Originally diagnosed October 2020 age 50, single mastectomy, Oncotype score of 9, no lymph node spread, no chemo/Radiotherapy, just Tamoxifen, low risk.
Had an MRI due to pain in hip and MRI shows ‘something’ on one of my vertebra.
Got and appointment at Breast Clinic in the morning, but absolutely knocked for 6.
Also waiting for Gynaecology referral as MRI shows thickened womb. Just feel very angry at the moment, this wasn’t in my plan!
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Lollyblue
I feel for you must be so hard it’s we all dread the thought of it coming back after treatment and surgery . The hardest part now for you is waiting on results and treatment plan . We are all here for you and the helpline sending vertual hug
Hope all goes well for you Xx
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Thank you, the waiting awful even though it hasn’t been long, you just fear the worst.
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I feel so sorry for you. After 4 years, you must have been geeting more positive and this hits you. You have had the tests and hopefully the results are good news. I read that tamoxifen can cause thickening in your womb. I am on tamoxifen but already been diagnosed with fibroids beforehand. They dont cause any problem. I hope the tamoxifen does not make them any worse. Good luck with everything. Keep us updated x
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Yes, you start to make plans dont you?
I am hoping the thickening is just the side effect and nothing to worry about, but the way I’m feeling at the moment, I just fear the worst and I’m usually a very practical and glass half full type of person.
Once I know what I’m dealing with I think I’ll feel better about it.
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Just stay positive , that’s all you can do I know it’s difficult your mind goes into overdrive believe me I know the treatments are changing all the time and improving , keep us updated how you get on xx
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It still be something beyond cancer, Lolly. We all age weirdly now due to endocrine therapy and until they do a biopsy there is nothing known for sure. But even if it is worst case scenario, it looks like they only suspect one spot and that may still put you in the cure category of treatment. Either way though, as others have said, treatments are just progressing in a way that it’s hard to keep up with them. Just hold on until they tell you what they’re going to do. By the way, was is the hip suspect, too, or is the vertebra just an incidental finding and the hip something else entirely.
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I know, I was expecting arthritic changes in my hip, and that could still be the case? GP advised they suspect a recurrence in my vertebra, and referred me back to breast clinic. Will see what they say tomorrow. I’ve always had a bad back so didn’t question that pain, stupidly
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So the hip is probably arthritis but the vertebra could be something else they think. Well it sucks, but again only one spot. One spot they can still treat with curative intent. Hopefully they’ll move quickly so you don’t have long to wait. In the meantime we’re all here for you.
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Thanks so much, its a minefield isn’t it.
Thankfully I dont have too much longer to wait, just unsure what happens tomorrow, not sure if I’ll need more scans before treatment starts?
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Have they done a Pet scan yet? My guess is that would be the next step.
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No, I’ve never had one.
I initially had an xray on my hip, then I had bloods. The GP discussing the results of bloods said I should have an MRI not an xray, so tomorrow’s appointment is as a result of that MRI.
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Okay. Maybe they think that will suffice. Good luck though. I know you’re scared crapless as we all would be. But once they have a plan you can move on. So many hugs sent your way.
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Thanks x
Once I know what I’m dealing with I’ll be much stronger, just feel like jelly at the moment.
I have private medical insurance through my husband’s job, so another big decision to be made if I stay with the NHS (I did the 1st time)
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Sorry you’ve had such bad news. I was first diagnosed Nov ‘22 and had a lumpectomy with clear margins. No radio as I was contraindicated. No tamoxifen as 4/8 ER+
I had a recurrence diagnosed 8 months later. Same breast, different area. Had a mastectomy and they found two separate tumours. Had chemo, Herceptin and am due to start tamoxifen in September.
It certainly wasn’t in my plan. I haven’t been able to work much over the past year (I’m self employed so haven’t earned even half of what I need to pay the bills). I try to be positive and am also a practical, pragmatic person but this has nearly finished me off.
I’m waiting to hear from the counselling team. Have you contacted your hospital’s local team? It might be helpful to speak to someone.
Taken care
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Just stay positiveand think of something beautiful. Sometimes everything comes from the soul.
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Had my appointment this morning and feeling much more positive. There is a suspicious area on my L4 vertebrae 7mm. Having a CT scan on Friday and back with consultant on the 12th. He advised if it is cancer, which he said there is still a chance it isn’t, that it will be treatable. Things are moving quickly and I’m not feeling as anxious as I was.
Thanks for all your good wishes x
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That is positive news. Great it is treatable. Hope it all goes well for you. Best wishes x
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Dear Lollyblue
Thinking of you. Fingers crossed for a speedy and positive outcome. Understandable you are feeling angry just when you’re getting your life back in order.
Treatment has moved on so much in the passed few years, I found that out when my cancer decided to poke its ugly head up again.
Please let us know how you’re getting on, wishing you health and happiness going forward.
With the biggest hugs Tili 
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Good. I’m glad you have some answers even as they aren’t definitive yet but you are moving quickly. Treatment should be able to start soon although hopefully it won’t be needed.
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