As a nurse is so annoys me how drs communicate sometimes !!! It’s really ineccessary and I’m really lucky that my oncologist seems more clear. Though I’ve only seen her twice. Otherwise it’s bedn a nurse specialist who is also ok but doesn’t really discuss much.
I think that doses are judged on original research but starfire I think you are right it’s not one dose for everyone. With children we calculate doses on weight now I don’t know how they get out doses but as we all have different bmi and metabolism it makes sense to me that you can’t have a one dose suits all.
There are people that have full doses whose cancer comes back so you’ll just never know and neither will they
This is your journey and your body and you have to have some say in it. You do what feels right to you. And as she would say we all hope we will be ??? our way back to our normal lives in a few months time. No one knows the future thank Hod I don’t think I’d want to.
Rosie - go you girl ? loving your courage. I’m hoping to go out wingless too but it’s too cold for me. Also wigs off (instead of hats) to you for going to work ! Hope you enjoy your days there and they continue to be supportive.
Idris elba will do for poring my healthy cocktails. Life raft does indeed contain soft pillows and umbrella. Now thinking of adding a masseur ?!
Your right aliand he did say they basi it on weight etc for me, but I just couldn’t tolerate it , perhaps I’m a skinny person underneath my fat lol xxxx I’m already starting to worry about the T , he did say he’s not giving me my herceptin with first T as he doesn’t want to bombard my body with too much so that will be introduced at second T xx
Hey girls. Soz I’ve been a bit absent last few days! Just starting to feel better and have been hit with tonsilitis and 10 days of antibiotics ? boooo!
Can I ask a question. Have any of you ladies been having thoughts about how you want to make changes in your lives following your diagnosis? Seems to be on my mind a lot at the moment. I know I’m not happy with how things are or how things have been. Still waiting for my therapy apt so hoping i can use that to talk about how to go about making changes
I have a little. After reading tea and chemo. Jackie who wrote it did things like make sure she exercised, git a good nights sleep, drank less alcohol, kept control of her weight. Simple things really. I want a better balance of life too get back to salaried work for example and stop doing quite as many voluntary things.
I’m her- so escape that one. Think it will be tamoxifen for me but can’t remember. It’s not at the same time as T. I too am dreading T
X
???knicker magnets and the shopping trolly thing sticking to bits ??? just to let you know I only had one full whack of chemo then 5 at 80% dose. Just remember it’s all different and mixed up specifically for you as individual and you should ???have a shop and congratulate each other for every one that you ???through my beautiful ???jan ladies ???shi xx
CT the only changes I’m going to make are be braver . Do the things i want to do without worrying so much about how other people are going to feel about it , I keep looking at moving house , I live on my own in a big 4 bed detached which is silly , my daughters keep saying but mom it’s a lovely big house when we come round , big I don’t want a big house so I’m going to downsize and spend some money seeing g the flipping world , losing
My hubby has proved that you really do not know what is round the corner ( literally ) so I’m going to enjoy whatever time I have left having fun with my lovely family , and if there’s a lonely 90 yr old millionaire out there all the better lol xx
Im having all sorts of thoughts…think things like I’m happy in life generally and what I do and after a turbulent last few years pre diagnosis was just enjoying some peace and normality! But is that right? Should I be looking at achieving more? Damned cancer unsettles the mind…
Get this for friends…I have a group of friends all ambo service, all ladies of an age that don’t like the room to hot!!! One of them, who I thought was one of my closest friends made this collage thing for one of the others to celebrate the ladies that lunch!!! Lovely idea but guess who got missed off!!!..felt stupidly hurt and tearful!!
Damned cancer apparently it makes you invisible too!!
Fel, hope your meeting with breast surgeon went well ??sorry you had such a long trip in the rain yesterday. For anti sicknesses meds, I was on akynzeo and metoclopramide and didnt suffer with sickness at all, so might be worth asking to try those? Bit of splash splash by bobby Darin on your jukebox today girls ???shi xx
RosieH i would be upset too. I may also ask her why she missed me off. I have only told one close friend about my diagnosis because I don’t want the pity or lack of it or worry or sympathy or people to try to understand etc.I also don’t want to be upset by finding out what people are really made of like perhaps you just did. The people that know are my neighbours, my aunties on my mums’s side, my daughter’s teachers and random strangers at our local pub who found out from someone? My dad also knows but he upsets me by his lack of communication and upbeat attitude. He is moving house with his new wife who hates me and has sold my beautiful family home of three generations recently and this has been horrific emotionally. To the people that don’t know my wig is my new haircut and I just go sheepish when asked details. Oh I like your new hair cut etc. My husband hides at this point thinking I’m being dishonest. The thing is I am totally bald now and can’t work out how I will make the transition from wig on to wig off. I suppose I could get the wig cut really short before the transition? God only knows. Any tips.
