Oh bugger - we were having a winters BBQ tonight, gazebo, lights, fire outside for toasting marshmallows and fireworks. Everyone coming round, including my niece who is going to Australia in 2 days. Just had to cancel as hubby has been sick all morning.
Honestly - can’t I be ill on my own. ???
Can I add my name to the list? ? It’s been 3 weeks today since my ultrasound and biopsy on a 22mm mass in my left breast (following a trial screening mammogram programme for 47-49 year olds) and after asking the consultant radiologist if it was cancer and her replying “yes” I’ve been walking around in a blur - at the same time trying to enjoy Xmas and New Year for my 3 kids ? Torture! I rang last week and got a receptionist who could only tell me my name is on a list for 10th January with all other follow ups following biopsy and will get an appointment letter - I know they are going to say it’s BC - I feel like phoning them and asking for the results but would they tell me anything over the phone?? Is it not a good idea? This limbo is awful and of course your mind plays tricks. My positivity pants weren’t in the drawer this morning but after a walk with my two dogs I feel a bit better and found them in the clean washing basket ? Just need a bit of support at the moment as I feel so new to all this ?
PS I also have a mirena coil in situ (put in 4 years ago for heavy periods) - wondering if I should have it out?
Well I’ve just rang and got through to the screening nurse who didn’t have my follow up appointment on her system (as she only has initial mammogram appointments on her system) but is going to go through to the right department to have a look - she was quite shocked that I had been told at ultrasound it was BC and said the radiologist shouldn’t have said that to me! (suppose I asked though I remember still ?)
* suppose I asked still
Hi guys x
Zena - I think I’m fairly close to you in diagnosis, grade 2 invasive lobular cancer … I wouldn’t worry too much about timescales as I was told I had bc on 28th oct and had my op on 22nd Dec … I also had an MRI scan and it seems to be standard procedure for lobular c …
Silver - I was only stiff after the op for about 4 days, since then I’ve been fine … I haven’t done any arm exercises cos there hasn’t been any stiffness or limited movement. It’s almost like it all didn’t happen now (apart from I definitely know I only have one boob ?) waiting for full results next Tuesday and scared to bloody death for those … I know I’m er + and her2- I think it’s the whole lymph node thing that’s scaring me, I don’t want to have more surgery ?
Your list is amazing … haha … I love it when you come on here and announce where we are all up to …
Waiting to hear from jo and Jane - hope all has gone well today xxx
Wow Susan, you really are the oracle. I have read where everyone is up to and forgotten again already! I have never been good with names at the best of times but can’t keep up at all at the minute.
I got my results today. All clear apart from a benign looking lesion in my liver which will be confirmed with MR at some point but the consultant isn’t worried about it and treatment will commence as planned. I feel weepy with relief as I had convinced myself of the worst. I used to be a CT radiographer and have seen so much pathology over the years that I couldn’t believe that my scan would be normal. Talk about irrational. Oncology appointment next week and hopefully start chemo week after.
Big hugs to Sarah, Ann and Zena whilst you are still playing the waiting game.
Jane, hope your day in Radiology has been ok.
Fantastic that some of you are working. What a string brave lot we are really (although it doesn’t always feel that way!).
Big hugs to Lincoln who is hopefully on the mend.
I know I haven’t remembered everyone as I have brain fuzz but I think you are all wonderful ladies xxx
Hello my lovely ladies,
I’ve just updated the list with all the new details. We could do with it being pinned so we don’t have to go looking for it.
Alex - I’m so sorry hun, I didn’t mean to miss you off. Big hugs to you. I wish I could give you and Zena a proper hug and take your fears away. I was also told by the radiologist at my biopsy that it was cancer and serious. In a way, I’m glad she did now, as by the time I went for my results I had got use to the idea and could ask further questions.
Helena - only 11 to go, it seems to be going down so quickly. Loved the Hello Vera ???
Patricia - You did make me giggle when you said you were rotting for us - I had am image of you standing out in the garden all wet & soggy.
My darling Strudel - you really brighten my day, you and Emily are so funny. I didn’t pick up on the Hello Vera until you pointed it out. I love your googling ???
I have also also found the true meaning of happiness and would recommend it to all you ladies - Abba’s greatest hits blasting out and a few Abba dances on the way to the kettle. I am the ultimate Dancing Queen or was till my knees failed me ???
Hahaha Patricia, I love predictive text, it so much more interesting.
Jo - I missed your comment as I was posting mine at the same time - excellent results, you must feel so relieved.
