Morning all… 1st no drain ?
Second I’m still in! As stru said, i was off my head and they wouldn’t let me out lol! Every time I stood up the room Span and I was sick! Hope to go home soon. Not too sore, very numb under my arm though. It’s weird and I managed to roll on my tit inthe night so I’m leaking lol!
Hope everyone is ok, I’ll read properly later xxxxx
Hi Emily - lovely to hear from you.
No drain - excellent news.
I’m still so exhausted- I just keep sleeping, my pit started hurting last night but I shoved my heart pillow underneath & it really worked. I’m still on codiene & that makes me dizzy. Waiting for the district nurse to come to take off my pressure bandage as I was bleeding & my globin levels were low.
I’m more mobile than I thought I would be & have full use of my arm.
I have been reading your posts but then I fall asleep.
The tissue glue was a trial & there was just me & another lady that got it - all the ladies the next day who had mx had drains, so I was really lucky.
I hope everyone is ok & I’m sorry I’m no use to you at the moment.
Have s good day lovely ladies.
Glad to see you’re back with us Emily - I was glad to stay in overnight - I wasn’t sick but did have painkiller issues! Make sure you have a pillow in the car to protect yourself from the seatbelt.
strudel - glad you’re more comfortable. I bought one of the heart shaped pillows from Jen’s Friends, the charity that donates them to some hospitals, and found it really comfortable as just kept my arm away from my wound.
Silverlady Susan - hope you had a comfortable night - I was looking forward to the pressure dressing removal, but for some reason I missed it!!!
will update you re my pathology results later.
Jane x
Hiiii Emily - lovely to hear from you and look forward to more posts later xx
Jane - I took the tip from you and I ordered a jens friends pillow … good luck for today and fingers crossed xx
Silver - sleep lots … it’s the best medicine so they say … lol xx
Strudel - hope you had a comfortable night xx
Emma - yessss 6 more sleeps!!! Haha xx
Well I’ve had my pathology report - started off very positive, tumour removed with clear margins and lymph nodes clear - celebrations all round! Then at the end of the report it said that there were some stray cancer cells on the outside of the node. Surgeon said nothing to worry about, but how can I not worry - so oh and I have had words for the first time in weeks and I’ve gone to bed in tears again. Why is isn’t any thing simple and why can’t good news just be good news, there always seems to be a but in it somewhere. I know I should be happy but I just keep thinking where else are these stray cells. ?
Jane
thank you both - I know it could have been much worse! Unfortunately my BCN is on holiday next week, but hopefully I can discuss it with the oncologist - my sons a dr and has tried to reassure me too but just feel that every stage of my cancer journey has been beset by “this is the good news but …” I did
wonder whether they would suggest the radiotherapy under my arm as well as on my breast to mop up the naughty cells. Just hope my oncology appt comes through quickly - Christmas seems to be slowing everything down.
the good news was the pain and swelling is fluid - she didn’t want to drain it as its quite general rather than a contained seroma. Just back on the painkillers and hopefully my body will reabsorb the fluid over the next few weeks - did wonder whether that’s why I’ve not list any weight despite not eating much? .
Ive also been given a prescription for anastrozole- only problem is because I’ve seen the surgeon privately, it’s a private prescription and therefore expensive. My GP’s receptionist has copied the prescription and I’m hoping that he will be able to do an NHS prescription - it seems silly to have to pay now I’m eligible for free prescriptions! One of the only perks of this horrible disease.
Hi Jane - sending huge big bear hugs. I would be happy with your results, in fact I pretty much expect the same as you.
When I was waiting for my mx there was a lady with your results, who now 6 years later is finishing off her reconstruction. She was given the choice as to whether to have her lymph nodes removed or have chemo - she chose chemo & they zapped those pesky little suckers & she has been clear ever since.
I have been thinking what if they don’t offer me chemo- how do I know everything has been zapped. All these thoughts that go round & round.
What’s floored me today is that the codiene & paracetamol are too much for my stomach - I have been is so much pain today, I’m just waiting for it to ease off. So. Ow I haven’t had any painkillers since 7.30am. My dressing is wet with clear fluid, I have 2 huge hemotas (can’t remember how to spell it) & the nurse didn’t turn up today.
I am still so damn tired & I want a shower.
Oops went off on one then - Jane, we will all do this together with you.
I also slept sitting up on the sofa last night - didn’t even bother closing the curtains - milkman must have got a fright this morning.
Em - you stay nice & bossy, it’s just what we needed.
Ladybowler- thank you for your lovely words, they really are appreciated.
Sallyann - not long now - I will be getting my results on your op day. Ask away if you want to know anything.
Strudel - I’ve lost a lot of my long posts, really bugs me. Thanks for your thoughts & support.
