Kindly insert the word ‘earn’!
Welcome Nettie, and I will just add my bit to what Jacqui has already said-they are a good bunch on here and very supportive, whether you are feeling in the depths or having a good one. You have certainly had a rotten start to the year but stick in there and keep asking questions-you need to know what is going on with your treatment-use your BCN even if you think it is a trivial matter-that’s what they are there for!
Hope all you ladies fine today? Despite being told by onc nurse to keep taking the steroids, I have reduced them to 1 a day with no SE and slept better last night, so am going to take in the evidence to show him at next review-either that or I will just hold onto all these steroids and keep them for when I need a lift!!!
Trying to prepare for an AGM of a group which I am president of, but can’t get focussed on what I should be saying so will probs just wing it tonight! I am standing down anyway so I am sure noone will mind-tough if they do!
Hugz,
Lyn xx
Hi All
Didnt do too bad last night had about 5 1/2 hrs sleep. Been with my sister to take mum for chest xray. Was putting cream on me feet this morn and guess wot my big toe nail was nearly off, didnt have a clue it was loose so I cut most of it and put plaster on, got it checked when i was as the hos after my sis made me, they said i did the right thing maybe it ws the EC coz I only had toxatere ystdy, got to be careful of infections. Avin bloods checked on Fri, and start anti biotics Sat just to prevent any infection with it bein weekend. They are lovely people in the unit I go to, cant do enough for me. Hope everyone has a good day
loads of love
Ange x
Hi Ange,
Sorry about your big toe nail! falling off. I know it sounds stupid but you dont go to Broomfield for your treatment to you. It was just that I was up at the chemo unit on Tuesday and when I saw your photo on this site I think it may be you… but it probably wasnt just a coincidence. Take care.
Love Debsx
Evening everyone
Iwnet out with a friend last night who I haven’t seen since starting chemo. Towards the end of the evening she admitted that she had been nervous as she didn’t know how well I’d look and whether or not she’d have to pretend I looked ok. She was pleasantly suprised I’m glad to say. She even coped ok with me sitting in the pub without any head covering. I think she’d have jumped on anyone who stared but i told her to just smile as that totally disarms people!
I met up with my Bosom Buddy who I was in hospital with at lunchtime. She finished her rads last week having been lucky enough to skip chemo. She’s coped well although she does say that her skin does feel very sunburned now and she has been a little tired. For those of us having rads at the end of this it doesn’t sound too much of a nightmare.
Did anyone get to Boots today? Is the eye mist now in short supply? Has it worked for anyone? I can’t get to a boots until Monday but thankfully it won’t be until next week that my eyes start bothering me.
I have to take my car in for a recall tomorrow. I only got it a few weeks before my dx. It explains why the alarm goes off for no reason on the driveway.
Have a good evening all.
Nicky x
Hi Debs, It wasn t me at the unit as I go to one in North Wales. Maybe she s had the same wig as me!!
Nicky I think your very brave going out with no covering, I think I would be too cold as I have to wear my turban in bed !! to keep me warm. When I had radiotherapy 3 years ago it did get quite a bad sunburn and very sore but it was ok. At that time I had to travel about an hour each way every day although I could nt drive as I broke my arm in three places by my elbow. Fell in Sainsbury s !! Just my luck!
Take care all
Ange xxxxx
Hi all, and welcome new ladies. Yes Nicky I got the Actimist at Boots - special price of just under a tenner, used it straight away and it did seem to help, but be careful not to get it in your eyes - easy to do without full eyelashes as it did sting for a few seconds. But my eyes felt soothed and looked less red. Hope car is okay and not off the road for anty length of time. Well, ready for chemo tomorrow, looking fwd to massage first so what with that and the half lorazepam I take, I should be feeling no pain! Jacq, I’ll be uploading another pic of dog wig my ebay wig, golden, long and layered. Very glam but just not me so my daughter’s friend is gonna cut it into a bob. In the meantime I’m just making do with my hats, although I only wear the one. Nicky, did you find it liberating going bare in the pub? I think because we ourselves are so used to it, we feel quite comfortable, it’s others that sometimes aren’t sure. Lyn, hope your meeting went okay. Nettie, hope FEC goes well on Friday, sorry you’re having such a rotten time. As far as finances go, contact Macmillan or Dimbleby - they should be based at hosp that’s treating you - as you can get financial help for things like broken washing machines, unexpected expenses etc. I believe it’s a case of contacting them or you breast care nurse, who can refer you. I read about this on one of the other threads I think and a lady got the cost of her washing machine back. There seems to be little enough help out there - just see Jacq’s posts - so do make use of the facility. On that note, what about Incapacity benefit Jacq - my OH was ill for several months back in 2002/03 and, as he was self-employed the only benefit he could claim was Incapacity. Hope everyone is okay, spring seems to be trying to make an appearance, long may it last. love and hugs to all, Pat x
Thanks Pat, for the money info. Wasn’t in the mood for blasting anybody today, determined to get on with it tomorrow though.
