Good luck to all having 2nd and 3rd treatments this week. I am still feeling ok after second last Friday only problem is the metallic mouth and food being pretty tasteless. I realise I am being really lucky so far when I read your posts. Have managed to get an appointment with the Hairdresser who supplies the NHS wigs on Thursday. Have bought a turban style hat on line made of bamboo, but don’t think it looks great.
Have just found out through ringing Macmillan Cancer that my nearest centre for Look Good Feel Better is in Exeter over 50 miles away so I will have to give it a miss.
Hi fel, have a look at the Tonake 390 wig on amazon, I got that one and it’s a super little wig and you can style it in lots of different ways and it’s very natural looking, if you order it doesn’t take long to arrive and will make you ?, it did me and saw me through chemo ???Shi xx
Morning ladies , Amy you look stunning ! , my hair still hanging in there , day 13 fec1 , I had my eyebrows microbladed so I won’t notice if they go , I’m feeling totally myself at the minute been boogying round the living room , also having house valued tomorrow , I don’t know about moveing , if I could guarantee the next five cycles going like this one I would do it , but obv it’s the unknown and I’ve got T for the last three x I’m gonna shop till I drop this week , ready for number 2 next week xx aliand glad your fairy feels better ! Starfire , I hate nightmares too , sometimes they seem so real don’t they , after all you have been through I’m. It surprised your having them xx
Fel glad your feeling better after last week , I’ve bought two wigs , one like my hair before I had it cut short and a blonde bob one . I think I should of just bought a brown short one , oh well ,
Had some gel stuff come through this morning , free samples for mouth ulcers , the difflam sorted mine this time so hopefully will next time x
Right back on line shopping !
???
Karen x
Hi Starfire I am just popping over from the October thread as Shi suggested I might want to get your advice on some symptoms after T number 2. Number 3 is due Thursday.
I flicked back through your posts and think I might have a milder version of the reactions that you had after T1. Hives, swelling etc. I also think I had a lesser reaction to T1 at about the same time but it seems to be getting worse each cycle. Obviously my mind is going forward to how bad the allergic reaction might build up for T3… I saw your post about your T2 and am sorry you had to go through that as it looked very frightening ?
Did you find that the hives were worse after a bath or a shower? (Or with any kind of heat?) They seem to sit under the surface of my skin most of the time but then get red and swollen if provoked! They are also quite itchy all the time. I also keep getting very hot ears - did you get that too?
Other issues I am having is very swollen joints - particularly my knuckles and puffiness around my ankles and every now and then my face - woke in the night last night sure my lips were throbbing. I hope you don’t mind cross comparing my symptoms with yours - I just want to be fully armed for convo with onc tomorrow. I am going to ask them as a minimum to give me the docetaxol very slowly on Thursday just in case of an immediate reaction and tell me what the management plan should be in case I ‘just’ get a worse version of the hives and swelling.
Thanks for you help ? Ruth
Thank you Starfire that is incredibly helpful ?
I have my pics and will see what the onc says today. I can’t imagine they will swap me to anything else without a full blown reaction but at least we can take precautionary measures and I feel I have more justification for wanting to be very careful this time around. Will let you know how it goes ?
I hope you are ok and the SEs are treating you a bit more kindly this round? XX
Hi Shocked Im getting numb fingers and toes…but Im on T first which is renowned for numbness.
Ladies I feel soooo guilty…you are all having horrific nightmares and for some totally random reason I am having the complete opposite…rude dream after rude bloody dream about different people some famous some from my past…completely vivd and Im loath to admit it but not an unwelcome distraction
EC treatment 3 day
Period started yesterday. It was literally running down my legs like water. I’m not usually like that but I know this is part of the treatment a menopause start.
Went to nail bar they’d booked the wrong day but agreed to take off my gel nail polish. They were so lovely to me and managed to do my manicure between 3 of them that I ends up bawling my eyes out. How embarrassing.
Today I’m feeling very emotional and fragile. Dh was renewing railcard on his phone and wanted a passport style photo of me and couldn’t understand why I was getting worked up over having a photo taken in my wig with no make upon because it’s only a railcard! Men have no idea !! I burst into tears and shouted (happy Valentine’s Day) dd came to see what was happening thinking we were messing about and I told her to go away - result she burst into tears in her room I only found her half an hour later with red eyes.
I was an emotional wreck so couldn’t eat before treatment. Now trying to eat a dry plain cheese butty while woman next to me vomits !! Oh joy.
Sent the hubby off to swim with the kids so on my own again for treatment. I don’t really mind as you only end up sitting in silence reading don’t you - well I do.
Well here goes a crap 10 days to come. 1 more EC after this one then I can say I’m half way there.
Saw reconstruction nurse yesterday. She was v informative but told me I need to try and put weight on. Yes like that’s so easy when you feel sick all the time.
Sorry girls I’m just venting because I feel crap and this is a safe place to vent
I’m in the same (dog) box. I thought I’d get up this morning and help get dd ready for holiday club, well ended up losing my rag with her a bit (over how to put her socks on?!). Anyway get a phone call later from OH saying she’d been crying when he dropped her off so now I feel bad - or maybe in future I’ll stay in bed and he can do it!
I defo don’t have trouble in the weight department, I’m hungry all the time. By midday I’d already eaten toast, porridge and a ham & cheese toasted sandwich! Hmm, I wonder what else is in the fridge…
Aliand…your post started me off…you my lovely are not alone in the emotional wreck department.
