Thank you. Yes, impending doom is very much where I’m at! I’ve been thinking about sorting out my will and how my partner (with Parkinson’s) will cope if I’m not around as he’s not able to do much for himself these days. I am glad it is more manageable for you now. xx
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Sending huge hugs to you, the waiting and not knowing for me was the worst part! As others have said please don’t read too much into the surgeons manner as they can be very blunt. The only advice I can give is try to take it day by day as if you try and tackle all the worries at once it will be too consuming. When I was diagnosed I just wanted to hit fast forward but the truth it’s it is such a long process to make sure you get the right treatment plan. Take strength from the fact that they’re being thorough. Definitely lean on the community here as we are all in it together and at times I felt very lonely but soon realised that there is an army of support in your fellow warriors and the rough BCN 
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I was diagnosed with the same in 2021. It had spread to my lymph nodes, spine, clavicle and skull. Consequently no operation and I was put on target therapy - Palbocilclib, Letrozole Denosumab and Calcium and vitamin D to keep my bones strong.
For 2 and a half years my scans have remained stable, with no further spread and I am leading a relatively normal life including going on cruises. Positive thinking is important and I have joined a a lovely group called make 2nds count who are all in a similar situation but very positive about life,
Good luck and stay strong. xxx
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Thanks @pauline1. I am glad to hear you are doing well. It’s all so scary at the moment. I’m trying to be positive, but at the moment, that is quite a tough ask. Even I’m getting fed up with myself! xx
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Hi
You’re totally ok to be all over the place with lots of horrid news and fears hitting you from all angles
One of my breast team used the words ’ its a good tumour’ i laughed but put him straight and said no it isn’t its cancer please don’t use that terminology again
I understand now he was trying to say its going to be ok
Words are powerful so please have someone with you and write stuff down and ask everything you want even if it sounds daft or scary because once you know you know and you can plan
Your team sound very direct and in control so ask them to be gentle with you, tell them how this is landing
they will adjust and whatever the next step is they want you to live well and so do we
Good luck
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Of course you are. There is a lot of support out there so you are not alone. None of us know what is around the corner, and I treat it like any other chronic illness eg heart respiratory etc. we all have to make the most of every day and not say “if only”. I am sending you my energetic thoughts and love.
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Only that they are investigating ‘architectural distortion’. Obviously i immediately googled this. Its the 3rd most likely way that cancer is diagnosed after lumps and skin changes. It could be benign, but it is something called BI-RADS 4. I’ll probably have next weeks onco appointment before results are back. The radiologist didn’t really have any explanation for the 8 month delay in doing this biopsy. Thanks for asking. Hope you are well x
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Blimey they really are testing you aren’t they?
I’m doing okay 
met a new consultant and breast care nurse as I have moved house and asked for a referral to get into the system here, my first annual mammogram is due in September, I’m waiting to hear back from the hospital as to whether I need a dexa scan as I haven’t had one and was just put straight onto bone tablets 
.
Keep us all informed how you are doing
Xx
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Hopefully you’ll soon have all the answers, I feel for you - as if breast cancer isn’t bad enough to go through then to add everything else you’ve had to put on top of it. I really don’t know how you are still standing. I am with you in thoughts and spirit as are so many people on this forum. Please let us know how you are and that your oncology appointment goes better. xxx
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Hi,
I found a lump in my right breast in October 23 but left it until January 24 before getting it checked out.
At my mammogram and ultrasound they weren’t sure what it was as it wasn’t presenting as a tumour would, so I had a biopsy as well. I had no swelling or pain under my arm so they didn’t suspect node involvement at that point.
On the 9th Feb I was diagnosed with 24 mm grade 2 invasive mucinous carcinoma with DCIS to 32mm, ER 8/8 HER2 negative tumour.
I had a lumpectomy and sentinel node on the 4th March, unfortunately after testing 1 out of the 3 nodes showed a macro metastasis.
The fact that it had spread to one node was totally unexpected. I then had to to go for a bone scan and a CT scan. The bone scan was clear but CT scan showed some small lesions on my liver which then had to be checked with an MRI scan. Fortunately this was clear as well.
The waiting for the scans is the worst part in my opinion, the weeks seemed so drag by.
I’ve just had my 5th chemo session out of 8 of today, the chemo hasn’t been as bad as I expected, and I’m still managing to work from home. I will then have radiotherapy and then hormone treatment for 5 years.
I know it’s hard to stay positive, especially with waiting for scan results and I really hope everything works out well for you.
Speak to your allocated BC nurse about your worries, that’s what they’re there for. Mine were really helpful and supportive.
It’s really important to try and eat and hydrate as much as possible to help prepare for chemotherapy. I really think it’s helped me cope with it as well as I have.
My mantra is courage, strength, positivity.
Best wishes to you and all the ladies and men on here going through the same on here.
Sarah
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Thank you. I like your mantra - courage, strength, positivity. Best of luck going forward. I needed your reply now! xx
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best wishes x
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Good to hear you are almost at your first mammogram post cancer…that’s a milestone surely! Hope the new hospital and nurses are good. Xx
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Dear Bluesatsuma,
I think you are the bravest girl around, take care enjoy the sunshine with your children.
Biggest hugs Tili 
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Thanks @Tili. One thing this has taught me is how resilient we all can be when we face tough times. I don’t feel brave, but I know I am soldiering on. One thing I’d say to all you is that without this forum, I might well have lost the plot by now, so thank you all. X
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I am very sorry to read this. But you don’t need to tell your parents any th img further until you know for sure. And there’s no need to feel positive when the news is bad. It’s devastating and a shock. Let it sink in gradually and take it aboard as it clarifies, as the Team find out more. I have just finished one year of surgery, chemo and radiotherapy. It was a long haul, with better patches and worse patches. But I have also just done a beautiful walk and soaked up the sun and don’t have many more appointments now to go. One never knows if it will come back. All we have anyway in the end is the present. There’s no need to pretend to feel what you don’t feel . It’s not at all easy. But good things still happen even through it all.
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I’m just writing to let you know that here are people who are with you and support you. Love
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Please let us know how you get on and please remember we are all here for you. We know the stress it can have and we also know how depressing the wait is. I promise it does get better once you know what you are dealing with.
Sending much love x
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