Had a bit of a weepy day today, don’t know why, but it could be to do with these sleep-deprived steroid nights. I hate taking those things more than the operations, chemo., anything … stupid I know.
You do cheer me up though, can’t wait to see the wig pics. xx Jacq xx
Hi all, Jacq, the steroids can make you depressed - with the tax you take double and I was crying at anything and everything, and what with everything else it doesn’t take much to start me off. With the last few days, well months, that you’ve had, it’s bound to catch up. Also, do you cry in temper? Watched Jade’s programme but found myself laughing with her most of the time, she was really very happy about her wedding, poignant though. I’m sure the one of the wedding will be tears all the way… Well, took my 2nd lot of steroids before 2pm but don’t feel very tired, going to bed to give it a try. Is it right that you inject yourself - I don’t think I could do that, best off letting district nurse do it. I’ll do what I did last time and ask when I can expect them. Hope all is well with everyone else, take it easy Jacq and I took your advice and offered my services to O2 to help them out with Tina, surprisingly they said no!!! Maybe when Michael Jackson’s there in July we could offer our services as backing singers, I’m sure we’re unique enough for Michael! love and big hugs from a very wide-awake Tina Turner impressionist who’s OH is reaching for the straitjacket as we speak. x
Hi Cass…
Just looking @ various threads and saw u had 2nd taxotere.I had this yesterday@ the Beatson in Glasgow.Was a bit worried…it does not help that I am a nurse and know a bit too much about drugs and stuff.Trying 2 tune off from that but hard @ times.
Those bloody steroids…loads 2 take .They prescribed temazepam this time around as I had huge bother sleeping after 1rst taxotere.However,as I have so many drugs to take and I HATE taking tablets going with chamomile teas and lavender baths instead.
Its the crash on dex I HATE and I seem to be soooo emotional on them…not usually me.
Only one more chemo 2 go…had 3 Fec prior to the tax.I am 39 & feel embarrassed whem i see old age pensioners battling on through & going about their daily business when compared 2 me I caannot get out my bed @ times.
Hope u r ok and r in the land of nodzzzzzzzzzzzzzzzzzzzzzzzz
Popping down for some more herbal infusions…
Take care
PAULINE XXXXX
Good morning ladies, and hope everyone feeling well today? Good luck with chemo today Pat, and if you get a chance Daily Mail has an article on Tina…might give you inspiration?? LOL!
Don’t know about the downside of steroids…I have cut back to only one a day and was up at 6.30-2 loads of washing done and out, changed bed, cooked breakfast for OH and now don’t know what to do with myself…aarrghh! Beautiful day so will probs take myself out for a walk as rain forecast for later.
So much for extra meds to help const…no b****y good-it’s dynamite I need! Also got a very sore arm on treatment side-anyone else suffered from that and is there anything you can do or take?
Well have a good day all and will check in later.
Lyn xx
ps Well done Nicky on going naturale in the pub-don’t think I could be so brave!
pps was really moved by pix of Jade in papers today…so sad…
Good Evening
Got the car to the garage today only to be told it was booked in for tomorrow - wrong - I’ve got a friend visiting tomorrow and that was arranged long before I had the recall letter. I may get chemo head but I know I booked it in for today. They did see to it - only took 30 mins. I didn’t have time to finish my very nice hot chocolate.
Lyn and Ange it wasn’t brave or liberating to sit in the pub without my hat. I just hate hats so much that I’d rather be bare headed. My wig hasn’t been out of the box yet.
Lyn, my arm has been v sore since the first lot of chemo. It was so bad last time that they had to use my other arm. After the first lot I was given Hirudoid cream for superficial thrombophlebitis. It does help a bit but I was told to keep using it even if I didn’t feel it was helping.The only problem is that I used it when I was feeling really sick and now have that smell/sickness association with it!
Pat, hope your chemo went well today.
Jacq, hope that the skin grafting isn’t too traumatic tomorrow.
My sister and niece came around last night to look at some old family photos we’ve unearthed. What a scream. I can’t imagine why I ever bought such huge glasses or had such big hair. One thing I did notice was that there were piles of photos of my 3 sisters as children but only 1 or 2 of me. The novelty must have worn off by child no 4.
