Incidental discovery and fear of mammo guided core biopsy

Hi @littlemy1 i totally sympathise with you and your anxiety etc, its is hell! Did they say how long you would wait for your results? I had to wait 2.5 weeks from my 2nd biopsies but had already been waiting for over a month from my first ones, if was bloody awful. I dont know why they couldnt tell me after the first one as they knew then! They have to discuss your results at the mdt meeting which delays it even longer. i received an appointment letter via text a day or 2 after the mdt meeting but with any luck you might just get a phone call, seems each trust do it differently. I have had to contact talking therapies and my doctor has given me some tablets as im not coping with my diagnosis and treatment, so reach out to your gp as they can help support in many ways. Keeping my fingers crossed for you x

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It’s totally sh!te waiting for those results. In many ways it is still the worst part for me. I think many would agree.

Why don’t you give your BCN a ring? Even if she can’t tell you anything, a chat with her might reassure you temporarily.

While it is horrible, they want to be thorough. Whatever news you get, it will have been properly assessed so you get the right diagnosis be that a positive or negative result.

Keeping fingers crossed for you my love, and this is the perfect place to vent in the meantime. x

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Thank you @Jaygo and @catlover2 :heart: you know what I was like, who can I talk to to make me feel better and where people get it and that’s right here. I managed to calm my anxiety a bit at last tonight but then it shoots back up again! I def think a trip to the GP might be a good call. It’s all whirring round in my brain like the whirring vacuum thing. And that age old thing that helps, a nice relaxing bath and you’re staring down at a bruised boob and it’s hard to get the focus back to relaxing. I was reading about how bad psychologically the waiting period affects you. It’s brutal.

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I have never played so much Scrabble on my phone, watched so much Netflix, done so many puzzles or read so many books as I have since October. Anything to divert my brain from cancer.

It worked for me, as did this lovely forum. Another thing that helped was to journal stuff. It helped me get the thoughts out of my head and body. Recording not just the worries, but also the moments of feeling proud of myself for coping or succeeding at something.

Keep going, keep strong, and when you can’t be strong, come here. xxx

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Yes honestly, the docs gave me a long appt where i just cried my eyes out, said things i didnt want to say to my family and actually felt abit better for it. You go up and down like a rollercoaster constantly so if the doc can give u something to help/or offer that extra support even if u dont need to use it at first its worth a try. X

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Oh I think we’re kindred spirits with the Netflix and journally :blush: I have a diary on my phone that is usually just me ranting about stuff. I hadn’t done some proper pen to paper journaling for years till all this - then I started one and am 2 pages from filling the book! I must try Scrabble too. Feeling proud of yourself should be at the top of your list for sure. Knowing there is support on here is so lovely. There’s good and bad on the internet - here’s the good with a cherry on top :pink_heart:

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@littlemy1 I love that we’re good with the cherry on top here. I read my journal back the other night/early hours and howled laughing at just how guttural I am. I haven’t held back which is really therapeutic, but some bits are hilarious.

Maybe we all have a book to publish on this eh? Enjoy the Scrabble. I love it. x

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Me and my husband now play scrabble
every night. Unfortunately he has started beating me - at Scrabble that is. He keeps selecting s rather than q and x and is a bugger for getting triple word scores in two directions.

So beware the smartarse spouse

Seagulls

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That tickled my funny bone. Boo to your husband for not letting you win, the rotter!

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hey lovely ladies :pink_heart: well I’m not sure where my head’s at right now. I spoke with my consultant today. Result of the MDT meeting - they were not happy with the results from the VAB. She says it wasn’t a good biopsy (from what I remember at the time it was “technically difficult” one) and not closer to a diagnosis. She doesn’t want to go straight for an excision because of the size and doesn’t want to cut away without diagnosis. She mentioned distorted cells which had been brought up after my core biopsy but I was too spaced to be paying full attention. So they want to do another VAB this time targeted with ultrasound. Not sure what I was expecting today but this was not it. I’d had an early call from the nurse to say the consultant would ring me after the clinic and I waited starting at my phone like anxiety was my middle name! She said there is still no way to know if this is malignant or benign and this is the best next step. I tried to remeber to ask all I could think of but she said I could call the team any time with questions or if I was “having a wobble”. The weirdest thing is I’ve spent all my time since then instead of thinking just aaah what the heck now but just thinking how lovely my consultant actually is (and more supportive in a couple of conversations than some of my “best friends” have been to be honest!) Think I just have the old head whirl again! This is such a roller coaster

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I’ve got one of those :joy: although it constantly amazes me how much he knows about the most random of things!

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I feel like that would be a darn good book!

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Mine is off to see his psychiatrist this afternoon - need I say more?