Fel and Shocked why don’t you ask for Emend for sickness? I was sick as a dog without it on my first round. You have it for the first three days and then I take Ondansatron.
I had a really good night last night as before going to sleep I took a handful of meds… Piriton with my injection, an anti sickness, 2 paracetamol and an anti anxiety pill. Slept till 8.00am without any flushes x
Oh my starfire I don’t think I could cope with the stress of hiding my cancer that’s a big deal. But you have to do what feels right to you do I’m not in any way criticising you. I suppose you could just get an inbetween shorter wig to wear ease yourself in with different haircuts though growing hair plus wig might get hot if we get any nice weather. Or just start wearing scarves. You are alternative you can get away with that easy I would think.
Must be hard with your dad, maybe he’s likes Rosie’s other half and In denial ? Sad to say goodbye to your childhood home. Xx
Rosie easy mistake don’t worry about it it’s only us other chemo no brainers that know ! And lovely that your are there. Sounds to me like your oh needs counselling. You should ask about access to it and find out what there us maybe if you go or put your name down he might go too though not together he probably needs his own space. At my unit we can access counselling and massage therapies so if it was me I’d tie it all in together and suggest both.
He may not be very receptive though so good luck with that.
I took antihistamine with my filgrastim yesterday. It didn’t help them but I’ve had a great nights sleep so hoping today is better than yesterday when I felt pants.
No one in the house has remembered it’s mothers day yet ! Typical !
Side stroke gentle swimming to put the kettle on anyone want a brew ?
Happy Mother’s Day to all Mums and extra love to those who find today really hard! x My daughter with my new teddy who we have called Scruffles. Hope you have a kind day of side effects xxx
I too am alone, children wise I’m out with my daughter tonight for a posh meal and my son lives in Barcelona so I will hear from him later but he’s still a bit wary of MD because of what happened with my Mum he knows I’m a bit sensitive about it.
I think after last nights melt down/ 50 year old man Tantrum I witnessed then I am quite happy my husband is at work today. He did agree last night to counselling but in a FINE I wil do it type of way…so not sure that will happen. Once the dust settles I think I will push for it because he’s level of denial over everything is staggering.
Shocked I feel lonely a lot too, this forum is my absolute life raft…who knew this journey would churn up so many unexpected emotions.
…but Starfire so glad you got that beautiful card and a teddy which I’m guessing your beautiful little girl felt you needed. That is so so sweet.
I think Edris should serve the drinks, Tom Hardy does the massages and Chris Hemsworth dresses in his Thor costume and rows the raft …xxx
Morning ladies. Well that was an interesting 24 hours. Ended up in A&E after a call to the advice line. Temp went sky high Friday night. Maxed out at 40.1 while I was in the waiting room. Waited for 4 hours to be seen and tgen spent the night on a trolley as no free beds.
IV fluids antibiotics and paracetamol. Then moved to a ward at 6am. Bloods done and not neutropenic which was good. They have swabbed me for flu and sent me home last night with more antibiotics and tamiflu ?
Next chemo a week on Monday is likely to be delayed…not a happy bunny.
Ladies, I really hope you have a good day either way. It is a truly strange day today… I just said to my husband who could have imagined things would be like this a year ago. My husband had a TOTAL melt down yesterday because one of our dogs is determined to runaway (I think) and made a getaway just before the rugby started. She climbs trees to escape the garden. He then went looking around the village with no luck. I was asleep and on waking I looked on the village Facebook page… Dog found running around the Coop! It took three members of staff to catch a small dog and the shop is over a mile away. Clearly the dog can’t cope with what’s going on either!
If you find yourself alone today, pamper yourself, enjoy the solitude and congratulate yourself on being brilliant!
Oh yes… I forgot about Thor. he can steer the raft no problem. SWOON… OH NO HOT FLUSH ALERT X
Crazytimes, sorry to hear you’ve been in over the weekend. I’d phone your onc unit tomorrow and tell them everything and what you are on etc, they might want to check you over themselves as really you are currently under them not general hospital. Did you present your red chemo card on arrival to the hospital? You should be on meds within an hour of getting there if they are needed? ??shi xx
Hi Shi. I’m seeing my Onc on Tuesday anyway hopefully - either in person or over the phone. I was referred into A&E by the chemo unit but due to it being a Friday night plus the hospital being on black alert (ie max capacity) it took ages for them to get me in ?
Feeling a bit brighter today thankfully
At your service ladies…