I’m 39 , was originally diagnosed at 36 and with secondaries at 38. i have two young girls ar 9 and 6 so don’t want to go anywhere for a while yet.
Diane
hi belinda and jennywren
i already tried for disability allowance and they refused me. saying i could prepare a meal and walk a distance by myself so i was ok. i really need to have some income so thats why im worried while im off work, i love the new job, but my back doesnt seem to be getting better. i will see what onc says on wednsday and try and get back to work if i can
thanks for your posts.
take care god bless x
Oh that’s so unfair…DLA is another postcode lottery…some people have no trouble obtaining it while others have to keep applying. If you haven’t already do get someone, onc, mac nurse, to go through the form with you. It makes me so cross as you should be getting at least the lower level…especially if your back is stopping you from being able to work. Take Care and Good Luck…xx
Everydaymatters, I really didn’t think I’d qualify for DLA and kept putting off filling in the form as I really don’t need any help with anything at the moment, but when my bc nurse rang me she said there would be no problem in filling in the special measures form - and there’s no way I’m going anywhere within six months, I’m feeling fighting fit at the moment - but she said that anyone with metastatic bc qualified for special measures regardless of their prognosis. This was only last week so haven’t had any money yet but the bc nurse was pretty definite that it wouldn’t be a problem. I would speak to your onc or bc nurse and try again if I were you
Lesley xx
Hi.
I’m 45 now, diagnosed at Stage IV (even though not sure initially it was BC) 18 months ago. Spread in abdomen (peritoneum and retroperitoneum), but not organs. Also in spine, ribs and pelvic bones (and one met above an eye which gave me double vision for a while). I’m a strange one! Thankfully had a good response to Tamoxifen and the injection in my tum (can’t remember the name of it) but things have changed a bit recently so onto Femara now.
I don’t have any children- I love kids but was never particularly maternal, just a good aunt! So it’s not the same and I know that it is easier for me to live in the moment.
Love to you all and fingers crossed for many more good times with our families and friends.
Anne x
Hi Anne
Have exactly the same secondaries as you, have you had any chemo yet? Was on Tamoxifin for 1 year, been on Femara for same length of time, but managed to avoid chemo so far.
Hi there,
I am 34 with three children aged 11 months, 2 and a half and 11 years old, secondaries diagnosed at 33. This site has been a source of tremendous comfort to me as I always manage to find someone doing extremely well on meds and giving me hope. I know I am not likely to reach 40 and will not have as much time with my children as I would like, but the support from everyone here and the ideas shared, such as memory boxes, is fantastic.
Take care
Liz
Hi I was 35 when diagnosed with primary bc and also secondary spread to hip area. Now 37 and waiting on unknown possible spread again in my chest. I have a 8 yr old son
Jools
I AM 41 AND WAS DIAGNOSED AT 39. 1-4 (MY ANIVERSARY) I WAS DIAGNOSED WITH BRAIN METS. I WENT THROUGH SURGERY ON THE 7TH. ONE GROUP WANTED TO DO WHOLE BRAIN RADIATION WHILE ANOTHER WANTS TO DO STEREOTACTIC. DOES ANYONE HAVE ANY EXPERIENCE WITH THESE TWO CHOICES, ANY REGRETS ABOUT ONE DECISION OR ANOTHER? IF YOU HAVE HAD STEREOTACTIC, WHAT SIDE EFFETCTS WERE EXPERIENCED? THEY TOLD ME I MIGHT GET SLIGHTLY TIRED AND LOOSE THE HAIR IN A LOCALIZED AREA. I DON’T THINK THEY ARE USED TO DEALING WITH THE YOUNG (?) AS MUCH AS THEY DO THE OLDER POPULATION. I THINK ARE YOUTH CAN WORK FOR AND AGAINST US. MY CHILD IS ALREADY 22 NOW. I DON’T KNOW HOW YOU MOMS DO IT. YOU ALL ARE AMAZING!!!
Hi Terrichick…I have bone mets but know friends who have had both brain mets treatments. The Cyber (Gamma) knife seems to be the treatment you recover quickest from. There are some current posts here on WBR and if you haven’t already looked through it the ‘search’ option will bring up lots posts on WBR. Good Luck with your treatment. Like you I was a very young Mum and I also think those going through this (and all the uncertainty it brings) with little ones are amazing. Good Luck to us all…Belinda…x