Ive had an overly dramatic Mother in law who cried and said Id never liked her just bacause I said I didnt need her to come and stay on my next treatment and a previously lovely wonderful husband who didnt see why texting an ex from 30 years ago for the past 3 months and failing to mention it should have any effect on his bald headed, cancerous breast wife…The more I try and stay all zen with this crazy journey the crazier it gets…BAMB thats my vent so Aliand I feel your pain and you vent away.
Now you can see why my dreams are like a little piece of well needed (a little raunchy) sunshine…
Im still swimming though xxx
PS. Might I advise wig tape it has transformed my itchy head day xxx
I didn’t post yesterday as you were having a much needed well deserved laugh… I didn’t want to put the dampers on it.
OMG my name change dosen’t seem to have helped that much on the luck front.
Tuesday went to the hospital in an attempt to sort out my compacted stools issue to prevent further painful episodes. They admitted me onto the ward and after a few hours of talks and examinations it was decided I would be sent home with some MOVICAL sachets to start on Wednesday, I was hoping to see my daughter make her Rainbow Promise at Rainbows but arrived 5 minutes too late which was a shame.
Yesterday as instructed took a sachet of the MOVICAL in water and within seconds started going into shock and having a full blown reaction to the stuff. Red hot itchy hands and feet, breathless, those dam hives, my legs went blue etc etc. Husband (thank god still off work) called 999 and I was blue lighted to hospital. Oxygen, steroids, anti histamines etc.
WTF? Came home late last night, they didn’t want to keep me in because of germs, thank goodness for my lovely neighbour who collected my daughter from school and fed her. Strangely my consultant phoned and spoke to my husband about how I had got on with the new chemo. my husband explained what had gone off and the onc said “what a hard time I am having”. I refused anymore medications on the basis that I might have a reaction. Felt like crap, restless night with nightmares about being attacked my swarms of bees and large spiders stuck to my skin, hearing things like car horns and dare I say voices which kept waking me up.
Say no more as I drink my 5th large glass of orange juice with bits in. My allergy list gets longer. Why is this happening… any ideas ladies xx
P.S. RosieH booked Festival Number 6 ( Glasto closed this year) and well done Aliand and shocked for your recent rounds! Ruth07 how did it go? I definitely need a large dingy with a motor and a very large ?!
Oh my god, Starfire!!! I can’t believe the rotten luck you are having and really feeling for you at this time. Geez, your onc sounds understanding, Not!
What have you taken so far for constipation that hasn’t worked? I’m on Dalcolax which is working for me, so far ?
If you can’t sleep soundly maybe ask for some sleeping pills? I did and I’m much better this time round (although compared to you everyone is, you poor thing ?). They’ll obviously have to make sure your not going to have a reaction to that as Well!
Oh Yeah, orange juice with (or without) has been my go to with lack of taste buds, I sometimes mix it with diet lemonade (to save my teeth, they got really sensitive last time).
I hope your docs can sort all this out for you, as you swim through the **bleep** (or lack if it) of life ??xx
Not been on for a while…but pleased I checked in. Physically I’m feeling Ok, but mentally I’m a complete mess this time round too. Hubby isn’t coping with my treatment and we are just bickering loads. Im normally a really compassionate person but I barely have the strength to drag myself through this let alone him too. Spent most of last night sobbing into my pillow. Resulted in my 11 yr old coming in and giving me a hug - which was sweet but also made me feel bad.
Lots of people offering support when all this started but haven’t heard from anyone in ages. Only one friend who checks in on how I’m doing, and he messages everyday - but he’s got his own stuff going on and my hubby doesn’t like me talking to him cos he’s a bloke!!
Been referred now to counselling team - but they have a 4 month wait.
Just feels like things are coming apart a bit at the seams. Funny how a few of us are finding that now.
Oh, and despite the cold cap I continue to shed lots of hair. Mentioned to himself I might grade it cos everytime i comb it or shower its like im torturing myself - but he “would prefer it if I didnt” … grrr ?
It’s definitely crap week for you lot - some more than others !
Starfire stop stealing all the limelight ! ? how many things can go belly up for you ! I use senna it’s a natural stimulant for the bowel, gives me tummy gripes so I tend to take it at night. Movecal didn’t work for me. Also take dulcolax to keep the stool soft. I did try prune juice but with altered taste it made me want to heave.
As for epilen’s I think they only prescribe them for swollen mouths or maybe that’s good allergy ? My eldest son has a nut allergy and after he had a reaction with a swollen mouth and altered voice they gave him one. Thankfully never had to use it though he’s just gone to loughbrough uni to visit his friend for the first tine so we will see !!!
Our men have no clue I think they should do a course for them - on what to say and what not to say ! If it came with a certificate mine would be right in there !! ?
The main reason for me not trying cc was reading other people’s accounts and how stressful it all seemed. It does. Work for everyone and most people seem to need to wear scarves or hats eventually. You do what feels right to you and he will have to learn to live with it.
For the record I’ve had 1 visit from a friend since I started on 3rd Jan. I get the odd card. I think people just don’t know what to do or say. I get regular texts from my bff and we meet every week as we’ve done for years. But you’re right if I knew someone going through this I’d be right there with cooked meals, fluffy socks and practical help.
Keep swimming girls, against the tide sometimes but keep going ???
Hi January ladies, starfire darling again big For you, to join in the ? conversation one of the ladies on an earlier thread used prunes as a natural botty helper of you wanted to try that. ??shi xx
