Hi Clare
Cold and frosty here too in Northants and I’m just about to clear the grate of last nights fire. A day in front of a cosy fire on a Sunday sounds perfect!
Just wanted to echo RevCat’s comments that it is lovely to read your thoughts here.
Have a calm and comfortable day.
Laurie x
Frosty here as well 
It is so lovely to read your thoughts and what’s currently going on in your life Clare. As Revcat has said I hope it is not a chore, more of a place to sound your thoughts out - maybe when you can’t say them to the ones you love? I’m glad that yesterdays visit went so well and you got a good night’s sleep. The world feels better when you’re not so tired. Hoping you have the energy for a quick walk today - especially as it sounds like it’s crisp and clear - then relax by that fire 
Nicky xx
ps loved the poem as well, brought tears to my eyes.
Ditto. I feel privileged to be able to share things with you, and it gives us the chance to send you our love.
It’s so good that the visit went well. I’m sure your kids will be grateful that you’re putting in the effort.
PJ day in front of the fire with a brief interlude for a gentle stroll sounds perfect for a crisp Sunday. Enjoy!
CM
x
Hi Clare,
Have been following your thread and just had to say that I truly feel that it is a honour to read your posts, so thank you Clare for sharing and I wish you the very best of everything xx
Hi Clare,
Just wanted to send you love and special thoughts.
Dotty2 xx
Thank you, Clare, for showing us how it can be
Love from Lavender
xxx
Hello Clare,
I have just read this thread from the beginning and like the others I just wanted to say “thank you” for sharing your thoughts and feelings with us. It certainly puts my moans and grumps into perspective for me. I hope you had a lovely day which went exactly as planned and brought you happiness. Lots of love, Mo xx
Hi Clare,
Not alot to add but as aevery-one is so lovely to share your thinking and does put my problems firmly into prospective.
Keep positive and looking forward as much as is possible.
Love
Rosie xxxxxxxxxxxxx
Hugs & love from me too.xxx
And from me!! You are a main reason I check the forum each day!!
You are never far from my thoughts and always in my prayers!
Hope you had a lovely sunday!
Marina xx
Hi Clare,
Thank you for sharing your thoughts and that beautiful poem. Love to you,
Sarah x
thank you for the beautiful poem Clare - I hope today was a good day for you.
You are in my thoughts all the time xxxx
Hello Clare,
I have just read this topic from beginning to end, and I am humbled. You are amazing and your sense of peace is catching. Thinking of you and sending you lots of love and hugs.
Liz xxxx
Hi again,
Its lovely of you all to respond in the way you have, its me who is humbled.
I did go for my walk with my daughter :o)We took the dog out, she’s a springer spanial called Cassie ( she was my present when I finished Rads nearly 10 yrs ago) My job was as a gardener, (I love being outdoors) so I took her everywhere with me, my constant company, she knows all my secrets :o) I’m trying to get her to obey my daughter lol an uphill struggle!
My daughter is at such an awkward age, she will be 14 in April. She’s very quiet (unlike her mother lol) but she’s very astute, sums people up and then when she’s comfortable is really very outgoing. She is my constant worry, as is my son. He’s 18, 19 on the 4th feb(thats one of my milestones)He is very like me, quite outgoing, sensitive though. He is a real ‘mummies boy’ :o) They have both been really been strong this past year and I’m so very proud of them. I really would like them both to speak with someone, to help them through this time but both have said not, mayb in the future, perhaps.
I sat and vegged, watched a very odd film called Handfull of dust but them followed it up with Calender girls, which was great fun, my daughter luved the ‘buns’ ref lol :o)
All this rest though has done me good. I took only 40mg morphine this morning and feel less’fuzzzy’ so apart from tomorrow which is blood transfusion day :o) I will have more dvds day’s i think as I was more myself today than I have been.my hemoglobin is around 7.8 so i’m sure the blood will boost my energy too. (a big thank you to whoever it is)
I am aware that this post is getting bigger, it makes me feel a little uncomfortable, I suppose a bit like attention seeking,it wasn’t really what I wanted although i am not sure i suppose what response I would get.( although nothing but compassion and empathy, I should have guessed) Maybe I will just take a rest and give you a break too lol, I could get addicted :o) I just don’t want to take advantage.
Clare xxx
Clare
Since being diagnosed with BC, I have come to realise how important it is to be able to come to a place where I can vent frustrations, ask for advice or just to be heard and acknowledged by others who I don’t have to explain myself to because they know - they just get it.
Perhaps what you are writing and how often you are writing it is not what you set out to do but I hope that the responses you have had have reassured you that people care, are interested in what you have to say and appreciate what you are doing.
Kids will always be a worry won’t they, whether they are 4 or 44 but it sounds like you have done a great job with your two fine young people.
I hope you have a bit more energy after your transfusion and hope to be reading more from you in the days to come (so no pressure there LOL!)
Laurie xxx
Hi Clare, you are SO NOT attention seeking, so go and chuck that idea in the guilt lake over at ‘benchland’.
So long as you feel you want to post, and feel in charge of when and what, then that’s all to the good.
It’s great to be reminded of the beauty of ordinariness - a DVD, a walk, a meal, even an anxiety. Your children must be really proud of their Mum who clearly loves them dearly.
This is your little space on this forum… you use it how you want. And thank you again for allowing us into your world.
<hug> and prayers/vibes</hug>
Clare - dont you dare stop blogging - you are the reason I check the forums every day - your posts are so wonderful and chatty. Since my diagnosis I understand the importance of ordinaryness and how much enjoyment there is in the little things. My daughter and I took her dog for a walk in the woods yesterday - in the past it has been a bit of a pain, especially in the cold. But yesterday I just relished every single moment of it, from laughing at her very energetic labrador, to just enjoying the crispness of the winter air.
hope today brings you some little pleasures - and please keep writing
kaj
xxxx
awww Clare I think some of us might say we are addicted too (and blame you LOL). I think we are wonderfully privileged to have someone share with us what she has been told could be her last days. You have helped a lot of us with 2ndaries, I am sure, to come to terms a bit more with how that can feel by your honesty & openness so it’s a thank you from me :). I hope the blood transfusion gives you that bit of extra oomph.
Dawn
xx
…and from me too!! Thank you for sharing your story. It is wonderful and you are wonderful!!
Hugs and hope you found a good DVD today!
Sadie Xx XX
OOOOOOOOOORUMPH is what I got thanks to the blood :O)and a rather embarrasing 1 1/2 hours sleep in a crowded room.
I had had one lot of blood, had lunch then they put up the other bag. I settled down to the paper and before i knew it woke up with all new people in the room having there treatment and a note from Mandi my BCN who had popped into see me lol.
I only had about 3 hours the prievious night so was very tired (thats my excuse anyway) I just hope i didn’t snore or my mouth was open at an awful angle…ho hum!
Had some good news too. My calcium level has been stable at 2.17 since christmas and my Bilirubin (liver count) level has dropped from 48 down to 22 since christmas which I suppose is why I am feeling so much better. The only problem I have really is getting up out of a chair, I really struggle, especially at night but once I’m up I am up. I am eating for england too, which I suppose is the steroids but mainly try and have fruit which helps with the digestion too, I guess.
Thank you for your kind comments,I get the BENCHLAND ref now, just read the posts( don’t know how i missed it, its very funny) I just felt a bit prima donnaish (odd I know) and I really don’t want to come across that way…sorry stopped now.
I’ll try and get some sleep now, relaxed, and non ‘fuzzy’
Night night ( I hope)
Clare xxx