Thanks mumgonemad…and you lovely. Keep in touch, I hope you enjoy Christmas time xxx
Hi all, happy New year & I hope it all still fighting xx
well after having my op cancelled on 7th Dec the consultant gave me tamoxifen.
My breathing got really bad and was almost admitted to hospital. Bloody stuff irritated my asthma badly. You could here me rattling from 30 paces.
Anyway I have not had tamoxifen since new year & have been on 40mg steroids & nebulizer every 4 hrs . I’m not rattling any more but breathing is still laboured And guess what ~ ~ STILL no operation date. I will be riddled with it by time they get me into theatre.
I have had an abnormal smear test & mild/moderate biopsy. Im having treatment for cervical changes next Thurs 1st Feb. Having the full works.
After lots of phone calls to Miss secretary I am meeting with her this Fri to discuss a treatment plan. THIRTEEN wks yesterday since diagnosis & those 3 cancerous lumps & lymph node are still growing inside me ~ spreading ??
Thanks Delly xx all I can do is sit back worry & wait.
Surgeon told me off for not taking Tamoxifen. Told her I was drowning & CAN’T take it. She only new abt it last week when I phoned. Susan didn’t pass on info b4 & apparently surgeon didn’t get Drs letter 're Tamoxifen.
Anesthatist still happy do me in Neath portalbot so no need go Bridgend. B/S thought she had time to plan wires/magnets & surgery as I was on meds. No point doing ok if don’t take hormone meds. Find one that doesn’t **bleep** up my chest. Had bloods done to see which meds I need. She may be able to use a colleagues theatre slot on 8th Feb but no promises. Otherwise it will be MARCH.
Cos doing partial removal & all lymph nodes I HAVE to have radiotherapy EVERY DAY for 3 wks & MIGHT need chemo. I need someone stay with me when home & out next day after op
Hi Delly, I don’t know how to edit post!!
I’m in a small town abt 21 miles further on from Brecon.
My kids are 30, 29, 26 & 24 & none live at home.
My 26yr old son comes stay with me quite often. He stayed xmas/new year & wouldn’t leave me when chest was very bad bless him. He here this wkend & he says will stay with me after op. My other kids have children so can offer support during the day time but need be home with their kids. They live round the corner though & could be here in minutes. I’m frightened but can’t tell them that. I’m the strong one lol
I no longer work. I loved my job too. I was a professional home carer. I have a neurological disorder called Dystonia which effects my right side. I have a tremor & muscle spasms. Also the medication they gave to help with tremor irritated my lungs & was on 40mg steroids for 4mths. My GP said I would be a danger to myself & service users. I was gutted. Loved my work & was bloody good at it.
I would need to stay in hostel @ singleton hospital Mon - Fri for 3 wks while having the radiotherapy. Don’t know what to do with the dogs.
Tearful tonight & want this over & done with. It’s been hanging over me way too long now.
If i had a full left sided mastectomy I wouldn’t need radiotherapy BUT i dont think i could cope with nothing there.
If surgeon takes half breast & then pathology comes back saying need clearer margins or there more cancer there than originally thought THEN she would take me bck in & remove all but at least then I know everything been done to keep as much of me as possible. Stupid ??
I have breast cancer & i don’t want it!!! Nobody wants it.
How much has it progressed/spread since diagnoses almost 14wks ago. How quick does hormone positive cancer grow. Why is it taking them so long. If I can’t take any hormone meds because they cause breathing difficulties why can’t they remove my ovaries. There the buggers making the oestrogen !!!°
Surgeon said if don’t take meds there NO POINT doing surgery !!!
Sorry rant over xxxxc
Sorry to hear you’re feeling like this at the mo, Mumgonemad, but you will get through it, we all do.
As ever, I think loads of us can identify with being the ‘strong ones’ & protecting the family, but do let your kids know about what you need, especially if they’re nearby.
From what I’ve seen, a few months here or there is unlikely to make any difference, although it’s horrible going through this stage & any delay certainly does not help.
Just to add, to edit the post, ensure you’re signed in & you need to be on the ‘full’ web version, link on the bottom of the page if on mobile, click on ‘options’ box top right of post, select ‘edit reply’ & re-post.
Sending hugs
ann x
Thanks Ann m & Delly. (I’ve edited past posts)
I have had a phone call today from my new breast care nurse Niki.
My blood results came back postmenopausal so I HAVE to start taking the LETROZOLE surgeon prescribed on Friday.
I am very apprehensive as funny enough i actually like breathing (now im not suicidal)
I am down to 30mg steroids daily & havent needed my nebuliser as breathing ok with my 3 pumps.
IF surgeon does book a theatre for 8th Feb the anesthatist wouldn’t touch me with barge pole with limited lung capacity BUT surgery may/probably won’t happen till March.
DILEMMA
Hi MgM
My apologies. I typed you a message last night, but when it came to “send”, my internet had gone down, so it got lost in the ether.
I’m soooo glad your chest is getting better. You’ll have to forgive me, but I got somewhat confused in a past post when you said you had special needs kids. Were you meaning Grandkids? I’m sooo glad to hear your son has stayed with you, that you have some good immediate support. I agree with Ann, you need to make it known to your family, how scared, frightened, worried you are. If you were my Mum. I’d want and need to know, so that I could support you in whatever way I could. I’d WANT to, so please do let them know.
I sooo understand/get you wanting to hang on to as much of your breast as possible. NO, it isn’t stupid, at all. With my first, it was hanging onto my nipple, but when I pinched in the amount of flesh to be removed with a lumpectomy, the morning of my op, it was a done deal - mastectomy and no rads. But . . there’s always the option of recon, if not immediate (I would always push for it ), then delayed.
You, my dear woman, have had such a hard a hard time, with your Dystonia, losing your job because of, and what you’re going through now. I had to give up my profession of 22 yrs, because of health reasons. Not BC either. I don’t blame you for screaming “I’ve got BC - and I don’t want it”. You keep screaming on here or elsewhere, because all the time you’re SCREAMING - you’re FIGHTING, and that’s what “we” and your family want, you FIGHTING!!!
I’m hoping like mad, that you’re doing okay on the Letrozole?? sweetheart, are you so far??
Sending you mountain loads of love, far bigger than me, but not bigger than my heart. Delly xxxxxxxxxxxxxxx
Keep us up with how you’re doing, Have loads of rants.