Sarah - I nearly missed you as well. My stiffness is just under where my boob would have been, it’s like I’m wearing a bra that is a bit too tight. I know how you’re feeling about the results, I just resigned myself that if it was in my lymph nodes, they would take them out. I always try to think of the worse possible senerio and then it could only get better. This worked up till the night before and then I would collapse in a heap of fear and doubt, imagining that they would find it all over my body and as you know, I would come on here and you and the others would comfort me. We will be there for you, ready to catch you. Big bear hugs are now presently coming down the motorway and will surround you with love and comfort.
Thanks girls - just been out for lunch with my husband and his business partner who has prostrate cancer and we did have a laugh - he is on estrogen due to his prostrate cancer being driven by testosterone and said he now likes shopping for handbags with his wife ?? Laughing does help! PS my dog went down a badger set today - had to pull her out but did laugh (again) after reading the badger incident earlier! Good job no one saw me chuckling to myself in woods ---->? Screening department rang me back and said 2.30pm on Tues 10th with consultant breast surgeon for follow up - I sensed she couldn’t wait to get off the phone in case I asked for results!!! Oh well let’s get this plan in place and let’s rock and roll x
Literally laughing out loud at you guys while in the CT queue. Nurse walked past and said “Someone’s happy”. I did feel a bit of an outlier as I think today is the bad pathology queue. I’ll report back later
Ali x
Now to get an extension of my sick note as really still can’t face work - can’t face it at the best of times never mind just at the moment ?
LOL at Ali… visions!
I wonder if “in limbo” would be acceptable to put on my sick note ?
Scotty - what time is your chemo tomorrow? Good luck, I’ll be thinking of you.
Hahaha - Alex it’s so good to laugh. Although I tend to find the most inappropriate things funny and have a very dark humour- I think it’s called graveside humour, I have to rein it in so that I don’t upset anybody. But since I’ve had BC I don’t keep check of it anymore - tough titties if they don’t like it ???
Ali - I hope you’re back soon and not stuck in the queue for too long.
Tough titty in our case Silver ???
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Hello all you lovely ladies,
I have been out of it for a while but following the messages and laughing at some of your posts. I am still struggling with anxiety. I have my second appointment with oncologist on 12th Jan the one I saw on 29th Dec is leaving the Trust ?, so appointment with another oncologist has been made. Waiting for results of CT and bone scans… will get results on 12th Jan.
Strudel, how are you doing? I remember we had our oPs on the same day… thank you so much again to all you ladies who sent me encouraging messages of support recently. I will try to keep up with you ladies but with my jelly brain its difficult… hugs to all… xx
I would never avoid the thread! I’m not sure I could keep up if I missed a few days. I too was told I had cancer after mammogram and Scan. I cried in the poor radiographer for at least an hour whilst cross examining her on what would happen to me!! If it wasn’t so tragic I think it would have made a funny sketch on a comedy show.
I was also told to take out my Minerva Coil after they found out I was ER+. Had my first period in 8 years last week but due to chemo it only lasted a day so not so bad.
Anyways I have a tale to make you all laugh. The other day I was having an enjoyable morning with my youngest whilst my eldest was out at a party and hubby at work. I completely forgot that we had made an appointment to have a small piece of carpet replaced. Carpet man rings the doorbell and I’m frantically running around the house looking for the front door keys whilst shouting for him not to leave. I couldn’t find said keys so grabbed my wig and had to let him in through the garage as they were nowhere to be seen. Anyway after apologising profusely for being in my pjamas still and having to let him in via the garage I went back downstairs to make carpet man a cuppa. At which point my youngest came in saying ‘Mommy what have you done to your hair?’ I thought she was just asking why I was wearing the wig but when i eventually made it to the bathroom I realised I had put the wig on completely the wrong way round ???. Needless to say Carpetman finished the job in world class speed!!!
Cancer is crap but it can’t break out sense of humour!!
Silver
9:00 for me. Good to get going early I reckon. Feeling surprisingly calm at the mo x
Susan - that’s a brilliant list of where we all are. Glad Lincolns responding to treatment now.
Great news from you Pam.
Hope your day has been ok Em.
Good news from your scan Jo - hope your anxiety has lessened a bit today.
Helena - been told to get E45 and Hello Vera too!!
Ive had my ct scans in preparation for radiotherapy starting on 16th January for 4 weeks. I’m proud of my first tattoos at 56 years old!! Although the one inbetween my breasts looks like an inflamed blackhead at the moment!
I dont know why but I’m struggling with anxiety big time this week, part of me thinks I should be really happy that I didn’t need chemotherapy, but I’m now worrying about the whats if something has been missed. Especially when everyone seems to be oncotype tested and my oncologist said it wasn’t needed, even though my insurance company were happy to pay for it. I’m back to wanting to curl up in a ball in bed. Will one of you come and give me a shake and tell me to pull myself together. There’s no way I could do my job at the moment - can’t deal with my own emotional needs let alone deal with the needs of others.
Jane x