Hi
Thanks Wendy. Mine is a Dr L.
Hope I am well enough to make the forum. Will have to see. Dx
Hi Emma - so sorry to hear about your migraine from hell. Is sounds utterly awful and then your time in hospital sounds harrowing too. You must be exhausted after all that. Hope you have the space to rest now. I have been ‘speaking’ to Marli and Lulu and we are planning to come to the meeting in mbro next Wednesday night at 7pm. It would be lovely to meet you then if you feel up to it but dont think about it for now. I’ll contact you nearer the time. Cx
Hi All
Well tried to get on forum but they said I was not allowed due to age. Did explain about relationships and children forum sessions would really help me, but no. I was offered the menopause forum which really felt like a slap in the face. Sorry to old for young women forum but here is the old womens one. LOL.
Went to see oncologist today told I need 4 x EC followed by Herceptin for a year. Not sure about Herceptin as I have to have heart checked out because it can damage heart muscle.
Also found out one of my friends from the south has just been diagnosed with breast cancer. She only checked herself because of what happened to me.
Emma hope your feeling better, Bet you thought what more crap my way.
Love to you all.
Margaret xxx
Oh Emma, I’m sorry you’ve had such a rotten time, what a worrying episode, I hope its well and truly over.
Wendy, glad its all over - typical that the last one is so complicated…it is weird to go back for line flushes, but just a few weeks and you can get the line out - I loved that! (sad or what??) Are you having rads?
Margaret, I’m with you - rated as over the hill, eh? I DON’T THINK SO!! Its a bit disconcerting - last time I had this I was too young for the groups because there was so little for younger women. Guess life is in the timing…
Deb, I hope you have an easy time of it - keeping everything crossed for you
Theresa, hope you have a lovely time with your mil
Cazza, lovely to hear from you again
I hope I haven’t missed anyone out, this is a lovely thread.
So great to meet everyone - maybe we could meet up in Durham or thereabouts to get everyone together. I’m definitely up for meeting again, really enjoyed it. I can only do Mondays and Fridays (or weekends)
take care everyone
monica xxx
Hi all
Going off to the lakes for a week. Rest , well dont know about that, taking olivias friend. so hope to get some rest.
Start chemo on the 6th. Thought I was ready for this, well I am in my mind. But dont feel prepared as I wanted mouthwash, wig, scarfs,ect all at hand so as and when I need them they are there. I know its a bit over the top my way of keeping in control.
Woke up last night in a panic thinking I dont know much really about when all this starts. They tell you all about side effects, but dont say at what stage.
Will I start feeling sick straight away?
Is it the first week that I will feel ill?
Hair does it fall out staight away?
Sorry does it sound as if I am in a panic.
Hope you all have a good weekend
Love to all
Margaret xxxx
Hi Margaret
I hope you get to have some relaxing time. The lakes sounds ideal for keeping you busy and getting some fun time in.
As for side effects from chemo we are all so different it is hard to predict. In fact each of my fec cycles were different and tax is different again. There are people to help you if your side effects are bad, but often people cope quite well with them. My hair started to go on day 19 after fec 1. It was then that OH shaved it. If you had bad morning sickness or are travel sick mention it. Drink plenty before and after chemo and take senna before chemo as it stops you getting constipated in the first place.
Have a nice break. Debx
Hello everyone, how lovely to be browsing the site for stuff about Tamoxifen and to find all of you out there in the North East. I was diagnosed in Feb 2010, have had mastectomy, FEC-T, and have just started my tamoxifen while waiting for my radiotherapy. Just totally fedup with a prosthesis that doesn’t seem to feel right and my weight gain. Am off to march about on town moor in newcastle to try to start shifting the 10 pounds I’ve put on - its not the weight that matters to me, it’s about body image and feeling good in this still new me. But all in all thats not so bad eh? Good to “meet” you all,
Nicola
Hi nicola im from Sunderland and you were diagnosed the same time as me Feb 2010 ive just finished my chemo 2 weeks ago and iam starting my radiotherapy oct 1st i have the preliminary sessions just before that on the monday and friday . my oncologist said to start tamoxifen about the same time as rads but im going on holiday for a week soon so going to start after hols . Have you been ok with them so far and let me know when you start your Rads and we might see each other there Take care Julie x
Julie, good to hear from you. I will be finished by end sept as I start on 7th, but I can let you know how it goes and any tricks of the trade! Hope you have a good holiday, cheers Nicola
Hi Emma
I must say I am beginning to panic now hearing about your nasty side effects! I am supposed to start sometime in September (onc hasn’t given the go ahead yet because of the seroma on my back) with the same chemo as the one you are having…New kid on the block by the sound. Am I the only one who hasn’t started chemo yet on this thread?
I DO hope you’ll be able to make the Wednesday meeting, Emma, as it would be nice to meet you (Cazza and Marli too).
Welcome to Julie and Nicola who have joined the thread! The more the merrier I say!
Enjoy bank holiday weekend
Lulu
Hi all
Welcome to Nicola- glad you found us.
Tax is a bit of a bu**er. Can’t quite get q handle on it. Sometimes I feel not so bad and then the stabbing pain and indegestion start again. I phoned the out of hours doctor yesterday to see if they could top up my meds with anything. He described my se’s as irritating. I said you haven’t had chemotherapy have you? Silence…
Hope everyone is ok. Def will not be at the forum unless chemo is delayed. My worst days were Friday and Saturday. So not a good idea to be out and about. Am disappointed but I just wouldn’t be functioning very well.
