HER2+ and need some buddies

@naughty_boob @Kay0987 Thanks lovely ones. I have felt so different over the weekend. This massive weight has been lifted and my life has been given back to me. I’m told that my consultant’s failures will have been noted and I feel that leaving and going elsewhere will speak volumes too.

I can’t lie, 6 months of chemo is daunting but compared to being told I may be on it for the rest of my life, it’s like a wonderful gift.

I will absolutely be taking on board your tips regarding the recommendations for getting through it. One day I will be like you guys and cheering on future poor women who have to get this diagnosis.

You guys are the absolute best, you really are.

XXX

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Oh @salbert I too am so pleased you have all that surgery and uncertainty behind you. Nobody will pretend the chemo is easy, but I know you will be amazing given what you’ve shared and already been through to get this far. Meanwhile, this little gap/wait is a less uncertain one enjoy doing all sorts and making the most of it. :heart::muscle:

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Thank you @suedot

I am under no illusions that chemo is a walk in the park but I never could have believed I would be so happy to be told I have a start date.

I never heard again from my NHS consultant so I emailed this morning asking to be discharged. I was expecting to hear on Friday but it’s now Tuesday so I’m drawing a line under it.

We are going away on Friday for a few days in Devon before the chemo begins so it will be a lovely little break - calm before the storm!

It has brought it home to me how for some people who are waiting for scan results, the news will be bad and how devastating that must feel.

Life is so precious. I promise I will be making the most of the next few days.

XXXXXXXX

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Thanks ladies. I’ve not really been online for the last couple of days. So results of today…So all clear margins, no lymphnode involvement! Will need 6 cycles of chemo which will start in about 6 weeks ish to be confirmed 3 weeks apart, 1 year of Hepertin, some radiotherapy then Tamoxifen for 10 years. Back to work next week for a couple of weeks whilst I’m waiting for appointments then going to ask to work from home during chemo treatment to minimise risk of infection…at least that’s the plan :grin:

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@chellebelle congratulations on the good news. Great that you have your plan mapped out too. I hope it goes as well as it can. I have worked on and off all through chemo. I managed 8 working days each cycle with 7 working days off. It is doable but i got more tired each cycle so the last two were much harder. Worth letting your work know just to manage their expectations. Let us know when you start and join your months chemo forum. We’ll be rooting for you.

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Hey @chellebelle So happy for you that there is no lymph node involvement! That is great news. I start my chemo 2 weeks today. I have it every 2 weeks for 4 cycles then weekly for 12 weeks. Then I will have the mastectomy and reconstruction and radiotherapy. My new team at the Marsden are amazing. All my confidence and faith is restored. This is a good day for us. @frazzledmcsazza you are inspirational. I love that you continued working. I hope to be able to still do a decent amount of work and I can work from home so I can even have my laptop in bed. If I start chemo this month then I guess I should join the February starters forum then. Wow! This IS moving fast now. :flushed: Yikes!

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@salbert yes join the Feb forum. There are all different types of chemo some have more side effects than others so if you find you can’t work don’t be too hard on yourself. Glad you have a date now and confidence is somewhat restored.

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@chellebelle Thats great news that there is no lymph node involvement.

@salbert so pleased you have a date and a treatment plan.

Please join the monthly chemo starters group, you will meet/people going through the same or similar to you, offer help, support or just be there to listen to you.

As far as work, ensure work are aware how you may be during chemo, you may have days when you can’t work at all. I think it is sensible to work from home if you can.

Most of all be kind to yourself. Chemotherapy is not easy but it’s doable. Some things may need to be put on hold and that’s ok.

You are strong you can do this🥰

Thanks ladies!! I guess mine will probably be in March as they said it’s gonna take about 6 weeks before I start but will see. @salbert hope everything goes smoothly for you x

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Thanks @frazzledmcsazza @naughty_boob @chellebelle I will join the February Starters then. I feel like I am graduating and going to big school where there the teachers will be harsh but get me great results!

I have to be quick as I am on holiday and husband is waiting for me to go out. I will need to go over all the chemo advice that has been on this thread in weeks gone by to prepare myself. Right, better get in the shower, I’m getting nagged. I think we are off to Salcombe.

Love to you all,

Sal
x
xx

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Hope you are having a lovely holiday @salbert

I read through chemo starter threads to get an idea of what to expect. Obviously nearly everyone is on different treatment plan sometimes you will find somebody on the same chemotherapy regime so you can compare side effects.

Thinking of you :smiling_face_with_three_hearts:

Hello!

I’ve had such a lovely holiday. We are back tomorrow or Thursday (may stop on way home) and then it’s full steam ahead. I must have a read of all the cold capping stuff and February chemo starters and get fully prepped. It is daunting, I must say. I guess everyone feels that way. BUT it gives you the best chance of beating this disease and being super-shiny and healthy for the future so it’s the only path.

Love to you all,

Sal
xx

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