Hi Everyone
Are you all ok !!! Where is everyone ?
Jackie xx
Hi there everyone
Hope you are all ok. I ve had a lovely weekend in caravan.Unfortunately my dad had another nose bleed and wouldnt stop so i ended up in a & e as soon as i got back he is now in a ward and i hope they are going to see what is causing it. Getting ready for what i think will be my last tax (No.6)on Tuesday hope they manage to get blood easier than last time and hopefully the cell count will be ok. Congratulations to your daughter Lyn xx and good luck for the next sports day.Kasia hope your treatment is going ok, I have also heard about the dairy but did cut down on milk etc but not totally will have to to get reading on it.Going for a cup of tea with my friend Pat now.
loads of love
Ange xxxx
Hi ladies, how’s everyone doing? Oh Ange, I’m sorry about your dad but hopefully they’ll get to the bottom of the problem once and for all. Jacq, hopefully you’ve lost your delightful accessories now and are free to roam! Hope you’re not too sore, take it easy. How’s your daughter’s appt go? Lou, where are you?! I went back to work yesterday, half-days for this week gradually building up to f/time in about 5 weeks. It’s really strange but good, I feel absolutely shattered when I get home but then at night I can’t sleep! Think it’s the tamoxifen, will discuss with onc in 2 wks time. Will check in later, hope everyone’s getting some decent weather in between the storms! love and hugs, Pat x
Hi everyone
I’ve not had the best of weekends. Neutrophils were down to 0.4 so had to go sat and sun for blood tests to check that they were rising ok. 60 mile round trip to the hospital plus the wait for the results meant that both days were written off really. I just hope everything is ok for chemo on Friday as that is the start of my last cycle of chemo. I’m also now on half pay and have found out today that my SSP runs out tomorrow. Things can only get better(I hope).
Lynn congratulations to your daughter. I too can’t face the thought of a smear at the moment although it’s overdue.
Hope everyone else is ok.
Nicky x
Hi everyone,
Thank you for your comments re diet and diary products. Decided to do more research first so bought another book by Janet Plant “Your Life In Your Hands” and will also run this idea by my onc next time I see her.
Had portacath fitted yesterday so this will make my life easier from now on. And having my FEC 3 tomorrow.
And Lynn, congratulations to your daughter!!!
Good luck everyone with your treatment. Keeping my fingers crossed for you and remember when the going gets tough there is always chocolate;-)))
Kasiax
Hi all, Ive just come back from ONC appointment prior to last lot of CMF starting on Tuesday. im totally confused, when I saw the other ONC she said I would have 19 lots of radio, 15 plus 4 booster to armpit, yet when my appointments come through only 15 lots, queried it today, she said she’d check with main consultant. Hour after I got back, call from radio dept at Addenbrokes saying they had a call from Onc to bring radio forward by a week, nothing about extra sessions. I don’t want it brought forward as I have an important day at Newmarket Ladies Day. Frankly I’m now getting fed up of all these hospital appointments, and after my hols in August I’ve got a year of herceptin.
On the positive side I got my ESA allowance through so at least it makes up for being on half pay. So Nicky, get an SSP1 form from your employer and phone up Job centre Plus, £64.30 a week for 13 weeks, then it should go up depending on how much more treatment you have.
Anyway hope everyone is OK now we are nearing the end of treatment.
Bye for now
Alison
hi girls…last tax for me on thursday hopefully - feels odd knowing its the last one…mary x , but good…
Hello ladies.
Good luck to all of you having treatment this week-can’t believe I am 5 weeks on! Feeling so much better apart from the sweats and sleeplessness. Not bothering me too much just now but with starting radx next week and having a 2 hour round trip every day for 5 weeks it is going to be tiring. Pat will be interested to know if they say it could be the tamoxifen? Hope you are getting on fine at work? I have been in every day this last 2 weeks though not whole days and have really enjoyed it. No chance of getting sports days with the amount of rain we have been having!
Ange hope your dad is improving and they get to the bottom of what is causing it.
