Hello ladies!
Just been catching up on posts and feeling really guilty after reading of all the probs you are having! Was away all day Thursday meeting friend for 50th lunch then meeting at night-spent friday pretty well wiped out…own fault so didn’t look for or get any sympathy!! Back to normal today and feeling remarkably well if you discount the bowel probs…meds the hospital gave me were useless! However sucking ice seems to have done the trick with the gums and mouth as no sore gums and taste fine-much better than 1st time. Using Difflam as a mouthwash also seems to have helped.
Everyone I meet says how well I am looking…mind you they probs wouldn’t say anything if I looked s**t…LOL!
Hair still hanging in there too apart from a little thinning at right brow, so I am ever hopeful!
Pat glad to hear this regime doesn’t seem to be so hard as the first-hope that continues! Sorry just reread your last post…maybe just as bad???
Jacqui-glad to see your sense of humour hasn’t deserted you even if your student nurse has!!!
Nicky, don’t know if the English system is the same but I am due to go on to half salary in 2 months and I can claim for incapacity benefit in Scotland as long as treatment continues though apparently as soon as it finishes they expect you to get back to work???
I would like to see them teach roughly 600 primary kids in a week just having finished chemo and radio!!!
Anyway off to put feet up and watch Casualty (you would think we would have enough of hospitals??), then bed. Both daughters out tonight so no doubt we will get rudely awakened at 2 or 3 in the morning!
Night all!
love and hugz,
Lyn xxx
hi nicky - got your reply - its been so spring-like this last few days I’m getting camping withdrawal!! Have sort of been toying with the idea of getting a tiny caravan - something like a small Eriba so you never know…I hope to be starting my chemo in the next few weeks - sooner started sooner finished - hopefully!! Sounds like the spa time was fun for all then!! I might see if my daughter fancies a pamper evening sometime soon - she’s nearly 16 and really worried about me and hair loss etc etc so it might help…mary x
Well, the nurse came at 7.45 p.m.!!! All of that beautiful, sodding day I sat in - couldn’t even go into garden, 'cos wouldn’t have heard the doorbell. Was so angry, went to bed at 9.30 p.m. with the raving hump and got up at 5.30 - body clock is so out of of sync. Determined to do something nice today. Have a good one ladies. xx Jacq xx
Oh Jacq, how awful. The district nurse must be able to give you a ball park figure of what time they’re likely to get to you. I had a nurse come in for inj on Friday, but I rang to get an idea of when the’d arrive. It’s not right that you had to waste a whole day (beautiful sunny day as it turned out)when you could have been enjoying it, you’ve got a life too! At least I take it the helicopters didn’t turn up again?! I dropped off around 10, knackered and achey only to be woken up by son coming in at 2.30pm, then going out again with dog! Words will be had, I managed to drop back off about 6 ish but feel like poo. Throat and mouth so sore and joints ache like I’m an old lady. Still, at least no nausea or chemo brain - yet! Nice to hear from you Nicky, Lyn and Mary. Hope everyone is okay and having a good sunday, finding all the Jade Goody coverage very moving, think I’ll just have to switch off as it’s too much. love and hugs, Pat x
Afternoon all, it’s soooo good to be out of the “chemo cave” felt much more normal by friday and manged to get supplies in for families arrival home yesterday although I had to make 3 trips to our local shops as I can only carry 1 light bag at a time!
Manged to get beds made up and most of Sunday Lunch prepared before my family arrived home from 1st snow boarding trip. They were shattered but have had a fantastic time and are all hooked so looks like I might get Feb half term off next year!
No snow related injuries but sadly Car Door vs Ella fingers (10year old) ended in tears,nosebleed and post injury vomit! Poor kid! Luckily she had her gloves on still, which may have saved her from far greater injury and hubby kept his cool. He applied a ‘snow compress’ and fashioned a splint from part of a lip salve lid, very Blue Peter! The incident happened late on their last night and they had to leave early to get back for ferry so they are now having some quality father/daughter time at the local A & E for X rays etc!. I did volunteer to take her, I suggested if I sat with my headscarf at a rakish angle and PICC line on view we might not have to wait too long but he felt it might not be a healthy enviroment for me so I’m on washing machine loading duty! All back to normal here then!