Hope that evryone gets a good nights sleep. Don’t know if I will as once again I managed to sleep for most of the afternoon.
Nicky x
Thanks Nicky-will bear that in mind if it doesn’t improve, though they are not getting anywhere near my other arm cos even having only had SNB it is not a guarantee against lymphoedema and with that in both legs I am not risking it in 3 limbs!
Got the delightful check-up at the gynae skin clinic tomorrow, so will have to leave my dignity at the door once again! Honestly if they are not probing one bit, it’s the other!!! And got app in for liver scan on Tuesday…think I should just move in to the hospital at the moment!
Hope all goes well tomorrow Jacqui.
Off to try and get some more sleep than I have had the last few nights!
Night all,
Hugz,
Lyn xx
Hi all, Good luck for tomorrow Lyn and Jacq, will be thinking of you both. My chemo went well, great neck and back massage first so suitably chilled for chemo! Nurse didn’t arrange district nurse for inj so have to do that tomorrow, feel pretty normal at the mo apart from hot flushes and dry mouth. Steroids are keeping me going I think. Laughed and cried along to Jade’s wedding programme, so now eyes v sore! Good job I bought actimist. Hope everyone else is doing good. love and hugs to all, Pat x
Glad all went well Pat-hope you managed to get some sleep?
I have that hungover feeling today and as I have an hours drive into town am away out for a walk to try and clear my head.
Bought OK yesterday (2nd time in 3 weeks!) and have to admit got quite emotional at the pix of the baptisms-don’t normally buy into all the celebrity s**t but somehow this story has got to me!
Going to meet my line manager on Monday- she is quite hopeful of my partial return to work-hope my head is a bit clearer than today or they won’t entertain it!!
Going for this check-up today is like stepping back 3 years to the first cancer and really affecting me-logically I know there is nothing to worry about BUT…
Will check in later-have a good day ladies,
hugz,
Lyn xx
Well done everybody with their treatments, etc. Went for skin graft -no, course they didn’t do it!
Didn’t fancy it though, feel like shite. I knew that because those 3 x FEC
didn’t touch me - that the 3 x TAX would! Bloody lethal stuff. Everything - even my teeth are hurting to the max - feel like I’ve been run over. If I’d had a gun next to me at 2 a.m. this morning, I think I might just have … ?
And why do we watch those Jade programmes - got myself into such a state - so, so sad.
So onwards and upwards ladies, to a good weekend. xx Jacq xx
jac,
sorry for being dumb (haven’t seen you lately)
Have you just had the Tax??
I had my first last Wednesday, wasn’t too bad going in , unlike the EC !!
But last night was a mixture os sweating cobs! chills & tremors!
thought I was on a train ! no it really was me.
Is this normal to get side effects this quick? only 2 days.
thanks caronx
Hi All, Oh Jacq, when are you gonna get a break! Still, if u felt so bad I guess best not to have skin graft, was that the reason? I found with my first Tax the fluey feeling started within a 2-3days, the taste thing by the 2nd day. This time, I feel a bit chilly, but hot flushes - from steroids I think, but aches haven’t set in yet - had Neulasta inj this morning and that normally kickstarts things. Went out shopping, stripped beds and other ‘normal’ stuff before lunch but now feel a bit knackered! Didn’t sleep well again - blasted steroids but hopefully from tomorrow it’ll improve. I know what you mean about Jade but somehow I’m drawn to watching as she’s just a normal girl with 2 young kids ( my son was in the same class at school with her) and it shows how one woman is handling the most awful situation. And her two boys are too cute!!! So how’s everyone else doing, good I hope? Check in later, take it easy, Tax girls, we’ll get thru it. love and big hugs, Pat X
Yep, those Tax side effects started more or less straight away. And well … hot flushes? … thought I was going to spontaneously combust when I got to the clinic, and how do all those people sit on the stinking hot tubes wrapped up in hats and coats?
At least this should stop me having the munchies, throat’s too sore to swallow. Tried to eat a plain packet of crisps and was like trying to eat a box of knives. Me - who usually flies through a chicken phall!
No Pat, he just changed his mind about the skin graft and said it didn’t look ready for it - could have told him that. Got to go back next Friday.
And my fingernails are sore already, surely they can’t be preparing to abscond just yet?
I’m soooo coming back as a man - gonna marry my ex.husband (who will obviously come back as a laydee!), give him half a dozen kids and piss off!