm…no?.. we’ll keep trying with same arm, I’ll prescribe you something) before picking up my stuff and running to the ticket machine to find I had clicked over another cost slot and didn’t have enough cash!!!
I then ran at full pelt to the lovely hospital restaurant to pay £1.75 for the privilege of taking out my money before running back to the WRVS shop (now open!) and bying a bottle of coke before feeding the machine and driving like a woman possessed to arrive at the carol concert with a frizzy. knackered, wonky wig at 1.48pm!!!
That’s all before going to the docs later and then second carol concert!!
Told you I would be brief!!!
Sorry, I haven’t asked or mentioned anyone. I just needed to get that off my chest before I paint my smile on tomorrow and get poisioned and come home laden with enough drugs to start an illegal supply shop!!!
Hope you are all well, off to lie down in darkened room (thankfully its bedtime). Will pop on tomorrow am and be nice and ask how you all are, xxxxxxxx
Ostrich, what a total nightmare of a story!!! It’s jsut typical how disorganised so many of these clinics are, and I’m so sorry that you got cuaght up in it on such a special day as your daughter’s carol concert. I hope that it was lovely and made up for the horrible stress of the morning. Best of luck with the kimo party today, will be thinking of you.
Tanya, you off to the party today, starting on tax? Hope it goes well and Happy Birthday to you also!!!
I’m off to get bloods done in an hour to find out whether I’m up to scratch to start Tax on Thursday. I’ve been drinking gallons yesterday and this morning to try to get the bloods OK, but feeling nervous probably about the Tax more than anything else. I don’t want to be delayed a week, just want to get this ghastly poison into me, the sooner it goes in, the sooner it’ll be finished.
Gotta dash, got a playing three-year-old to dress for school.
Catch you all later, ladies.
Beat me to it Cat!!
HAPPY BIRTHDAY TANYA.
Love
Soo xxxx
Thanks for good wishes. The tax is going in now and is very straight forward. Feels better just having 1 clear infusion and have been advised minimal antiemetics required. Fingers crossed.
What a nightmare time you had yesterday ostrich. It can only be better next time surely. Nobody needs that stress.
Hope you are feeling better Pheebster
Hi to Cat with the orange glow, cazz, irina, bella, soo. Hope everyone us well
Best wishes, Tanya x
Ostrich, what a nightmare! The Hitler nurse sounds vile. Hope you enjoy the 2nd concert, Your nurse can go in my book about horror medical staff.
Happy Birthday Tanya, hope the SEs from Tax are minimal, and good luck with Tax,
Love to all,
Irina xx
had my bloods done this morning, major ouchie! My nurse was as gentle as poss but it still hurt a bit, she tends to be a bit rough even when she’s being kind, so bruised lots. She said the veins are holding up fine but look sore from the chemo. How do veins look sore, they all look the same to me. Enjoy the school play, Tanya, and let us know how you’re going with the Tax, but only when you’re up to it. Irina, how are you doing today?
Ouch Cat, sounds nasty, I am OK just got a bit of a temperature and hoping it goes down when I go to pick my daughter up from school as I’ll be out in the cold. How are you feeling about tomorrow?
My veins are dark purple and visibly track up my arm, they look as if they’re too short for my arm, and are hard, like thin string. Still can’t straighten my arm at the elbow or bend my hand forwards. It is usual to get some vein hardening with FEC though.
Ouch, Irina, that sounds so painful! Have you made a decision about the Hickman yet? Wrap up warm when you collect your daughter from schoo, it’s blooming chilly without hair even when you’re wearing a wig.
HI all, and Happy Birthday Tanya!
I’m just back from FEC4 - horrible time with cannula, took 2 attempts so quite sore, veins hurt too. BUT it’s done, so only this week of SEs to get through then 2 more to go.
Good luck to all of you starting TAX - hope it goes OK.
Bella x
Hi all
Happy Birthday Tanya, Hope you’ve had a lovely day.
Ostrich - what an ordeal, sounds horrendous, must say though you have such a way with words I love reading your posts.
Bella hope you OK after No4 - 4 down 2 to go, sounds so much better than 3 down 3 to go that I am almost looking forward to my next one just so I can say it. Also now you’ve had more thn you’ve got left! :o)
Hi to everyone else, hope all is well.
Been to London today, absolutely freezing, am definately feeling cold more and thats with hair!!
Take care all
love Caz x
Happy Birthday Tanya!
Off for Number 4 tomorrow! god I so don’t want to go… am pigging out now and wine cause I know I wont be for a week or MORE!
Hope everyone is well… or well as can be
L x