Cazza {{{hugs}}} and always know this is the place where you can say anything…
Oh and all of you I guess I should now mention the chemo-rage… Everyone seems to have heard of chemo-brain… Not everyone gets mentions the chemo-rage… Not sure if it is the bodies reaction to steroids… but it is really common that on chemo you suddenly find you can really kick ass… lol I remember being furious when my sil sent me some flowers whilst I was on chemo… lol We’ve never been close I think I have seen her in person about 15 times (if that) in the whole 25 years I have known my hubby… She’s never visited any of the houses we lived in, has never even commented on the fact David is autistic let alone made a single word of support, concern anything… And when these flowers turned up I went loco… lol Raging she had never shown any interest before and she wasn’t welcome at my funeral and I would make sure my sister and brother knew that… lol
Morning all - I have finished my treatment and hope to return to work 7th Sept.after dx July '09. I think I just let everything evolve and did what was asked of me by way of treatment and tried to keep as positive as possible. (Sister on chemo ward told me it was the best thing as they could always tell those who would have a prob. by their attitude. Don’t think that includes any of us, do you? )
Anyway I think I am more angry now by the fact that having gone through all the treatment I am not back to my “normal” self. Boob hurts, from the lymphodema I think and have no energy - never had a lot but feel so…oo drained after even fairly easy jobs. The arthritis in my knees is a lot worse and my feet and all joints also hurt. Have seen other ladies write about the “new normal” and this is what I need to come to terms with. Any advice ladies?
Lulu - yes it would be nice to meet up with Cazza in Darlington for coffee.
Midge - good luck and big hugs for your Tax on Tuesday.
Enjoy your lunch on Monday everyone and Emma enjoy your LGFB.
Marli x
P.S - my hubby says the same about me always being on the BCC site - lol.
Hi I’m looking forward to meeting some of you too! I’m taking my pillow as its an hours drive so I’ll sleep in the back of mams car he he.
Thanks Marli I’m looking forward to getting some ‘eyebrows’ today! wish you were able to make it.
Emma xxx
Lovely to see you all yesterday and to meet Margaret, Emma and Deb for the first time.
I really enjoyed myself. I wonder what the rest of the diners thought of us cancer patients laughing so loudly!
Emma, I hope you enjoyed your LGFB session and are liking all of your freebies. How are your veins doing today?
Deb, hope today went well for you, let us know how you get on with tax.
Went for my last bloods this morning and the marvellous chemo nurse managed to get blood out of my line, for the first time in months! Wahey! So relieved, for some reason I was dreading the needle more than ever today. I skipped out of the unit, lol.
Take care everyone and I’m looking forward to seeing you at the forum. Margaret, are you going to try for a place? It would be lovely to see you there.
Am back, miraculously no allergic reaction. I would have put money on it. Once again the chemo nurses were superb. Just waiting for the side effects now.
Hope Emma enjoyed LGFB and the nice supply of goodies.
hey there
I read you talking about these LGFB sessions and how good they are. How do they work? I know the nearest centre they hold them at is the Freeman hospital in Newcastle. Are they worth the trip? And what do you have to do to access them? Emma, did you enjoy it?
Thanks!
Lulu (very curious)
Good luck with the call - I do hope you get a place
Hi Lulu, the LGFB sessions are great, a really lovely treat and lots of great tips for dealing with losing eyelashes and eyebrows. The ladies are fantastic and it’s a really good laugh getting together with others going through the same thing. Certainly worth a visit, I’ve found a foundation I like after years of searching and discovered Dramatically Different moisturiser really is!
You can just call them up direct at the Freeman, Deb gave me the number a few pages back (around page 18 I think?) but I’ve found a number in my chemo book which sounds right, it’s 0191 2138356. Do give them a ring as they book up fairly early. I waited ages to call so wasn’t due to attend until this week, but managed to get a place on the waiting list and got there last month due to a cancellation. Good luck x
Hi Deb, no allergic reaction is great news! Keeping my fingers crossed it’s kind to you.
Hey Wendy
thanks for info and phone no. Will definitely give them a call and see if I can book myself in! I like the sound of it! Pampering is what we all need…
Lulu X
I know its late ane I have had a few wines but do you sometime get to the stage where you think how can this be happening this to me. besides the pain in my side how can I have breatst cancer.
Hi there. Yes Marg … Often find myself thinking how come this has happened. It’s such a rollercoaster of a time. Not sure when you were diagnosed but it was early June for me and my life has been turned upside down. We are probably still in shock and I guess it will take a long time to come to terms with situation - especially because there is no time to reflect because immediately after dx you jump on the merry-go-round of treatments, tests, results, treatments etc. I hope you feel better by the time you read this. Deb you are a star for managing first tax. I understood when you spoke of terror. We have to be so brave- don’t we? Hope s/e are not too bad. My 2nd 3 are tax. Anyway now on day 11 after first chemo and feeling great so have no complaints. So happy to feel healthy. Loved description of skipping out of unit after last treatment! Hope everyone is sound asleep now and having sweet dreams. Cx
Hi everyone!
I really enjoyed meeting you all on Monday and I’d love to do it again!
It’s such a shame that my afternoon went downhill so fast after that though….
I felt quite sick on my way to the Freemans, my awful headache started again too. By the time I got to their waiting room I was about ready for bed! I am gutted to say that I only lasted about 40 minutes at the LGFB afternoon, and I had been looking forward to it for weeks!! The ladies were all so lovely and I got as far as applying foundation, and then gave up. They sent me away with my goodie bag (WOW! By the way) and said I am welcome to come along to another one, as long as I take my bag with me.
It was the longest drive home ever, then once I was at home I started with a migraine! So unfair as the day had started so well, I’d only had chemo 4 days earlier but I wanted to meet you all!
Anyway I’m feeling a lot better now, looking forward to taking the kids to the pictures tomorrow, feel so guilty being in bed when they are off school!
Enough about me…
Deb how are you getting on with this chemo?
Lulu, I am having 6 x EC chemo too, I didn’t find many people with the same as me also Marli who comes on here had EC. She is fab, really helped me through it, I asked her all sorts!
Wendy so pleased your bloods weren’t a problem! Mine are rock hard and so sore! What was the name of that cream again? I think I better ask my doc or the chemo nurse for some tomorrow so I can be prepared for the 8the Sept! When is your LAST ONE?
Hi Caz & Theresa & Monica!
Margaret it is realy unbelieveable when you think ‘I’ve got BC’ I still cant quite believe it, even standing looking at my two scars and bald head it still doesnt seem real! I hope you get to come to the Forum, if not we will smuggle you in, dress you up like a waitress or something! (I’m joking incase I get shouted at!)
Morning all- I am awake at vomit o clock so though I may aswell post.
Margaret- I can completely understand how alien this all feels . It is like it is happening to someone else in a parallel universe. The docs keep trying to convince us that all this treatment will make us better when we didn’t feel ill in the first place. Try to enjoy your well time between treatments, but rest too. So you are strong mentally and physically.
Emma so sorry u didn’t make it to the end of LGFB. I am going on the 6 th sept at 2pm if you can re book. But it is a hike for you. Someone said there was a DVD you can order.
Cazza I am glad you are having some good days. Remember them for next time, so you can plan treats and fun.
Despite my terror tax went in easyand even the triple steroids didn’t keep me awake last knight. But as you can see am awake early. I expect the side effects to kick tomorrow after the steroids are finished but I am pleased to report no nausea so far so that is a bonus.
Wendy is it you last one today? If so good luck and well done.
Best wishes to everyone else. Monica and Theresa thank you so much for coming to the meet up. I hope you realise how vital you are for seeing life after all this.
