???yep ???Shi here ???i’ll Do the Macarena tomorrow shocked just for you ??did the pink ladies moves to your the one that I want when they are stood outside the shake shack bit in the video last week ???oooo, oooo, ooooooooooo ???hope everyone’s treatment going well ???
shi xx
Happy pics are awesome…loved them all! That was and will be us all again…
Fel I laughed out loud when I read that your hair was in the airing cupboard!! I sometimes get mine all done for work the night before and then pop it on the stand and enjoy an extra 15 mins in bed in the mornings…there are some benefits to this…
With the T ladies although we are all different having now had both types the biggest difference is the time from treatment to dodgy…T takes about 48 hours so enjoy your day after treatment.
They both made me feel blah in different ways and most of it had passed with them both by Day 8 def 9.
I had stronger steroids on T than Fec which is normal I think so also enjoy the woo hoo of day before treatment steroid boost ?..
Friends are funny things…I’ve had some amazing support by a couple and my lovely daughter…but others have been a bit fair weather!!!
A couple of Ambulance work friends who are married (those we work together and get on but don’t socialise friends) made a donation to breast cancer research in my name…never said a word just gave my husband the little Breast Cancerbadge Thing. I was so touched, now if I get any messages or the usual if there’s anything you need I’m gonna say “ no I’m ok thanks but if you want to help donate some money”
Crikey…best make an attempt to do some housework before tomorrow which is the big more Chemo or Surgery decision day!!
Kepp swiming and loads of luck all who are up today or tomorrow xxx
Rosie ??what a lovely gesture from your friends, how thoughtful. Don’t worry about ‘the beam me up scottie’ Brigade of ‘friends’ who vanish, some people honestly just don’t know how to be or speak round you, they don’t mean anything by it, they just panic and shove their head in the sand and pretend it’s not happening to you and once their ostrich heads come out in Australia they realise what silly arses they have been and by the time they get their ostrich head back to the uk, you’ll be finished treatments and they’ll be offering you a spa break (I speak from experience) will be thinking about you tomorrow with decision, hope you can leg it to ops bar of the pool ??you can get the round in for the other ladies who need to ?to ops bar before the ?bar in the pool ???shi xx
Hi fel, sorry to hear you are still struggling with your mouth, have you tried the fever tree waters? I think one of the May ladies found that helped and also there is something that Holland and Barrett do too but I can’t remember the name of it, but one of the assistants in the store would be able to advise you, also ring your bc nurse to see if she could suggest something too. Keep ??? and keep ??? ??shi xx
EC 4 day 2
Yesterday was so hard mentally. I was home alone til my 12 year old got back from school. Disturbed by a man from the dairies trying to persuade me to have a milkman even after I told him I was unwell from chemo. I’d have ignored door but he walked passed my window and saw me on the couch.
The nausea and abdominal pain just got worse and by 9pm I’d had enough dd had to help me undress for bed. After she left I had a cry 12 yo ds found me and it really upset him. So now I add guilty mummy to my feelings.
Thankfully slept not too bad and feel much better today though stomach still feels awful and I just can’t face the tea dh brought me. But I’m ??? er today. I will keep swimming and get through the next couple of days.
How are the other wed chemo people. Rosie what was the decision.
X
Abraxane 90% and Carboplatin
Day 2 Chemo 3
Morning Aliand,
I had had to be tranqulised to get the chemo in. So much so I fell asleep during the infusion. I had a headache all morning due to stress and came up in a pink attractive rash.
Touch Wood absolutely nothing just yet. I woke for an hour last night and did some surfing, slight stomach ache but otherwise nothing. My SE tend to last the whole three weeks though when they get started and usually on day 3.
Have you tried Emend? Have you been eating normally and during chemo? I had liquids 24 hours before and won’t eat until 24 hours afterwards. Have you spoken to your husband and kids. Poor you, I don’t know what else to say. Just try to say strong. Xx
Shocked darling, just check about your steroids that you’ll need to take on t, sounds a bit odd telling you to start 3 days before treatment? Just want to keep you safe ??sorry you had a ??getting the canula in yesterday, they will find a vein for the t, my arm was the same as yours and they always found a vein. Keep ???shi xx
Oh crikey what a week…
Shocked you have every right to feel a bit sorry for yourself. You’ve had two massive life changing diagnosis with huge treatment implications to deal with…I think you’re just amazing coping with that lot.
Aliand…sending you big hugs. Wish I could say something to help…Thinking about you xxx
Starfire everything I can cross is crossed for you this round…do you think the fast has helped?
On the subject of steroids on my T I had the 2 doses day before and 1 morning of chemo then day after as well.
For me they say no news is good news so I guess I should be cheerful because the MRI didn’t get reported on time for the MDT so no decision till next week!!!
The rubbish bit is the breast surgeon had another look at my weird cancer boob and deciybest do a quick biopsy to rule out any element of inflammatory bc…he said hopefully not because all the changes were post chemo…another nail biting wait!!!
So…who’s got the keys to the armband cupboard??? ?xx
Ladies ?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign:?:female_sign: And get some ooops upside on your jukebox and row ???are you all old enough to remember doing that in the 80’s? ???shi xx
Shi - absolutely though I might vomit if I go too fast !
Feeling much better this evening. Dh been to youngest son’s parents eve which was good.
Dh took day off to look after me spent the whole day on his computer and snapped at me when I asked what he was cooking for the kids. I’ll be glad he is back st work tomorrow. I’ve asked for very little not even didtirbing him for bread when I wanted toast because we had none.
