Here we go again?

Public Archive
1

So glad to have found this site and can see that you are all amazingly supportive of each other.

Here’s my story (more info in my profile).

My first BC DX was 10 years ago (to the day nearly!) I was looking forward to celebrating this milestone but unfortunately this will have to wait until I get the results back from two fine (or not so fine!) needle biopsies I had this morning. Might just have a few drinks tonight anyway :wink:

The weird thing is that one of the lumps is in between muscles used for the reconstruction, the other one is a bit higher up.

It was a real flashback to ten years ago including the moment when the consultant said that they were quite concerned. Let’s just hope these are bits of fatty gristle…

Will keep you posted and big hugs to all of you at whatever stage of your journey you are.
xxxxx

2

So sorry to see you had to come back Sweetanimo. I had my 2nd primary 7 years after my first and I am just coming to the end of my treatment (see my profile). Somehow it’s not quite so bad 2nd time around, once I knew the treatment plan. But it is so unfair to have to go through it twice, although having beaten it once I feel (most of the time !!) I can beat it again.
I wish you all the best
Maria x
PS I could not find anything on your profile

3

Really sorry to hear that you have to face this waiting game again! Hopefully the results won’t take too long, what a shock this must be for you. I never realized they don’t check the ld flap during the check ups. Thinking of you. Tina

4

The waiting for results is horrible, hope your news is good.

I had bc for the first time 25 years ago and was fine for 20 years, have had 3 recurrences since. I had LD reconstruction 5 years ago, and had op 5 weeks ago to remove cancer from near my breast bone at top of recon, fortunately they did’nt have to take it away.

Take care and good luck.

Jan

5

Goodness Jan, your story is frightening, so we are not safe even after 20 years.
I do hope you are recovering well
Maria X

6

pink hugs ladies xxx.
keep postive, and your all amazing. its tuff first time round x

7

Playing the waiting game is awful and hasn’t changed at all. I hope you get good news at the end of it.

This is a bit spooky… I was DX 10 years ago and have just had a recurrence. The lump / bulge was in the muscle of my reconstruction. (LD flap) in my lower armpit. I’ve just (oct) had the reconstruction taken off.

I think i’m still in shock and know just how you feel.

Take care
Minny

8

Thanks Minny!
I did reply to one of your old posts as I too found this quite spooky :wink: and it looks like it’s something that is becoming more common.

Also very disappointed that no routine ultrasound checks were made as I had a small recurrence in the same breast (just under the skin)three years after the reconstruction. I will be insisting on this from now on!

Let’s stay in touch. Phoned the hospital today as the Consultant never phoned me yesterday - have been promised phone call today - fingers crossed - just want to know next steps…

Take care,
Anne Marie
x

9

Thanks Maria and Poppy and of course Tina!!
for your good wishes. Will keep you posted.
Anne Marie
x

10

Hi there, just checked my paperwork, it took three working days for my FNA results, they were inconclusive and I had a core biopsy after, those results came within 48 hours. Overall it was 8 days from first consultant app to diagnosis. The waiting is awful. Hope the consultant calls back before the weekend. I was lucky, the BCN kept me informed all the way. X Tina

11

Hi Tina,
Consultant phoned me this afternoon. Will be seeing him for results on Monday at 8.20am so just need to get through the weekend now. Lots of DVDs, copious amounts of red wine and book reading!

xx

12

A weekend is a long long time when you are waiting for results. Sending you a big hug & hurry up Monday! X

13

Not long for you to wait now, at least your appointment is nice and early, no time for clinic to be running late. When I had to go for my results a few weeks ago I sat waiting in a busy waiting room for at least 1 1/2 hours I turned into a nervous wreck. I think its wrong to keep you waiting for so long for something like that.

Good luck.

Jan

14

Please help me girls…had BC 2007 with mastectomy/chemo but last few days have had uncomfortable feeling in other breast. It feels sore inside behind the nipple. Has anyone else had this with 2nd primary? I’m terrified. Rang onc secretary for earlier review but asked to see GP instead.Weekend of worry…

15

Dear Malan,

I hope you manage to get an early appointment with your GP.

Don’t forget you can give our Helpline a call just to talk things over. They are open from 9.00am-2.00pm tomorrow.

Take care.

Very best wishes

Janet
BCC Facilitator

16

Thank you Janet.I may try that.I haven’t said anything to my family. I may be over reacting…I hope so anyway.

Malan

17

I’ve just read your post and am thinking about you! Please let us know how you go on at yr appt.

Take care n big hugs xxx

18

Thanks Shelley and Janet. Will keep you posted. Another 24 hrs to go… Am painting bedroom to keep busy-OH is happy!
Xxx

19

??? xxx

Minny

20

Unfortunately results were not good, both lumps were malignant. Need to go for CT scan next and then lump removal op in a couple of weeks time. CT scan will determine if it’s local recurrence only which is what we’re hoping for.

I gave consultant a bit of a hard time re u/s follow up but he gave the usual response of ‘it’s very rare to have recurrence in recon breast’ - I’ve had it twice now so not that rare …

My mum and daughter are on their way to me - so lucky to have them and you girls as support.

Will keep you posted.
hugs
xxx