Best wishes to all
G x
Oh Gill, hope Ella’s okay, little fingers and car doors don’t mix, do they! Hope they don’t have to wait hours at a&e either. Well, it sounds like they had a great time, and you sound like you’re doing good. It’s so nice when you come out from under the ‘chemo tunnel’ that’s what it feels like to me anyway. When you actually start to feel normal again and can get on and just do what you want or need to do without it being a chore. You sound like you’ve got loads done, make sure you rest up later, have a lazy sunday afternoon. Again, hope Ella’s finger is ok, love Pat x
Evening ladies,
Oh Gill I remember doing something similar to my daughter but with our house door and I felt soooo guilty for long enough! Hope she recovers soon.
Pat I had horrible probs with my gums last time and got a presc called Gelclair which was effective within 24 hours so might be worth a phone call to your GP? Interesting reading about yours and Gills feelings about chemo tunnel…I had been feeling so well that it was almost as if I wasn’t having any treatment then wham today…feel as though I have been hit with 10 ton truck…totally wiped out fuzzy head, upset tummy and weepy-even watching the Grumpy Old Women Live dvd didn’t raise much of a smile!!
Hope it won’t last too long as I feel guilty for feeling sorry for myself-soooo stupid!
Jacqui hope you have had a better day and got out after waiting for the nurse all day yesterday…can imagine you weren’t too civil to her when she did roll up???
OH been working all day so off for a pint and offered to get something for tea-bless him-he picked up very quickly how I was feeling so will have to make an effort when he comes home!
At least the skating is on tonight so I have a good excuse to veg in front of telly for the night.
Have a nice evening ladies,
Hugz,
Lyn xx
Hi all
Hope that everyone has had a good day.
Gill I hope that your daughter’s ok and that she and your OH didn’t have to wait too long at A&E.
I’ve just finished watching the ice skating. It really should be Coleen to go this week.
We had a phone call from friends who moved to Australia just before Christmas this morning. My name is on a sunbed by the pool and a room is ready and waiting. I keep telling them that the first chance I get I will be on a plane out there - once finances allow of course.
Have a good evening,
Nicky x
Hi all,
Sorry not posted for a couple of days,chemo knocked me right out from Friday and just haven’t had any energy at all.Saw OH off to work saturday morning, Thomas went to his Nan and Grandads for the day,i got back into bed and woke at 12.00!!! And i still slept later in the afternoon!
Sunday was pretty much the same - and soooooo grumpy too.
Hope everyone enjoyed a good weekend and is feeling not too bad for a Monday?
Well, better do the school run, big hugz girlies, back later,
Love Lou xx
Nicky, keep the sunbed next to yours free… I’m coming with ya!!!
xxx
Oh Gill,
Hope the fingers are ok?? I did the same to Thomas when he was little, he had his fingers in the back of the door jam, i couldn’t understand why the door wouldn’t close so gave it a huge pull!!! I don’t know who cried more!!!
Hope they are ok today?
Hi Pat,you sound like i’ve been feeling, like i’m a million yeras old - hope this doesn’t go on for ever this time.I’ve alos lost my bottom eyelashes now like Jacq - bugger! i was holding on to those as well!