But I think the way I’m feeling tomorrow I will be stronger again. So I’m feeling much more positive.
Thinking of you starfire hoping the fasting works for you.
Rosie the lack of plan must be horrid. Uncertainty is just torture.
I’ll steer the life raft jump on everyone xxx
Ive just climbed up onboard Aliand…sometimes the effort just to stay afloat is blooming exhausting!
Night night to all you amazing ladies…don’t know where I’d be without this forum and all your friendship xxx
Day 3 round 3
feel yuk yuk in every way. Awoken by the pinging of messenger to make matters worse. I know nobody needs this but if anyone could help me get my head around this I would be very greatful
the pinging was my husband messaging his 17 year old son to remind him that it is mother’s day on Sunday! Does anyone else find this strange? My husbands kids are all grown up and have never liked me or buy me Christmas or birthday presents .i don’t really have a problem with this I guess even when they come over for Christmas dinner, My husband doesn’t even get anything for birthdays and Christmas from his son! My Dh hasn’t lifted a finger towards Mother’s Day here and told me so. I’ve given him a list of stuff that he can do with our daughter at home to make the day special whilst Mummy is in bed.
What do you think Ladies. Would anyone else question why their husband is indirectly thinking about his ex wife.
Take it easy and lots of love xxx
Starfire in some ways it’s good that he’s teaching his boys to be respectful for their Mum it’s a good example and if he’s just reminding them rather than doing things then I would t be bothered. It is disappointing though that he’s not teaching your daughter (is she his daughter too I’m assuming so) to have the same respect for you. We do t make a big deal of the day and I know no one has really given it a thought here xcept for me getting my own Mum so dvds from Amazon. They probably will do a last minute dash to Tesco on Saturday. That’s what’s normal here. Dh working all day 8am until very late so I’ll be no doubt running the show.
Let’s hope he takes your suggestions and at least makes sure you get a card and little something off your daughter.
Day 3 you’ve hit yuk. Let’s hope it’s a Copeable yuk for you
Hang on to my raft and I promise not to kick too fast, couldn’t manage fast yet anyway just a slow glide to keep us all heading towards that finish line ?
Listen to Aliand Starfire she is far more sensible and calm than my fiery nature response…
Think may have to hit you up for advice in the future Aliand…much more positive viewpoint.
Have come to work wigless today laides !!! Yikes xxx
Thank you Aliand and RosieH for your kind advice. Rosie what has the response been like to your baldness. I can only guess that people can’t stop staring at your head??? Let me know.
yes my daughter is ours… I waited for the right man! Lol I actually was at primary school with him. We shall see if he delivers on Mother’s Day. Thank god that the rugby isn’t on otherwise I’d be stuffed! It’s a big deal for me having never been a mum whilst my mum was alive, plus I conceived on Mother’s Day. The day brings such mixed emotions… who knows about this year? I have made him a list of things I would like to happen at home. One of which is TO HAVE A CREAM TEA IN A TIPEE… SERVED BY INDIANS. This covers all the things my daughter is into ? dressing up, role play and making cakes.
Im back in bed now (Aliand’s giant raft) with the cat after managing to hobble to my daughter’s school Mother’s Day Church Service. Everything is back to calm again. I intend to go to sleep after two hot flush sessions during the night… they are so vile aren’t they? I always go to the bathroom with severe trepidation that I’m going to look in the mirror and be covered in some ghastly rash or something sinister. What happens to you… do you just whaft the covers abut and go back to sleep or do you have to wander a bit and calm down?
lots of love to all xxx
PS. Starfire
Ive got a knicker Magnet (Google it) its definately taken the edge off…been wearing it for a week and havent been as bad as I was last week xx
Morning ladies , feeling a bit confused , went to onc yesterday , temp was 38.1 but did drop to 37.3 , my neutrophils are 0.9 . He’s given me ten days anti biotics as he thinks there must be an infection somewhere ?? Luckily didn’t keep me in. However next weeks chemo is going to be a reduced dose as he said I’m not tolerating full dose even with the injections , I aske did lower dose would still do the ‘trick ‘ and he said yes . So my question is if the lower dose is fine why do we have to have higher dose of that makes sense ? Next week will be my last fec x then into T
Knicker magnet… will look this up… did you get it from Ann Summers? Lol
My raft slave would definitely be Tom Hardy…
Jamesey. About the reduced dose… this causes me worry also. My main consultant never mentioned that a reduced dose was less effective for me. After my first 100% infusion of T followed by 3 weeks of hideous side effects with skin peeling off and then my full blown allergic reaction to the actual infusion after 5 mil My T was totally stopped. I was then changed to Abraxane 80% and Carboplatin 90% without any choice. As I then wasn’t too bad on the AC reduced round 1 my consultant’s Sidekick wanted to raise it to a full dose of both. I refused saying that my body felt maxed out already on the reduced dose and had three weeks of side effects without feeling better after 10 days like most people. She then said WELL YOU DO KNOW THAT IT IS PROVEN NOT TO BE SO EFFECTIVE ON A REDUCED DOSE…L DO YOU WANT TO REGRET THIS IF IT COMES BACK!
Thanks for that lady. Obviously it’s not the same as a 100% dose but everyone’s body is different! So for this my 2nd round of AC but 3 chemo round in total I had 90% Abraxane and I think 100% Carboplatin. I will be hopefully seeing my main consultant next time to discuss. I am having chemo for 1.5% preventative measure. Obviously I have two consultants with very different views but this is my experience thus far xxxx
Sorry Rosie I just laughed out loud at a pound coin holder sticking to you flute lol