Emily - hope you’re ok?
Mysti- how are you, come & talk to us.
Hugs to everyone
Pam - how are you doing?
I go to feel my lump and then remember it’s not there any longer - it’s a strange feeling.
I’m not having a reconstruction - I just don’t see the need for one, I just want to get off this merry go round as soon as possible. When I put my bra on with the foam booby, you couldn’t tell at all & I get my synthetic one next week.
The strange thing is, I’m not bothered whether I wear it or not - I don’t care if I’ve only got one boob, and I’m really not bothered what anyone else thinks - I’ve got a few scars, but I’m coming out fighting & I’m proud of myself no matter what I look like.
Silver - I am so impressed with your attitude to your missing boob … I feel exactly the same and hope I still feel the same after the op …
So … 5 more sleeps … lol
How long was the op Silver?
Did you go on to a ward to bed after the op?
I know you stayed in hospital but do you think you would have been ok to come home if you had felt up to it?
Did you start arm exercises the day after the op?
Hope you do t mind all the questions xx
Hi ladies’
How is everyone?
Emily - how are you doing?
I’m getting rid of my cold thank god…still struggling lifting my arm above my head a lot…got physio again next friday…bruising going down a bit…A few bits of the wound are a bit lumpy…looking forward to tuesday hopefully I’ll find out if chemo is needed or just radiotherapy
Hi everybody, how are we all?
Firstly, thanks so much Silver for all the info, I didn’t realise the op was done in such a short time … it’s quick!!
I have had a lovely day, all my children and partners and children came with a big box of goodies for me … new pj’s and dressing gown, chocolate, pamper kit and nice smellies etc … I love them all …
Emily - how are you doing?
Strudel - I think you did right putting the phone down on your friend … we all have enough to deal with without negative people also xx
Pam - glad to hear you’re feeling better xx
Mysti - where are you? Come and chat to us. Whereabouts are you up to now? We think about you xx
Everybody else - hope you are ok xx
Sarah xxxx
Hi Emily, glad you’re doing ok. I know what you mean about cabin fever, I’m gonna work from home tomorrow- I can’t cope doing nothing.
Had to phone for the District Nurse today, as still no visit & I was getting concerned with my dressing - I just didn’t want an infection as I am doing ok. Turned out I wasn’t in the system & no visit was planned. Anyway she came out & my wound is healed & now just has a plaster just near the chest wall.
I washed my hair & had half a shower- I feel really good.
I wasn’t worried about my results on Thursday & am prepared to go in again if it turns out I have node involvement, but I will be disappointed as I have recovered so well with the full use of my arm - although I am still sleeping sitting up on the sofa.
I wish they would have tested the nodes at the time they took it out like you Emily, but they told me that it had to be sent away to be looked at under the microscope.
Good luck for tomorrow Strudel.
Jane, Em, Helena, Sarah, Mysti- are you ok?
Apologies if I’ve missed anyone.
Pam - good luck on your treatment plan - glad you’re feeling a bit better. I’ve got my appointment on Thursday with the physio.
Hi,
Jane, my op is on Thursday and I’m getting quite anxious now - waking up at 3am and not getting back to sleep ?
Helena - hope all goes well for you this week xx
Strudel - fingers crossed for you today xx
Emily - sounds like you are doing really good… get some fresh air today and I’m sure cabin fever will disappear a bit xx
Pam, mysti, Emma - hope you are ok xx
Hi Strudel - big hugs for today, I am keeping everything crossed for you. Only a few hours more and this horrible wait will be over.
I know that come Wednesday, I will be the same as you, so anxious about what the results will be on Thursday. I ask myself ‘why’, as I know that it will get treated - but I so want them to say that there isn’t anything in the nodes.
I’ve coped, I think, by ignoring what I’ve got and only now and again do I remember that this is me, not somebody else.
Today, I am sitting at my home computer doing the wages for the lads with my heart cushion under my arm and no bra on. (good reason not to go into work - lol).
I still can’t believe this is happening - I must be in denial.
Sarah - how are you doing?
Jane - I hope you are o.k. - sending you huge big hugs.
Emily - good to hear from you, you’ll be able to tell when I use my phone, there’s normally spelling mistakes & the predictive text changes things just as I post and then I can’t edit or delete it from my phone.
Helena - you are an inspiration to us all. Brilliant that you are starting your final treatment - I so wish I was there with you. You need to put a huge, circle round 19 January, as this is my birthday and I will be 50.
Pam - good luck for tomorrow - I will be thinking about you, I hope everything goes o.k.
Have a good day ladies and I will be thinking of you all.
Thank you Helena - your comments always have a lovely calming effect.
Jane x
Ooh strudel, that is amazing news!! You must be so happy xx