Grade 2 invasive ductal breast cancer and terrified

Another thing ticked off now Ali, hope your recovery is speedy :slight_smile:
Good luck for your results today Julia! You got there! :slight_smile:
Xxx

Yay!!! Great news Ali, I’m so pleased for you xx I can go home this eve! : - ) xx

Evening all. Had my appointment today and luckily the mri did indicate area of DCIS to be taken. Due to a small area of DCIS being found on left hand side of breast and also a small bit in right side, decision been made to have a mastectomy. Drastic decision for something that may not turn invasive but the right decision for me. Having op on Wednesday so not too long to wait. Did discuss reconstruction at the same time but I ve made the decision to postpone until after holiday to Florida. Obviously I will be anxious until results back from op but consultant even said she doesn t think radiotherapy will be required cos of mastectomy. Just check up s every 18 months. I feel as if a huge weight has been lifted. X

Brilliant news Ali, a good day all round which is so lovely ! Xx

Hi Blossom hill

I am having single mastectomy. Other breast is perfect lol. It s the best decision I have made and even though will be hard and strange without it, I know it may have saved my life. DCIS is such a hard diagnosis as no one can tell if or when it will develop but I could not have lived with the uncertainty. Will have reconstruction but at a later date when I feel ready. Keep in touch X

Glad to hear you re going home. You can rest better there and feel better in ur own environment. This time next week, I ll be like you xx

Hi Ali

Glad to hear you feel better at home. Take it easy. I ll be in same boat as you next week xxx

Hi Ladies! Sending hugs to all! Hopefully should be getting one of my drains out today… They are driving me mad, my dog keeps getting tangled up in them every time I make my way to the bathroom and kitchen! Pain comes and goes, just very tender at the top of where my boob used to be but have loads of tablets which do the job of easing the pain although they make you bit sleepy… Birthday today so will be having a couple glasses of blossom hill ( cheers to you bloss) to celebrate! As the op stage is over I’m really worried what the next part will bring… Results from my lymph nodes etc… You can’t help but worry if while I’m healing its ravishing other parts of my body… God the worry! : - (

Dear Julia, thinking of you today. Lots of tender hugs. Expect discomfort so be very gentle with yourself xxxx

Ali

Hi Ali-B et al!
My second drain came out today, which feels weird as every time I get up to pop to loo or go make a cup of tea I automatically reach down to get the bag which had the drains in out of habit! It is a huge feeling of relief though! Unfortunately I have to wait for my recon as looks like I have to go through the radiotherapy aswell as chemo and oncologist thought it wouldn’t be a good move til I heal afterwards… Is a little weird, feels like really bad sunburn mixed in with stiffness and numbness, but on the whole I seem to be healing ok… Dreading getting the main dressing off next week though as its glued on?!! Eeekk! … Anyways major hurdle out the way!
Managed to pop out for a coffee with a friend, nice to get some air as cabin fever was starting to kick in a wee bit!
Julia thinking of you post op… Hope you’re ok xxx

Thank you Alib and blossom hill

Op all over but feeling sore. Drains are hurting more than anything else.

Hopefully home tomorrow so that s good news xx

Hi blossom , Ali b

On way home from hospital, one drain removed and going home with one. Feel like been run over by a bus . Got my sports bra and softie boob in so look bit better. Just feel really emotional after everything, I ll get ther. Hope you re all ok xx

Ah thanks Ali. It’s the worrying about results next. It doesn t help I always think the worst. When do u get yours xx

I keep coming on this thread to read up on how you are all doing Ali, Julia and Blossom (and anyone else!) I’m having my next dose of the chemicals on Monday and have been feeling well these past 2 weeks (my chemo comes in 21 day cycles) do not hugely looking forward to feeling rough again!
Julia remember it’s completely natural for the anxieties to start creeping in again, you still don’t know the whole picture and as I’ve said before, that really is the worst part. Once you know what’s what then it’s easier to deal with even if you need to go down the chemo/ radiotherapy route. If you can, remind yourself how well you’ve done so far, (and you have done well!) You are offering support to others who have found themselves in the same situation - that’s so valuable, you are stronger than you think.
Ali, I remember the relief of not having to carry the drain around! I’m still having seroma build up following my mastectomy at the beginning of December. It’s uncomfortable but no one seems concerned about it! I had reflexology earlier this week and I actually think that has helped - could be a coincidence. I go to The Haven, a charity offering support for breast cancer patients and their families. Worth looking to see if there is one local to you. I think MacMillan offer a similar service too.
Blossom, I’m sure you’re going through strange feelings of apprehension and wanting to get started! Like you say, it’s pretty major and will take some recovering from - but you will know it’s gone and that will be a massive relief!!
Loads of love to you all xxx

Just scrolled down to see who I may have missed - sorry Sandi, hope you are recovering well too xx

Hi Ali

It s strange but the biggest discomfort is from the stiffness in my arm. I m thinking they must have had my arm up in theatre the whole time I was in there. Lol

Hi kim

Thank you for your support. The anxiety is the really difficult thing to control. Hopefully results will be ready next Friday. They don t anticipate me needing any treatment but will know for definite after results xxx

Hey All!
Hope you are all resting well , Ali-B that means no ironing and dusting, Julia hope you’ve got that drain under control!! Bloss glad you’ve finally got your op date, get that rose or white charged through your drip girl and you’ll be fine!! Been doing my exercises non stop but arm is so stiff! Also worried I have weird fluid collecting in corner under my arm,get dressing changed on Tuesday which im dreading as its been glued down. Hey Kim, welcome to the thread… Hope you don’t find me cheeky in asking how the chemo cycle goes… I’m kind of dreading it to be honest… What symptoms did you have? X very anxious about my results from lymph nodes. Xx

Welcome to the thread seren.

I have gone through very dark times on here and it is these ladies on here who have kept me going. Next hurdle is the results which I am anxious for. Keep in touch all xx

Seren, so pleased you felt brave enough to join in on this thread, I wished that I had found this forum right from the start, it was after I’d had my surgery that I found it! It really has kept me going. Keep dropping in!

Sandi, my cancer was picked up from my first routine breast screening, I hadn’t found a lump and didn’t suspect anything was up. 

I’m also having seroma build up - started almost immediately after I had my last drain removed, I coud feel it as I walked to the carpark - that was on Christmas Eve and by Christmas day I was really swollen (handy!) Think that’s how I found this forum - I was gooling my symptoms online!! I started a ‘seroma build up’ thread (under surgery I think) you might find the comments on there useful.  

So chemotherapy! I’m having 6 cycles of what they call FEC-T. That’s 3 cycles of 3 drugs (FEC) and 3 cycles of T. Each cycle is 21 days and roughly speaking the first 7 days I’ve felt completely rubbish, spaced out and hungover, the next 7 days are when your at most risk of infection, but feel better and the last 7 days I’ve felt normal (well as normal as I get!) FEC-T appears to be quite common amongst other ladies on this forum, but there are other regimes I guess depending on what your oncologist thinks is best suited to you.  I’d really recommend any of you to have a look at the chemo monthly threads if it turns out you are having chemo. I’m in the January thread, but started off by dipping into the December starters thread to get advice.  It is scary to think about, but personally once I’d had my first dose, I was at ease with it. I hope that helps!

Good luck everyone :slight_smile: xxx