Right thats me for now,
Much love ya all,
Me xx
Hey All, hope you’re all doing okay today. Am truly p***ed off but not about anything in particular, but about everything, just one of those days. Taste has deserted me although had a really spicy curry and could taste the curry flavour, not the rice or chicken though. Throat and mouth so sore and ache for England, but hey, this can’t go on forever, can it?! Determined to go shopping tomorrow or I’ll go stir-crazy, methinks a bit of retail therapy is in order. Is Ella okay now? Hope so. Bought some wool and a pattern on Ebay and gonna knit for a couple of new babies, one is a doctor I used to work for and the other my former supervisor’s grandaughter. Need to keep busy and I’m powering thru my other knitting. It’s quite relaxing too. Got a call form hospital re: complimentary therapy. At my last chemo, I was asked if I wanted to book a massage or anything so I’ve arranged one (just shoulders) for when I have my next Tax. What with the larazepam and this lady’s magic fingers, hopefully I’ll be floating!!! I’ll just imagine the ice-cold double bacardi and coke in my hand and I’ll be right as rein! See, do you believe me now, I’m truly losing the plot here!!! On the other thread some TAX veterans have been posting some really useful stuff, and it helps to have someone say ‘Yes, I had that, too!’ Do check it out, it’s worth it. Well, everything on this site’s worth it, of course. Jacq, what time did nurse come, please tell me you didn’t have to wait all day again? I can imagine the steam coming out the top of your head… Well, enough of me moans, groans and general twaddle, check in later, love and hugs, from a very slightly demented Pat x
Sorry, I’m knitting for the doctor’s new baby - not the doctor. But you knew that, right! Oh and Lou, no bottom eyelashes, my seem to be holding on, as do these very fine wispy bits of hair on my head, looks really strange. It’s weird that so much hair comes out, yet some doesn’t, why is that? Hey ho, Pat x
Evening all, thanks for the concern about Ella! She has a splinter of bone broken off the 2nd bone down and they made a hole in her nail to drain the blood out OUCH! sounded more like ER down there so I’m glad I didn’t go. She made it to school and been very brave. So next week I have got an appointment with her at fracture clinic on monday and chemo on friday! whoopee boy do I know how to have fun eh.
Pat and Lou, you sound like me last week, I really can’t remember much about it as I slept so much, I think its our bodies way of making us re divert energy internally to heal from the post chemo trauma so I think we are doing ourselves a favour by resting up and healing.
Off to Scouts later to see tomboy daughter invested, hoping i didn’t say indoctrinated when rang to ask the leader what time i needed to be there! Have to get Ella to Guides, other 2 to Scouts then pick all up! Not much sofa time tonight.
Have a good evening
Gill x
Evening ladies! Glad to hear everyone sounding much better. You still there Jacqui?? Or have you done something evil to the nurse? Lol!
I have been having quiet time today again as not feeling brill-been in touch with onc nurse who thinks I might be starting a urine infection-docs tomorrow for blood and urine tests-oh joy!
Using time at home profitably though-like you Pat I am knitting-only scarves but it’s quite therapeutic. My friend saw one that I had done in pompom wool and asked if I would do one for her and now her niece wants one too-think I will need to start charging…
Gill you remind me of how it used to be with my girls-I felt like taxi service, though it’s tables turned now as they get to taxi for us (when I’m feeling like going out!). OMG now I sound really old…aaarrgghhh!
On that note am off to get the needles going again.
TTFN
hugz,
Lyn xx
Hi, ladies, yep still here, but am feeling so negative and peed off at the moment, that I don’t feel it’s fair to keep moaning on here. You all have enough to deal with without my whingeing.
Anyway am off for my summoning to the JobCentre+ in the morning, so that they can ‘help me on the pathway back into work’. So am currently containing all my rage for 10.00am tomorrow. Checked my bank account earlier, and have found that have received £33 in benefits since 19th December - what shall I spend it on first?