Nicky hope your neuts improve before your treatment, and yes things will improve. Think it’s difficult to see light at the end of the tunnel but am beginning to.
Was recalled to have another blood test as my LFTs have been playing up, so plucked up courage when I was making the app to also make one for smear-something to look forward to next Tuesday! May as well get it all over with at the same time.
Jacqui and Lou…how are you both doing?
Anyway better go get some supper on or the troops will be rebelling!
Take care all,
Lyn xx
Alison and Mary, great that you have your last chemo soon. I actually found my 3rd and final Tax the easiest so fingers crossed for you both. Lyn, when I see onc on 29th I will ask if the tamox is causing my insomnia. It’s driving me nuts and, what with getting up earlier now I’m back at work, by 4pm I’m done. Yes, it is nice to be back at work. I work in a busy urology dept, dealing with everything from referrals, making appts to running the clinic (have to do some more training for that first). The word ‘cancer’ is bandied about a lot during the course of the day as many referrals are suspected cancers. I confess that I inwardly winced the first few times I heard it but I’m used to it again now. And when I had to pass by the lift I used to take for chemo suite I got a bit choked. Weird huh?
Oh well, as Phili on our ‘Rads Babes’ said ‘Onwards and Upwards!’ Hope everyone is doing good. love and hugs Pat x
PS Ange, have they sorted out your dear Dad yet? x
Hi There
Glad to hear you are all coping with your works etc, I hope that will be me soon, works paid me for a while but have just had my £128.60 for two weeks . My dad is still in hos, today they said he had a hole in septum so he has been put under to hav a mould made for his nose to have a plastic thing put in, so he won t be able to breathe through nose most of the time i just hope this works.I have been wondering wether I will be having any tablets or anything after this treatment finishes maybe they will just give me check ups i will find out in July after last tax. I am now fancying some wine so I will get one for BB well probably before.
Take care everyone. Hope you get some shut eye Pat!!
loads luv
Ange xxxx
Hi All
I am also pleased some of you are enjoying getting back to work it must be a really nice feeling I am sadly jobless now following long term sickness its a long story so wont bore you with it.
I had my bone scan on tuesday so just waiting the results and hope that wont be long as Im quite anxious now.
Hi Ange I really hope dad gets on ok now at least they have found the problem and can treat it,I hope you enjoyed the wine and BB I really miss the daytime live link will it come back ??
Well done to all getting to the end of chemo its a great feeling and another hurdle over.
I hope you are ok Jacqui and rid of that drain!!
Well off to get dressed and sort mum out we are expecting the doctor today so fingers crossed for her.
Take Care All
Jackie xx
Hi all
Thanks Alison for the advice about ESA. I had the SSp1 from work and phoned the job centre. I was wondering how i would fit in an interview but it was so easy over the phone.
Started my last cycle of chemo on Friday. It was nearly defered because of bowel problems but eventually the onc agreed to it going ahead. Fingers crossed that my last dose can go ahead this Friday. I just can’t wait to walk out of the chemo unit for the last time. The down side is that I have to have GCSF injections for the 1st time which means having to stay at home this weekend but if it stops the neutropaenia this time it’s worth it.
I still don’t have my rads planning appt through so I’ll have to chase that up as rads treatment should start in about 4 weeks. Like you Lyn it will be a 2 hour round trip for 5 weeks.
I hope that everyone elses last chemo has gone well.
Keep well everyone,
Nicky x
Nicky, good luck for Friday and last b***dy chemo! The injection will be worth it as a precaution. x
Hi all, next to last chemo tomorrow, hope they have more luck with veins than doctor did this morning, 4 attempts before finding a vein, now have arm full of bruises. Well after the last one on 30th have a couple of months before I start 18 doses of herceptin. Seems such a lot of treatment for what was a grade 1 20mm tumour. Just hope my taste buds return to normal, hate the horrible gunky mouth.
Good luck to everyone with radio.
Bye for now, got to go and be Mums Taxi.
Alison
After 3 … “Drain free, as free as the wind blows - as free as the grass grows - 'cos I’m drain free!” (Over a week ago now, but I’ve been on the missing list, I know - sorry!)
