HER2+ and need some buddies

Hi @carrie5 and @naughty_boob thanks for the welcome. No not a club any of us wanted to join. But so glad to have you all in my corner as I will be too. Session no 2 for me on Thursday. Let’s get this done x

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Hi all

Just wanted to say hi to you newbies and to all the existing friends on here.

Tomorrow is my last chemo (Docetaxel no 3) and 3rd Herceptin (few more of those to do!). Also having my picc line removed hoorah!

My sister in law has sent me a t shirt to wear with “chemo queen” on the front in bright pink writing! Might wear something over the top and then wear it for a ring the bell picture. I think I will feel a bit of a Wally but it will make her day to have that picture and she has been a fantastic support every day since my diagnosis. My brother (her husband) died of cancer 5 years ago (totally unrelated as I am adopted) so it is very hard for her to relive all the chemo stuff even long distance so I will indeed wear it!!

What a combo though with cold cap (yes I have stuck it out for all the rounds :grimacing:) and compression socks. I will look like a horror!

Anyway, rambling on. Still have a sweep up op and radio to consider but so glad chemo will be done with, albeit with side effects for the next couple of weeks, this time tomorrow and I will be moving forward.

Hope you have all had some nice times this bank holiday, and if you haven’t then keep the faith. As all these ladies say the good times will come again.

Sending love

Liz (aka Hoggie) xx

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Well done you @hoggie . I think a picture of that ensemble would be great!

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Hello all, i went for my bloods today, before my appointment for picc line removal and phesgo (no more chemo):partying_face: on Wednesday. They offered to remove my picc line there and then today! It’s gone! I have my arm back! Another step completed!

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@emma-jayne welcome to the club nobody wants to join! You’ll find lots of support here, best wishes for your journey!

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Hi @carrie5

I will share a pic and then you have to share your marshmallow hair which I am very excited to see the results of. My girls keep saying I look like Robbie Williams. Can you see the resemblance?



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Also can you tell that u I have had 8 steroids today :rofl::rofl: I must add two asleeping tablets tonight also but not doing much at present. Feel wide awake

Xx

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I’m having a lumpectomy on 8th September, I thought it would be a good idea to get a pillow to help not roll over in bed. Any suggestions which pillow to buy? There are a few online but some don’t seem very suitable!

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@sassy3 I hav found the picc line very useful and have had no actual trouble but it has been a “thing” since April and it is an outward sign to others that we are having therapy. I will be glad to have it gone.

Enjoy your arm freedom. Did they suggest any precautions when it first goes?

Xxx

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@sassy I just a small rectangular pillow cushion we already had on our bed. It worked great. Xx

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@hoggie I was told to treat it like picc line was still there until tomorrow, then basically I can do what I like! I’ve just got a little dressing and was told to keep it dry for about 3 days, when it comes off keep the area clean. I too was so glad i had my picc line, so much better than canula’s.

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@hoggie I think you win hands down over Robbie!

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If anyone about to start radiotherapy would like a tube of Flamigel R. I have a well in date unopened spare I’d be happy to post out. I was able to get my insurance to fund my radiotherapy privately much nearer home. They gave me a tube but I’d already bought one and I won’t need it. Don’t think nhs give it out but I think its probably one of the best things to protect the skin.

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@carrie. I will have it but I will pay you for it. Will private xx message you my address and you can tell me where to transfer £££ xx

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Great @hoggie Don’t want anything for it, a little donation to BCN would be plenty if ok with you.

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Of course. Will do that. How lovely. Xx

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Morning Ladies,

A lot to read through from when I last looked at the thread!!

I underwent my SMX on the 14th of August,Am due to have my drains out tomorrow!-Which I cannot wait for,They have become the bane of my life!:rofl:

I really had a hard time emotion wise after coming round-Think I cried for about 3hours!!!which was not helped by some umhelpful comments by 2 of the Nurses!
And it took me about 2 hours to look under my hospital gown!
But I have been fine since,Am managing well and am looking at myself in the mirror a few times a day to get used to how things are and find that is helping.

Am then due to see the Surgeon on the 3rd of Sept for my path results and will know the plan moving forward,I am really hopeful that it will be just the phesgo injections as planned and I wont have to have radiotherapy or Kadcyla,But I guess we will see,
Sending Love and Positive thoughts :sparkling_heart:

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@rainbowbrite10 ‘****’ expletives about the nurses you encountered.
MX is huge change to take on board so well done. :crossed_fingers:for your results.

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You would think given the nature of the surgeries they do they would possibly have a little more compassion for people!
But alas this was not the case!
I was asked by one Nurse why I was crying and what was the matter…
And then another said “You seem quite emotional are you ok?”-when I said I just felt a bit overwhelmed and it was a lot to take in the reply was- “Yes,But it’s just life!”…Made my blood boil!,And then made me cry more out of sheer anger!!!:face_with_symbols_over_mouth:

I actually work for the same trust that I have my treatment at,Am have been wondering if I should contact the Matron and give some ‘constructive critisim’ :rofl:

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Hy all today i celebrate my 60th :birthday: birthday, this time last year i didnt enjoy my birthday as i had just been diagnosed with breast cancer, moving a year forward im loving life going out with friends and family and enjoying myself this year, never thought i could be happy again. Life does get better and you can get back to a new normal. Have only 8 kadcyla left to go. Welcome all new buddies and sorry to hear that you have joined but you will get through this and remember its good to talk and visit Maggies centre if you have one near you they have a workshops and support groups brilliant bunch x

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@hoggie If you’re going to make a donation to BCN, you can make it through my just giving page so I can hit my fundraising goal… :wink:

@rainbowbrite10 hope you’ll get good pathology results :crossed_fingers:It was so nice when my drains came out, I felt like I could really start to heal from then on.

I had my heart scan today, they didn’t seem immediately concerned about anything so that’s always a plus! I thought I would have so much more time on my hands now since I’m done with Kadcyla but I feel like I have more appointments just to make sure everything is ok and get my port out and everything.

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