Hi Helena…yes I’m sure it will get easier in time. I had my hair cut tonight and no tears was a result! Xx
I felt like it was too xx
Mamadeacs and Mumgonemad,
You both have the added benefits on here, of the rather lovely Ladybowler or LadyHelena, as I affectionately call her, because as well as bowling, she sits in her tower doing tapestries as well as giving her attention, advice and love to all of youhoo!!
Mumgonemad - have you heard anything yet??? Yeh, can understand you going a bit mad with waiting.
Mamadeacs - Nicki. Awwww, my heart really does go out to you. It’s the most horrible thing to have to do, organise your Mum/Dads funeral, and home and belongings. It’s lovely to hear you say “My Dad would have been proud of my brother and me”. I felt the same, ref my Mum, Dads and bruvs funerals. I shouldn’t worry too much about Xmas, people will understand. BTW - Your hair looks absobloominlutely fabuously gorrgeous, dahrrrling!! I feel a bit weird asking you - how is your boob today??
Much love to all of yers
xxxxxx
Hi Delly, still nothing. I’ve rung consultants secretary & breast nurse & neither have returned my phone calls.
Consultant mentioned end of this month for surgery when saw her on 3rd but not many days left of Nov. I’m actually starting to get angry. Why cant they fix a date & bloody tell me. It cant be that difficult. Bloody nurse is there for support ha fecking ha thats a joke. Anxiety levels up & down & my autistic son wants & needs answers & I can’t give him any. BUT im forcing myself up the forestry with my two fabulous scatty dogs & feel relaxed when I’m up there.
Mamadeacs I think you are doing brilliantly after all you have been through & dealing with. Funerals are hard enough but the sorting of personal stuff really hits home. Love & hugs Nicki you are a lovely strong independent woman & you’ve got this xxxx
Mumgonemad and Delly…thanks…I replied to Delly earlier but gone in the ether somewhere. Everyone has their own personal crisis…that’s for sure. Tonight I was spitting feathers when Victim Support called (end week 5 when told week 3) and told me I needed a good cry. REALLY!!! I apologise now but…
Has she lived in the real world!! I lost the plot talking to a vicars wife. I’m happy for someone to pray for me. It asong as they are happy to acknowledge the prayers are not working!!
Ha Delly…VS got off scotfree, I let out my annoyance to my dear husband after the phone-call. I remember her saying I couldn’t let myself be a victim or the burglars have won!! They already have love, they had my stuff. I’m sure she wasn’t a vicars wife, she just had a monotone voice and I could hear her washing machine spinning in the background.
Strangely I’m looking forward to Thursday to get this show going, the sooner it’s started the sooner it will be finished. It’s all appointments next week, I shall meet myself coming back.
It’s gloriously sunny and frosty today, hope you all have a lovely weekend xx
Thanks ladybowler x
I’m in Wales & isn’t a Pals here but will try find the Welsh alternative.
I don’t wanna piss the surgeon off as she be in charge of what I look like afterwards.
I will be ringing again first thing Monday.
Thanks Helena x
Lin
Mumgonemad…I can’t imagine how you must be feeling, it drags for everyone but it really really has for you. I’ll keep my fingers crossed you have news/decisions soon. Xx
Helena/Delly…because of the people around me I have been able to keep my spirits up so far. I’m sure I will probably have a big wobble over the next few weeks and will lean the ladies here. Xx
Oh WOW I love the idea of perforated tube injecting L.A.
I need to sit back relax and wait as there are ladies worse of than me with later stages etc but a date somewhere in the future how ever far away would ease mine & especially my autistic sons stress/anxiety.
Mamadeacs - Glad to hear you’ve a good support system of people around you to help get you through and give you some extra strength if ever yours is flailing. Hope all your appointments go well this week, especially Thursdays. I’ll be thinking of you.
MgM - Yeh, difficult not knowing, when you’ve your son to consider and dogs to organise. Is there a husband or partner in your life??
Yeh, ref the L.A. It was with the first mastectomy, so was interesting to have it to compare with the second less than a year later. The strong painkillers they give in hospital tend to seriously bung me up, so won’t take unless absolutely necessary and keep to just Para’s. Tho’ I have to say, in comparison, I didn’t find the second mast particularly uncomfortable anyway. Hope you hear soon.
Loadsa Love, Dellywellydingdong xxxxxx
Evening Delly, I phoned Secretary again today & asked her to pass message to miss Dilan ’ please just give me a date for me to work too. My children with special needs ask me wots going on & when & I have no answers for them. I know there are ladies with later stages than me & I understand that. They should be before me BUT give me a date even after xmas if it needs to be then but just give me a date to tell my children’
She said she would pass it on. Won’t hold my breath though.
No I don’t live with anyone. Just little old me. I was married 24yrs & then 2yrs ago found out he had been fiddling with our 6yr old grandaughter so I chucked him out & reported him to the police.
You have been through the ringer Delly. How far apart where your mastectomy’s ? Did u have reconstruction or a fabulous tattoo? (I was thinking abt one after)
After miss Dilan finally checked my mammograms yesterday morning I HAVE A DATE ~ next Thurs 7th (sons birthday)
Partial mastectomy. Remove top part of left breast to remove cancer & pull up. Do same to other breast to match but lymph nodes be removed from left.
Now reality is hitting home.
