Hi looking to connect with more people on 4Ec and 4 pac i started in march 2026

Im glad you are speaking to a BC Nurse today @cazgib10 . :heart:. But make sure you touch base with Oncologist as well. They are the ones who would know definitely if a treatment was unsafe. Even if initially it is just over the phone.

Loads of people are anxious during treatment. Some faint. For many (me included), its a really stressful process. So that shouldn’t be a reason to cancel treatment altogether.

Treatment plans get changed all the time, depending on how people react to side effects. My Oncologist asked if I wanted my dose reduced this week, due to garbage side effects last week. So nothing is written in stone.

I can completely understand how vulnerable you must be feeling though :heart:. But my Oncologist said “I need to do what you feel happy with. This is your choice”. So hold on to the fact you do have a voice nowadays.

Chemo is one part of numerous treatments. Sometimes people have a break from chemo altogether, then start again later down the line. In the past they were less likely to alter treatments. Nowadays they serm far more willing to work with us. Assess, review, adapt.

But be as informed as you can be. Its OK to ask questions. Its definitely OK to be an equal partner in your treatment plan. :heart::bouquet::people_hugging::flexed_biceps:

Sending you strength and love. :flexed_biceps::people_hugging::bouquet::heart:

2 Likes

May be worth reading this @cazgib10 . :heart::heart::heart::bouquet::bouquet::bouquet::people_hugging::people_hugging::people_hugging:

2 Likes

6 rounds is a fairly normal regime so I think knowing id done 6 would put me at ease a little.

Chemotherapy is just 1 part of our treatment plans and you will have other things next that will be protecting you long term. Radiotherapy maybe. Hormone therapy. And we will all be given regular screening going forward. I often fall down a deep worry hole of what ifs but I think its good to remember we are on their radar. We wont ever be left wondering or leaving something to grow out of control now. They will be on it! I hope you get a few answers from the BC team that can help put you at ease. And when you feel up for it we can start congratulating you on finishing chemotherapy! Even with a reduction you have done extremely well to get this far. Not everyone can :heart:

2 Likes

So sorry to hear this @cazgib10 - it’s so confusing and already on top of all the disruptions you’ve already had. :cry: They’re likely weighing up the risk of your neuropathy getting worse or even long term, so perhaps they will try a different drug once things have settled. You don’t want to be left with serious pain because of this treatment, but at the same time you want the treatment to get the best outcome possible. It’s a tricky balance. I agree with the others about seeing your oncologist to have it explained, and hope the chat with the BCN was reassuring. Sending hugs :hugs: and hope you get some answers soon. :heart:

@misty george thankyou they said they were gping straight to radio therapy becaise the neiropathy had started to go up my arms , i dont know if they are planning a different one because they said they were going straight to radiotherapy when i spoke to them , I feel a bit difflated i know i was worried about finishing 8 cycles but Im worried I havent given myself the best chance

1 Like

You had absolutely no say in how your body was going to react to the chemotherapy. So how could it be you that’s not given yourself the best chance? You had no say in it @cazgib10 That’s like someone with a peanut allergy blaming themselves for being allergic to peanuts!

Give yourself the biggest hug for getting through what you have! X

2 Likes

I echo @foxgem and @m1sty.george comments @cazgib10 . :heart::bouquet::bouquet::bouquet::sunflower:.

We have no control over how our body reacts to drugs. Neuropathy going up your arm is not good.

But we can avoid things that make things worse. :heart::heart::heart::bouquet::sunflower:Your Team are looking after you in the best way they can.

You still have the other treatments, and as everyone says, the Oncology Teams have you on their radar now, so will be constantly monitoring you closely for months/years to come. Hold onto that. :people_hugging:

And yes, give yourself and your lovely son a huge hug, for getting through all this. You deserve a break from all the side effects, and a safer course of action.

Sending you virtual hugs, love, strength :people_hugging::heart::flexed_biceps::heart_exclamation:

3 Likes

Thankyou @poppy261 and @foxgem i honestly dont know what to think i thought Id be confident in thinking it might be ok if they are going to stop it and not me but maybe I should have fought a bit harder with their decision they certainly didnt try harder To change anything , I think i would have driven myself mad thinking about this wether I would have been ok and got through it despite the neuropathy. I guess i wont know Til i have that mammogram . Xx Radiotherapy is in 3 weeks .