Am severely tempted to hit the bottle before retiring to bed, but I know if I start that I will still be drunk at 10.00am, mind you - I’d probably get a few quid extra for being an alcoholic. xx Jacq, aka very, very grumpy old woman. xx
Hi All, Jacq, moan away, that’s what it’s all about, as well as having a laugh and commiserating with each other. I hope you gave 'em hell, hey that £33, what are you gonna spend it on? must have a list a mile long! Well, I had an eventful evening, ended up in a&e at 11pm when temp went thru the roof. Been feeling a bit ill with awful sore throat, headachey and feeling like poo, so on-call onc said to get bloods checked. We got home 5 hours later at 4.30am and just fell into bed. Thankfully bloods were perfect, no water infection and chest x-ray clear, dr didn’t know why temp was so high, said must be chemo, will try and get more info from onc before next one to try and prevent this again. Whatever the a&e staff get paid, it ain’t enough. Dr said my heart was racing, could have been spending 4 hours with several very loud and abusive prisoners accompanied by police officers, methinks! Feel a little better today, taken paracetamol as temp is down so hopefully aches and pains will ease. Off to find some lunch, can’t stop eating so I can’t be that bad, can I! Hope all are having a decent day, Jacq, look fwd to hearing how job interview went. It reminds me of when my mum was about 56 - 58, single parent and had worked all her adult life. She lost her job, and was made to attend a job club at least 3 times a week. I was sooooooo angry, she did all she could to find another job and eventually they agreed that perhaps she could actually retire early, not before making her jump thru however many hoops first. I know there are rules, and policies in place but why do they seem to pick on softer targets, there are pleny of teenagers and twentysomethings not working who would benefit from job clubs, training and whatever else is on offer, and people who just don’t want to work and know how to play the system. Urghhhhh! Sorry, rant over, blame it on sleep deprivation and hating the fact that Jacq has to go thru this. Will go and get calm now - no alcohol involved I promise!, love and hugs, Pat x
Oh lord, Pat, what a night you had - still at least it turned out that you were ok. I know they say to ring them every time we feel feverish, etc., but I don’t - 'cos I know they’d have me up there all the time in case it’s the back infected.
Which hospital are you under? They sound very good - with all the other treatments they offered you the other day as well.
Well, I went to the interview, was all raged out and the ‘interviewer’ was just toooooo thick to get angry with, she just wouldn’t have ‘got’ what I was on about. Suffice to say it was a total waste of time, and now have to go for a follow-up interview in a month’s time!
Tried to explain to her that I had been forced to give up work for the foreseeable future due to health reasons, and that I was quite capable of getting myself employed again when the time was right. So she asked what I was doing there … counted to 10 and then decided not to bother answering.
Ouch Lou, I remember doing exactly the same with my two - lots more than once!
Glad everyone seems ok’ish, am so looking forward to starting with the Tax in a fortnight!
Anyway you lot, make yourselves useful and knit me some fake caterpillars to stick on my eyelids!
Hi ladies,
I think you would be excused falling out on the bottle Jacqui, with everything you are having to put up with and yes keep moaning if you need to-getting it out of your system by whatever means is half the battle! Not sure what we could knit the caterpillars with…??
Pat I am sure you were quite glad it wasn’t an infection-spending time in hospital on iv antibs is no fun. I went to doc today with poss urine infection, which by the time I went down had cleared up probs with the gallons of water I have been drinking…only to come away with antibs for a lung infection!!! Happened to mention that I wasn’t getting my asthma under control, to be told she could hear something in the base of my lung. Could explain why I haven’t been feeling that great. Reassuring thing is she said if there was anything lurking in the bladder the antibs would treat both!
Anyway I am not under the weather enough to miss out on a friend’s 50th tonight though will probs be on the tonic rather than the wine!
Better go put some slap on and try to get rid of the yellow tinge my skin has acquired in case they think I am jaundiced as well!
Have a good evening all,
Hugz,
Lyn xx
Evening
Sorry to hear of everyones problems. Pat and Lyn I hope that you’re feeling better and Jacq I don’t know how you’re staying sane. To think that I’m woorying about going to half pay!
I’ve had a good few days. I took my Dad out to lunch yesterday. We also went to a swedish furniture store which I thought would be quiet but I think that all the schools in the area were still on half term and all the kids were at the shop. To cap it all the shelves that I wanted weren’t in stock. Of course as soon as I sat on the sofa when I got home I fell asleep.
Last night I went to drop a birthday pressie off at dog training and it was lovely to see people I hadn’t seen since before Christmas. Of course everyone commented on how well I loook.
Today I went out to lunch with a friend prior to some retail therapy. I was just settling down to my snooze after she’d gone home when I got the call to say that she’d left her coat here and her mobile phone was in the pocket. If that had been me I wouldn’t have been able to phone her as the no is on my phone! I then had to take her coat so that meant no afternoon nap. Trying to stay awake now so that I sleep tonight.
Have a good evening ladies.
Nickyx