Morning everyone…
Emma - so sorry to hear that your day went so downhill…
{{{hugs}}} Hope that you get to the pictures today… I started my chemo early June 2008 and it was the same for David - few outings that summer holiday… xxx
My Mil arrived for a visit yesterday so probably won’t get online much the next few days - but thinking of you all… xxx
Theresa x
Hi everyone
and so sorry,Emma, about you feeling so unwell. Perhaps it was a bit too early to venture out and plan so many things after only 4 days. Still, nothing ventured nothing gained. Right? I think you were very brave! I have got all this to come of course. Damn! Didn’t realize you are scheduled to have 6 EC too. I am due to start mid Sept. but it all depends whether my back has stopped producing serum. I feel like a Jersey cow at the moment who has to be milked at regular intervals. Ok, not quite but you know what I mean. It’s not pleasant being syringed with those HUGE needles!
Cazza told me there is a planned get together for ladies living south of the border at the James Cook’s holistic centre on 1st Sept. I understand Emma is going to be there too and I hope Marli as well before she goes back to work. It will be nice to meet!
Keep smiling ladies and I am glad you are also sharing the same feeling of disbelief for your diagnosis!
Have a good day and keep smiling
Lulu X
P.S. Have you noticed that the time you are supposed to have sent the message (the one appearing at the top) is wrong? It’s an hour behind…It will right itself in October when the hour changes I guess 
Lulu X
Hi Lulu
Just checking the information about the time of postings in your last post, I can see that it says you last posted at 08.34, is that wrong? (I am posting this at 08.58 and it says I have posted at that time)
Thanks
Lucy
Hi Lucy
on mine the time of your posting appears as 07:58. Is it just my computer? Very strange!
Lulu
Hi Lulu
It sounds like it could be your computer, maybe other users will come back to let us know what time their computers show for these postings
Thanks for replying, I am back on later so will check this out
Lucy
Hi Emma. Sorry to hear about feeling unwell on day out. Sounds horrible. Glad you are feeling better now. I got a terrible headache one week in which was like a vice on the back of my head and it moved down my spine. It responded to paracetemol but for some reason I associated it with the injection I received after chemo to boost immune system. Might it be that for you? Anyway am hoping will be coming to meeting with Lulu and Marli. Shall we still meet you before? I so hope your s/e have eased off today. Cx
Time of posting is an hour out for me too. It’s actually 9.21 as I write.
Hi everyone - glad to hear you had a jolly lunch on Monday. Was not able to join you but perhaps in the future, although I am hoping to return to work 7th Sept. but don’t work Mon or Fri.
Emma, what a shame about your LGFB session.Perhaps late in the year you can go up again when chemo is over.
Thought you may be interested in a DVD/Cd available from Breast Cancer Haven for those ladies who are not able to visit one of their centres (saw it on another thread).has short video classes in Tia Chi and yoga and pieces on emotional support and arelaxation Cd. I’m really pleased with it and think it is worth the £10 suggested donation. Details on the Breast cancer Haven site - look for Breast Cancer Haven at Home on the left-hand menu.
Hope you are still feeling relatively OK Midge.
Best wishes to all. Marlix
Hi everyone
Emma, sorry to hear you’re feeling so tired and poorly. I hope you’re feeling a bit better today and enjoy your lovely new goodies. Did you manage to get the pictures today?
That cream for the veins is called Hirudin I think? I’ve still got some upstairs so I’ll double check and let you know.
Deb, how are you feeling? Are you having the Neulasta jab? It does seem to give you some aches and pains, a bit like coming down with flu, but my white cell count and neutrophils are up higher than they were before I started this journey!
Well, last chemo is in and done! What a pain today has been though. First off, my bloods had to be done again as they’d clotted, so that was a big delay. Then I realised, silly woman, that I’d forgotten to take my Emend this morning, so another an hour delay. I evenutally got out of the unit at 2.30, having arrived at 9am. I was properly grumpy! Came home and had a good sleep and feel a whole lot better now.
What an anticlimax though. Back tomorrow for the Neulasta and I’ve still got to go in for line flushes so I suppose it doesn’t really feel done with yet. I thought I’d feel ecstatic that it was all over or even really emotional, so it’s a bit odd really.
Hope everyone else is doing well and feeling good.
love
Wendy
xxx
Hi Emma, that cream is Hirudoid. Eventually got off my lazy bottom and checked for you xxx
Morning all
Well still not too bad- had my last steroids and neulasta jab yesterday. So have emend to take today and then that is it it apart from cyclezine which doesn’t really domuch good. Any hoo I am feeling ok apartfrom woolly mouth and no taste. I imagine it will be today things might go pear shaped. Have warned OH about roid rage lol.