2 Likes

I think reading other Posts, lots of ladies worry about treatment plans being changed @cazgib10 . You are not on your own with that one. :heart:.

Im glad Radiotherapy is happening so quickly. Some ladies have had to wait 12 weeks, so your Team are acting swiftly.

Neuropathy is a difficult one. I guess Oncologists have seen hundreds of ladies with cancer so know how neuropathy can affect different people. :heart: It can have life long implications.

I completely understand how you feel though. But our minds can get the better of us with “what ifs”. Id see how the Radiotherapy goes, then see where the cancer is at. They have lots of other treatments to use, plus you were near to the end of your treatment, so I doubt missing some of it will make a huge difference. You got through all the EC and that is suppose to be the worst. So you have done incredibly well. Hold on to that. Xxxx :heart::heart::heart::people_hugging::bouquet::bouquet::flexed_biceps:

1 Like

Well done @m1sty.george for reaching the end of your chemo. :heart::woman_dancing::bouquet:.

One hurdle out of the way​:smiling_face_with_three_hearts:.

Hoping your Radiotherapy is a lot easier, and yes, other treatment after that. (Your path seems similar to mine) So still challenges to face, but I do think chemo is a tough one.

Hope these next couple of weeks are kind to you. :heart::heart::heart::bouquet::bouquet::bouquet::sunflower:

2 Likes

Thank you @poppy261! :smiling_face_with_three_hearts: One hurdle at a time, eh! I’ve been feeling so knackered after this last one, it’ll take a while to climb back, but each day is a day further away where I don’t have to do it again. :smiling_face: You will get there too. :flexed_biceps::hugs: Do you start your Pac soon? That halfway point is worth celebrating. :heart::heart::heart:

Completely understand that @m1sty.george . :heart: It takes a while for side effects, and general impact of chemo to subside. :heart::flexed_biceps::nauseated_face::bouquet:

Its a tough ride isnt it, with lots of other treatments to follow. So sending you strength and love for your next phase. :heart::flexed_biceps::bouquet:

Ive had last EC. Goodness how glad I am about that. :nauseated_face: Cumulative side effects hit me hard with last 2 cycles. Hoping Pac is easier. :flexed_biceps::heart::person_in_lotus_position:

You take care. :people_hugging::heart:

2 Likes

I have been on the 4 ec and 4 pax since 1st April. Like someone else said the second 2 rounds of ec make me pretty sick. I’ve now had 3 rounds of the paclitaxel and have found it much easier to deal with. Just the horrible aches and pains for a few days and then feel quite energetic. 1 round to go then I get a month off before dmx with reconstruction followed by radiotherapy. One mountain at a time. We can do it!

2 Likes

Thats good to know @corriem . :heart: Thanks for sharing. :folded_hands:

Theres been mixed experiences with Pac.. I start my first of 4, on Friday. Im so exhausted with the side effects of EC I wondered if Id have the energy to push through Pac if it created more side effects. :nauseated_face:

I found the operation so much easier to cope with. Xxx

2 Likes

@poppy261 thank you :people_hugging::smiling_face_with_three_hearts: and well done getting those ECs behind you - it’s a real milestone and, looking back, was definitely the worst of the two phases for me, even with the hand/skin issues on Pac. You’re well prepared for the Pac with your emollients, and I’m really hoping it will prove an easier ride for you, as it has for @corriem and me. My energy recovered much better between Pac cycles and it’s only now I’ve finished that it’s catching up with me! :sleeping_face::woozy_face: Be gentle with yourself and as @corriem says - we can do it!! :flexed_biceps::hugs::heart::star_struck: Sending you all the best for your first pac and let us know how you get on. Xx

1 Like

Thanks so much @m1sty.george . :heart:. Your experiences are invaluable.

Fingers crossed Pac is easier. :crossed_fingers::crossed_fingers:There seems to be hope.

And yes, we certainly need to be kind to ourselves. Even after chemo. It really does hammer our bodies doesnt it. But if it kills that cancer its worth it….just so long as it doesnt pop us off first :wink::zany_face::smiling_face_with_three_hearts:

Rest up lovely ladies. I love the sharing on this Forum. It makes a grim dark tunnel light again.

:black_circle::white_circle::flashlight::light_bulb::smiling_face_with_three_hearts:

3 Likes