Thanks for all your supportive messages
Mumgonemad -YEH - on your date, next week !! Eek. But at least you can now ORGANISE things/your life around !! Now I know the more of the reason of your name, in your having to face this withOUT a significant and normally supportive partner - I had my feelings. Jeez, that’s so not what I wanted to hear for you, darlin girl. What utter s**t some people have to go through. I’m so sorry.:smileysad:
Me/mine - just under a year apart.2006 and 2007. Seperate primaries. Sooo wanted and asked for recon at the same time as masts, but change of surgeon, due to his retirement and new up to date technique surgeon on the block + miscommunication meant it didn’t happen. Had to wait till 2014 !! till a good time in my life for me to then “begin” delayed recon procedures. Still only part way done.Would have been all finished and sorted back at 2007, so bear all that in mind and take/ask for what you can have done NOW. Don’t delay ANYthing, unless it’s necessary, due to radiotherapy effects on skin. I was a single woman and knew what a drastic effect it would have on me, personally and confidence wise. Massive major influence on me not pursuing a partner for 10 years, wasn’t happy looking at myself, never mind someone else looking at me, in the bedroom department. Still not finished, because I keep falling off the recon horse to finally get it finished due to major depression from “that” and other unknown factors in life that have cropped up…
Don’t know how old you are MgM, but don’t put anything off that you can have done immediately. Get it done and out of the way NOW, because it can be soooo much more difficult later with what else can crop up in your life. You can probably sense how frustrated I have been by all of it.
Sooo - Hope all goes well for you next Thursday. Sounds like you have a couple of kids to have to sort/think about, let alone dogs!!! Please let us know how you are/go on, when you can.
Loadsa love to you and everyone else
Dellywelly xxxxxxxxx
Aaahhh Delly my god they have fecked things & life up for you haven’t they.
I totally understand not having someone else see ME as can’t look at myself. I was thinking the same when they said mastectomy.
For you still not too have had reconstruction after 10yrs is a disgrace on part of your healthcare etc.
I’m sending a huge mammoth hug of support. Life sends enough crap our way without added stress, depression & lack of self esteem.
I was awake half the night but up, showered & in Neath portalbot hospital by 7.20am.
Was booked in, told to change into gown & support stockings which I did. Lymphedema nurse came for a chat & talked abt exercises after & took arm measurements for a normal size guide.
I was gagging for a coffee. Consultant came tell me there a slight problem as anesthatist she had booked op with is off sick with flu & another one taken his place who isnt feeling very happy abt putting me under. BMI cut off is 50 & I am right on 50. Anesthatist colleague came to ask some questions & went chat with boss man.
Long and short of it is THEY SENT ME HOME. OPERATION CANCELLED.
Now they new my weight & health status well before giving me date in that hospital. They don’t have any drs on premises after 8pm so if I took bad after op there would be no Dr & they don’t have a high dependency ward to deal with emergency & I would have to be blue lighted to Bridgend.
FFS they new all this so WHY book me in.
I’m angry, disappointed, anxious, tired & at the point I say **** it the cancer can stay.
Consultant has given me a hormone prescription so cancer doesn’t grow while awaiting a date for operation in Bridgend NEXT YEAR. What ever date they give me will be an admittance day for a Tues as that’s the days they put wires in (Sec asked consultant b4 if I needed wires & she said NO) & actually operation be the following day.
I JUST WANNA CRY
Mumgonemad - Errrr WHAT !!! My mouth has dropped open in disbelief, Oh My God. What a fffffflippin mess up, to say the least. And this bloomin BMI business cropped up again???! And right at the last minute. You must be wondering, if the original anaesthetist had turned up, whether HE would have gone ahead ?!! Because, as you say, they had all your information. Plus, of course, it’s a bad time of the year now, with the hols holding up anything.
Awwwww, my darlin girl, I feel sooooo disappointed and frustrated for you. Heck. Think you probably needed a punch bag when you got back home. Jeez.
Me, no, it’s not “their” fault that it took me so long to get on the recon horse, just a series of unfortunate happenings that meant I kept putting it off. But just a shame the recon wasn’t dealt with at the actual time of mastectomy. Just one of those things.
Well, I hope you’re finding some way to calm down from all this, and at the same time muster up some strength to keep battling on. I hope you’re getting lots of support from friends and family to help keep you bolstered up.
Sending a warm, hopefully soothing hug back flower,
Dellywellydingbloomindong xxxxxxx
Thanks Delly & Rosie, hugs back to both.
I am STILL waiting for surgery date. No chance of it being this year as surgeon off work till 2nd week Jan ~ which will be 11 wks from diagnosis.
They have given me Tamoxifen so can now say they have started treatment. No rush for surgery now. Thinking of telling them to keep there bloody surgery & I’ll just keep taking Tamoxifen.
Anyway ladies i wish you & yours a very merry Christmas. I hope it’s a good one Xxxx
Sorry for your disappointment Mumgonemad. Try and keep your head off it/distracted over the hols.
I’m wishing you all a good Xmas too.
Much love to everyone
DellyWellyDingDong xxxxxx
Hi all…sorry I’ve been a bit absent but not been having great time on chemo.
Mumgonemad - I’m glad they have started some treatment for you but lordy lordy they are messing you around. I hope you are feeling as ok as possible and keep well until they see you again in January.
All the other ladies - hope you are all well enough to enjoy the Christmas period.
Festive hugs ???
Nikki xx
Thanks Helena and Delly. I went severely neutropenic after 1st chemo so my 2nd one that was due last Friday was postponed to next week all being well with my bloods. I’ve been on antibiotics and today I’m feeling myself again. Although I havent had an easy first cycle I have read some ladies have suffered more still so I am still grateful.
HAPPY CHRISTMAS EVE folks…give your loved ones a big squeeze xxx
Sorry you are having such a rough time Nikki.
I have heard how awfully rough chemo can be.
I wish you all the best Xmas you can have & hope we go into 2018 healthier xxx