Anyway, hello you lot! First - and most important - youngest got told today that her lump is a cyst - hoobloodyray! They might still take it out 'cos it’s really hurting her, so she has to go back in 3 weeks. But it’s all good in the hood. (I’ve got the moves as well as the lingo you know!)
When they took my drain out, they also gave me the not-so-good tidings that another 9 nodes had been positive - making 14 in all! Let’s be honest, with my track record I didn’t really expect anything else - water off a duck’s back really. Anyway they’ve all gone now, so with the mastectomy (done), full axillary node clearance (done), chemo (done) and 5 weeks rads (not done!) and 5 yrs on drug (just started) - not much else can be done except hope for the best, and forget about it!
Bloody rads have been upped from 3 to 5 weeks, still they won’t be ‘bloody’ rads if they work! (Some old sod keeps moving those goalposts!)
Gonna post this and start a new one, 'cos I know it’s gonna vanish any minute …
… That’s another thing - just started that drug and one of the side effects is hot flushes - thought I already had them! Second night I woke up and thought I was drowning, I swear some bugger had crept in and chucked a bucket of water over my head. (Fan’s been on all night ever since.) Something to look forward to for the foreseeable future.
Makes your feet and ankle joints ache too. Feel like I’ve run a marathon, and not moved from settee. That reminds me, my eldest and a few of her ex.school chums did the Race for Life yesterday, and bagged around 2 grand. Well done them!
I know there was something else, but - well you know how it it - how long after treatment can we carry on blaming ‘chemo brain’?
Oh yeah, back’s getting a scab over it at long last (7 months). Sorry to all those eating their tea!
Anyway, that’s my news for now - me, me, me! So I hope everybody else’s treatment and lives are all on the up. Love and stuff, xJacqx
Smee again! Got rads planning appointment tomorrow. When we have the actual rads do we have to go topless again? Am so sick of whenever I take a top off, the wig has to join in too.
Will leave you in peace now. x
Oh Jacq, lol!!! I’m so glad you’re now drainless. Fantastic news about daughter’s cyst, really great. Yeh I’d let them take it out, just get rid. and well done on other daughters fundraising run. Now, you’ll never, EVER hear me say this again, about anything or anyone but Jacq, I’m thrilled to bits that you have a scab on your back! It’s about bloody time!
When you have the rads, yes you do do the topless thing. They give you a really glam gown which you can keep til end of your treatment (you won’t want to nick it, honest!). Once you’re on the platform(table) you slip your arms out of gown then your arms go above your head. You’ll get three little tattooes which are barely visible. Planning takes about 20 mins or so and then once you start you should be in and out in about 10 mins - once they’ve lined you up. You’ll be fine.
I too had a lot of node involvement - 10/18 - but I try not to think about it too much. They throw everything at it so as you say we must hope for the best. Yeh, the night sweats are a blast, aren’t they? The first time it happened I thought I’d had an accident… I’m using a ladycare magnet (no jokes please) to see if it helps with the SE - the hot flashes during the day seem to have lessened so that’s something.
Well, great to hear from you, hope rads planning goes well, I found the rads went really quickly, just a bummer that it’s every day. Still, you’re nearly there… Take care and big hugs Pat x
Hi Ladies, hope everyone else is doing okay. Best of luck for tomorrow Alison, lets hope they get it in first time, then there’s just one more to go. Ange, hope you’re ok, and your dad. Jackie have you had bone scan results yet - waiting’s a bu**er isn’t it? And Nicky, Lyn and all, hope you’re okay. I think Lou has deserted us! I hope she’s off doing lovely things with her family. love and hugs to all, Pat x
Tut … Pat, I can’t get that bloody arm above my head yet - after the node removal 3 weeks ago. Not got to have the rads there anyway, they said it would be where the mastectomy took place (bang goes my nice reconstruction and page 3 Saga job placement), and on neck/collarbone area. So will I need arm raised for that?!
I could easily kill Freddie off BB.