Wendy sorry your last one was not plain sailing. But it is done now- well done you. I hope the side effects are kind to you.
Emma - I hope the cream works for you. Debx
Hope everyone else is well. X
Morning everyone…
Deb - my tax side effects used to kick about 60 hours after I was given it… so used to wake up in the middle of the night as they kicked in… I really hope it is kind to you xxx
Wendy - last one in… xxx It is a weird feeling as you spend 6 months thinking you will be so pleased but in a way lots of us find it is not like that… Mind you my last chemo meant I was finally going to have the op so only 1/3rd of the way there with rads to come as well…
Here is a link about IBC for the people I was telling bits about on Monday… en.wikipedia.org/wiki/Inflammatory_breast_cancer
Nigel and his Mum are just walking Molly on the common so just a quick visit…
Love to all xxx
Theresa x
Thanks for the name of the cream Wendy Ill ask my doc about that & congrats on your last chemo! I’m looking forward to it & dreading it all at the same time too!
My headache turned into a migraine from hell early Wed Morning, I rang NHS direct to ask what I could take on top of what I’d already taken. They ended up sending an ambulance (car) round, then she sent a bigger ambulance for me and off I went to James Cook Hospital!
The doctor scared the life out of me, saying I may have a had a bleed on my brain, or a brain infection OMG! They gave me pain meds and I went for a CT Scan… that was awful, being back there so soon. Anyway it was the longest 1 ½ hour wait for the results that came back ok, but I was then sent for a Lumbar Puncture (Sp?)…luckily I picked up a lot and they decided against that in the end, they just kept me for observation until I felt ok again.
I hope I don’t scare anyone having chemo, because the chemo ward said side effects shouldnt last this long.
So that brings me to now… I feel a lot better, just have a bruised eye ball feeling!
Hope your all ok, and Deb with your chemo, hope your ok xxx
Hi
How terrifying Emma. You must have been beside yourself. Am so glad they didn’t have to do a lumbar puncture as I have heard they are nasty. So they think it was a nasty side effect from chemo? Well take it easy now and rest up. The stress in itself will take it out of you.
Chemo has been ok so far. Am waiting for the dreaded tax se’s. My mouth is a bit sore and have had a few aches but that could be the neulasta.
Look after yourself. Debx
Hi Emma
I’m so sorry to hear that you’re having such an awful time, it sounds absolutely terrifying. I suppose the hospital are erring on the side of caution, but what a thing to have to deal with on top of everything else you’re going through. I hope you’re feeling a lot better now. I bet you can’t wait to get through this chemo, is it one more you’ve got to go now? Big hugs Emma xxx
I’m still feeling pretty good, no side effects yet, though I forgot to take my steroids this morning, so I’ll no doubt be buzzing all night. Might see if anyone fancies going clubbing!
Just found out my oncologist is leaving, so I’m assuming I’ll be passed onto someone else fairly soon. Lord knows when I’ll be starting to rads, just got an appointment to see the onc in the middle of September, so I guess I’ll have a better idea then.
Deb, glad to hear you’re still doing okay on the tax. Is it a relief to be free from the nausea for a change? Hope the other side effects aren’t too tough on you.
Take care everyone
Wendy
xxx
Hi Wendy
Who is your onc? I wonder if it is the same as me. Debx
Emma {{{hugs}}} that must have been so scary…
Have the rest of you had emails about the forum? I am doing
Friday break out group: Menopausal Symptoms
Friday well-being session: Relaxation
Saturday morning break out group: Lymphoedema
Saturday afternoon break out group: Moving forward
I know some of the Scottish girls did the exercise session on the Saturday and said it was alot more exercise than they expected… lol
Theresa x
Hi Theresa
Mine are talking to children, relaxation, relationships and moving forward. Might change to lymphodema as my hand has got a bit puffy lately. Dx
Hi Deb
I don’t think I’m allowed to say on here, Dr M?
Theresa, I’ve got my confirmation through too, I’m doing
Friday break out group: Breast surgery and reconstruction
Friday well-being session: Relaxation
Saturday morning break out group: Intimacy and relationships
Saturday afternoon break out group: Moving forward
So it looks like we cross over on Relaxatilon and Moving forward.
It was so difficult to choose though, I would have loved to do the menopausal symptoms and talking to children too. I’m sure I’ll be able to fit them in some other time.
I’ve just realised I might have booked my onc appointment for the same Friday, I’ll have to check that out and change it if necessary. This chemo brain thing is a nuisance!
Wendy
xxx