Hi not sure how to use this forum yet , i have had surgery in november and started adjuvent chemo i have had 3 cycles so far of Ec and then 4 pac , it would be good to connect with more people going through the same plan as me as i am getting very nervous about the next rounds of treatment . Wondered how everyone is finding it so far ?
2 Likes
Hi @cazgib10
Welcome to the forums. I agree that the number of different posting options can be confusing at first.
There is a thread for people that started having chemotherapy in March. March 2026 chemo starters You should be able to find some people there on the same chemotherapy plan as you.
1 Like
Hi I can see the thread but as yet i have no idea how to actually join it or post anything ?
Hi 
I’m on the same plan as you! Started late March and due my 3rd infusion this week. I’m not sure exactly how these forums work, new to this, and might not be on them often, but definitely good to connect with others in the same boat as us! I’ve been a lurker and can see what a wonderful community there is here. Hope it’s going well for you so far. 
1 Like
Hi @cazgib10 I’ve completed 3 of EC (I’m currently day 7) I have 4 paclitaxel after this. Also nervous about the change.
I’m trying not to think too far ahead though. 1 more EC to go and I can not wait to be half way though!
Below is the link for people who started chemotherapy in March. I think all you have to do is click on it and reply to a post there and you will start getting notifications for it.
Thankyou for replying yes, its difficult trying to navigate all the chats on here , thankyou for replying . I had my 3rd EC on Friday , sadly this time i had quite bad sickness shortly after the infusion. This hadnt happened before but i think it was the taste of the drug that got me this time i just couldnt get rid of it they are going to give me extra anti sickness this time round which hopefully will work . Its a shame as i was doing ok before that . How are u finding Ec?
1 Like
Hi, I started with 4 EC in December and then 4 Pac which I finished 3 weeks ago. I’m starting radiotherapy on Thursday (15rounds) I found the EC hard going but the Pac was gentler for me- no nausea. I did have some joint and muscle pain on day 4,5,6 after chemo. Now that I’m finished I have a bit of neuropathy in my toes but it is totally manageable. The fatigue is a lot at times but I have learned to rest. Hope this helps. Happy to answer any questions. X
2 Likes
Hi I also had the same treatment plan as you and just finished my 4th Paclitaxel today. I found the first 2 rounds of Paclitaxel gave me quite strong bone and joint pains and the paracetamol and ibuprofen the nurses suggested didn’t touch the sides. I even used codeine left over from my operation, covered my legs in hot water bottles and had Epsom salt baths but still no help. Eventually my oncologist prescribed liquid morphine and I took the painkillers before the pain in line with a time plan (chat gpt helped me make it!) and this was a game changer. So I recommend that - preventative painkiller useage and push for stronger painkillers if you need them. Good luck you’re getting there and it feels good getting through it! Xx
2 Likes
It is very reassuring to hear people’s experiences on the 4 rounds of pacs thank you all 
I have 1 more EC to go so it’s definitely on my mind that there will be changes and challenges that ive not had so far.
Just wondering did you have to continue the filgrastim injections during pacs? I have these for 5 days after EC and would be overjoyed if I didnt need them for the last 4 rounds. They haven’t caused me bone pain I just absolutely hate them
Also was you told the reason for for bone/joint pain during pacs?
Hi @foxgem yes I still had the injections on Pac.. I too was hoping I didn’t need them, also had the awful bone pain mentioned I got prescribed codeine which helped as over the counter pain relief didn’t touch it, but not everyone gets the pain as bad as I did it was all manageable once I had codeine x
1 Like