Hiya - so nice to be back in the world of the living and to catch up with old and new friends on the thread. Thanks for all the messages of support, relayed by Cat and Soo on Facebook. I do wish the hospital internet system was better. Welcome gingery, Narnia and clarabella. Hope you find the thread as supportive as I have. The friends that I have made here really help me to get through the tougher times of chemo. I was back in with a raised temp again and felt really ill this time – the Tax I think. Next time I will definitely be taking Cat’s advice re starting regular paracetamol and nurofen before the dex stops. Had so many blood tests and all are clear so the docs think my temp is shingles related. Bummer. Last night when it was up again my OH suggested maybe I need to go back in – help! Had a lucky escape already this time as my neuts fell from 1.6 to 0.2 in 12 hours! If the staff had checked they would not have let me home as their baseline for ‘release’ is neuts of 1 or more, and a normal temp for 3 days. Would have been back on antibiotics and stuck in for another week. Only just stopped antibiotics after 2 ½ weeks which does nothing good for the body! No way I am going back in unless a real emergency ïŠ
The recent discussions, especially Cat’s tales of James’ supper and the acupuncture made me smile. For most of us this seems to be a really tough time – the end is in sight but feels a long way off. I was so reassured by Lizbou’s post about the bone pains subsiding and at last I feel the same is true here. Have a well strange feeling in my feet – perhaps a bit of neuropathy but the bones are so much more comfortable. Cat’s description of the Tax as the domestos of kimo is not wrong and lizbou I love the analogy of nuclear kimo in terms of positive view of the effects. Two more seems like a lot. It is such a support to know that when our friends on here comment on the same issues they truly understand what it is like.
Soo, thinking of you especially today and sending warm love and hugs – so glad a good friend goes with you to Antalya. Wish we could be closer to give a real hug and proper support.
Cat - hope you are feeling ok today and hope Nathaniel is better. The evil D/N surely deserves a special picture on flickr!
Lizbou – hope you have been able to get on with the Christmas deco’s now that you are feeling a bit better. I have told my OH that I am no longer going to pretend I can do everything and just get on as if life is normal. Fine when I feel well but if I am suffering from effects of chemo he will have to help more. He did cook supper yesterday and did the kids tea – what a relief.
Pheebster – did you enjoy the X-Factor and Irina how great that you could watch with your Martha. Like Lorna, I was pleased with the result and soon downloaded the single! Like others it seems it will be a meaningful tune for this year. Pheebster – you will be absolutely fine with the Tax – forewarned is forearmed and if you take the pain killers you should be able to minimise the effects. Glad you enjoyed your Ruby and hope your f-i-l enjoyed the burned chips!
Irina – so glad you are happy with the line. I did ask about a PICC before starting chemo as a friend suggested it and the nurses were very surprised. It became clear very quickly that my veins would prove to be difficult. It does seem underplayed based on the posts on this thread and how lots of us are struggling with our veins.
Bella – great idea re a fundraising party. Lots of birthdays around this time – Cat as well. Hope you are feeling well and SE’s are not too bad.
Lorna – hope that you are well. How is the Christmas decorating going – I would like one of Pheebsters’ home made wreaths too. If we were up at m-i-l’s as usual Christmas routine that could be a real option but actually having Christmas here at home and near my family for the first time in our relationship (8 years)!
Ostrich – how are you feeling. It must be such a drag re the wounds. Great advice re the pre-payment certificate for the dressings. Outrageous that you have to purchase and take your own stuff. Sounds like the work do was interesting. Hope everyone is well now. Sounds like the dog sitting is quite traumatic in its way.
Cazz – how was the visit from your nieces – 3 identical triplets – guess that can lead to lots of fun and games sometimes and it must have been hectic but lovely.
I so hope that I have not left anyone out. My addled brain is struggling to cope with all the catch up!
Lots of love to everyone – Tanya x