Take care everyone. Hope chemo is doing it’s job. Debx
Ehm…sorry Julie, didn’t realize you had posted before. Hadn’t seen your name in the past month or so, which is when I discovered the thread. Apologies.
Lulu X
ha ha no probs Lulu . I just hadnt been on for a couple of weeks before . Id had my last chemo ( 18th aug ) and was a bit pre-occupied with all the maeals and suprise party etc my family and friends had organised for me. I have been really lucky and not been ill with chemo ( only no. 3 ) had really bad sickness but was given Emend and since nothing .so to anyone having chemo dont suffer in silence ask for this .i wish id had it sooner. Ive had a couple of days after a bit tired ( had a couple of early nights after chemo ) and then usually 2 days after a bit of a flush on ( looked like a turkey cock ) and then a bit tenderness to my neck and even face to touch then usually back to normal and doing my normal routine things , but i count myself really lucky to feel this way as i know some ladies on here have had a much rougher time with SE . hope yours are not too bad and remember everyone is different so dont go frightening yourself xxxxx take care all and hope you’ve all had a good bank holiday if anyone wants any tips or pointers you can private message me . It will go over very quickly i know its sounds a long time but mine has flown and iam now looking forward to hair for xmas ha ha xxx
ha ha no probs Lulu . I just hadnt been on for a couple of weeks before . Id had my last chemo ( 18th aug ) and was a bit pre-occupied with all the maeals and suprise party etc my family and friends had organised for me. I have been really lucky and not been ill with chemo ( only no. 3 ) had really bad sickness but was given Emend and since nothing .so to anyone having chemo dont suffer in silence ask for this .i wish id had it sooner. Ive had a couple of days after a bit tired ( had a couple of early nights after chemo ) and then usually 2 days after a bit of a flush on ( looked like a turkey cock ) and then a bit tenderness to my neck and even face to touch then usually back to normal and doing my normal routine things , but i count myself really lucky to feel this way as i know some ladies on here have had a much rougher time with SE . hope yours are not too bad and remember everyone is different so dont go frightening yourself xxxxx take care all and hope you’ve all had a good bank holiday if anyone wants any tips or pointers you can private message me . It will go over very quickly i know its sounds a long time but mine has flown and iam now looking forward to hair for xmas ha ha xxx
woops posted twice
Hi everyone, long time no speak! I hope you are all ok!
Deb they said it must just a side effect from my chemo, although all the docs/nurses said I shouldn’t have been getting side effects for so long? Anyway the scan was clear so I’ll just have to stock up on codeine & paracetamols for next time! Sorry you don’t think you’ll make the forum … you never know …. Fingers crossed!??
Yeah Wendy I have just the one more chemo to go. Are you all done with your line and everything now? Also hope your doing ok after your last one! Have you heard about your Rads yet? I have my planning date for 21 Sep to start on 28 Sep.
Cazza it will be great to meet you, Marli and Lulu at the support group on wed!
Monica I’d def like to meet up again, Durham or anywhere suits me, I really enjoyed it last time!
Good to ‘meet’ you Nicola!
Emma xxx
Margaret I see you’re having EC like me (and Marli had this too) please, please don’t let me have scared you because apart from the headaches I have been fine! My chemo nurse said other ladies that have the EC don’t suffer with headaches, I’m just an unlucky one! I haven’t been sick once, not exactly felt nauseous just not fancied food…you just feel more tired than usual, your body will tell you when to rest, I was surprised by how tired I was and would go for 30 mins sleep and be out for 2 hours! I think that’s the best way, just sleep through it! Anyway I hope you enjoyed your time in the lakes & Olivia and her friend didn’t wear you out!!
My ‘must have list’ is Stewed prunes at home (to prevent constipation!) in your handbag for chemo take some bon bons or sherbet lemons to suck on as one of the chemo’s has a metaliccy taste, at home I always have a loaf of warbutons fruit loaf & orange, it’s the only think I can taste for the first 2-3 days after chemo! I eat it dry!
Lulu I didn’t mean to worry you either, everyone different, we can compare notes on Wed!
Emma xxx
Ok Emma, I’ll try not to freak out then. In truth, judging by the various postings on this website, each woman is different and SE tend to vary greatly. I’ll just have to wait and see what chemo has in store for me.
Cazza and myself are planning to come to the James Cook support group on Wednesday so that we can meet. Not sure about Marli yet. By the way what is the session about? I have NO idea (but will come all the same).
See you then
Lulu XX
I’m not too sure myself as Ive only been to one, and then I only caught the last hour! They had a speaker and then we all had a cuppa and chatted about things it was really nice to be able to talk to women in the same boat as me. The support groups are the first Wed of every month, then they also have extra talks on:
Finances & work on 30 Sept, 6-8
Breast Reconstruction 25 Nov, 6-8
Healthy Eating 27 Jan,6-8
Adjusting & adapting after diagnosis 31 March 2011.
Emma x
HI Midge,
I read your comment about your chemo side effects and bad days and general not functionaing very well - when I was doing my FEC-T Friday and Sat were by far my worst days having had it on Tues, and I took anti acid/reflux tablets every day while on the Tax. The Tax did for me really, I know its different for everyone but I thought your description of not really functioning very well summed me up nicely! In the end I didn’t have the last one as had a bad nerve side effect - peripheral neurophathy -so they had to stop it. But you know what- three weeks after my last one I began to feel like myself again so hope this is similar for you. all the best Nicola