Seagulls

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I think my get up and go got up and went after yesterday’s consultant call. Do you ever feel like your brain is just like an old TV set when it’s just got wiggly lines and static going across it? Like occasionally it tunes in to a channel but mostly it’s just noise.

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Hi I really need to vent because I’m a sobbing mess. Just had my appointment date for my ultrasound VAB which I thought would probably be next week given how the timeline has gone so far. It’s 15th April. I don’t think I can keep my sanity that long and then another 2/3 weeks wait for the results. My original appointment was 17th Feb. I know life gives you lemons and not everything is straight forward in getting a diagnosis but it just feels inhumane and unbearable. This is actually the only time I’ve actually had a proper cry. I’ve got other hospital appointments at the end of April too, a referral I’ve been waiting for for ages, I let it be because I thought I’ll know what’s going on by then. I’ve just left a garbled message with the nurses. Well the consultant did say I could call if I had a wobble and I’m f***ing wobbling :cry:

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You poor thing. that is a long time to wait but i suspect it is due to the easter holidays you may get called in for a cancellation though, that has happened to me before. Theres not much i can say to help but just make sure you do speak to your doctor for your anxiety etc, or speak to your breast care nurse might be able to offer abit more support whilst you wait. Im sorry you are having to go through yet another biopsy but it must be a very small area so try to take some comfort in that x

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Thank you @catlover2 :pink_heart: I had a call back from one of the nurses and had a total blubber on the phone, I couldn’t control it! She was responding to the message I’d left the evening before not the garbled one, I think someone was due to call me about the appt before it was sent out. She mentioned Easter, which had never even crossed my mind, and of course that really loses 4 days and not 2, but she acknowledged it’s still a long wait given the time from my initial appointment, even factoring that in. I told her I just didn’t have it in me that long wait, especially as I had assumed it would be next week, it had thrown me for a loop. She said she was going to email the team and see if there was any way of a sooner appointment (though I’m sure if there was, I would have had it) and also let them know I would take up any cancellation offered. Waiting for a callback Monday from her. I’ve got a chronic back condition that has chosen the last couple of days to flare up too so I was already feeling sorry for myself. I’ve been off work for a month with the stress and anxiety of all this, I just want answers so I can either start to get back to normal or deal with what’s coming. I feel a bit self absorbed rabbitting on when other people have and are going through so much, but I guess in my little world it’s just me and nobody else can relate - other than my sister who’s partner died from prostate cancer last year. She’s been great, but it must be hard for her having conversations regarding the C word. I have some great supportive friends but also some “close” friends who’ve been pretty rubbish. I’ll remember though - like Reese Witherspoon said in Big Little Lies, “I love my grudges, I tend to them like pets”!

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I think I am actually losing my mind. I just had a call from one of the nurses, only after I left a message chasing up this miles in the distance biopsy appointment. Said because of it being an ultrasound VAB and something about consultant radiographer it had to be on a particular intervention list (all stuff I had to look up) and it was unlikely the appointment was going to change (basically it won’t) so adding the wait for results that’s the 27th April at the earliest. I don’t think I have this waiting around in me, 10/11 weeks from that initial referral when not knowing any better I heard one stop shop and thought I would be boom and done. As someone who is only a situational anxiety sufferer I’m having trouble even distracting myself with things I’d usually love to do because the anxiety is spilling into my normal life and I don’t even want to get a bus or a train anywhere. I’ve been off work and I dont feel I cope being off or cope going back. Sorry, I’m just feeling really alone with this right now. Sympathy from family and friends is great but they can’t relate and they can’t help.

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i had to wait from jan to finally be diagnosed on 18th february, it was hell waiting but i could already tell that it was cancer by how they acted but they wouldnt say, then i had to have the stereotactic vaccum biopsy for 2 other areas that they couldnt see properly, so this delayed my diagnosis. I had to up my anxiety tablets as i couldnt stay calm, tried to distract myself with work but it was hard to concentrate. Your situation is different as it sounds like your area is tiny so please take heart in that! Then its a pain cuz u have to wait for them to have the mdt meeting so that drags it out. There is not much anyone can do or say to make it any easier/bearable for you im so sorry x

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Hi all thanks for urging me to keep busy etc and grounding me while I had this big old wait for biopsy number 3. Finally it’s tomorrow. Am I looking forward to it? Nope I still have pain from the last one but am I glad those nearly 3 weeks have passed? Hell yeah!!! :sad_but_relieved_face: apparently when I’m stressed I go a bit bananas on Vinted :joy::sob: I think my biggest wussy fear is yes, I’m not going to be squeezed into a mammogram machine this time but the area is still so sensitive and I know they don’t half press hard sometimes with the ultrasound wand. That’s all a minor fret I know. I’m just really hoping that this will finally be able to give me a diagnosis and that I don’t lose it waiting for results again! I hope everyone is doing ok :pink_heart:

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