Hi Amy
Dont want to unsettle your mind but I had my T first and was told the strong steroids are to do with Allergic Reaction to T more than sickness as poor Starfire can relate too.
I would double check becasue I was told no steroids taken no T given. It does seem every trust is different but please double check…
Starfire let us know what happens Friday…
Everyone else keep swimming xxx
Hi starfire, I’ve pm’d you ???
shi xx
Thanks Shi. I booked it through my BC nurse but it was her number on the McMillan website. I live in a rural area so the groups are limited or often cancelled. The nearest maggies is nearly 1 1/2 hours away. I’m not to worried as I come here instead! ?. Xx
Looks like you can get free wigs from here ?olivetreecancersupport.org.uk/wig_recycling.php
My lgfb wasn’t too bad, I heard about it from the Maggie Centre and I went away with a nice bag of good quality products, D&G, Rev lo , Clinique etc.
Amyjb, I’ve sent you a PM xx
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Starfire - the wig bank do second hand and new at really reasonable prices - think I found the link on here somewhere, I bought a couple of new ones for £10 each and they are both really good brands. Most are £30 - £40 - it’s been set up especially to help people with cancer.
Starfire, I’ve pm’d you again ?fel think it was in the literature to read somewhere about not having un pasteurised stuff best to ring your unit and double check with them to be sure on anything you should not be eating darling ??to keep safe, glad you’ve been enjoying your good week ? Paulina glad you got a lovely bag of goodies ??good to know not everyone has the ? experience I had yesterday. ???shi xx
Evening Ladies,
Thanks for the hats with hair advice x
I just wanted to ask if anyone is having 4 cycles of chemo instead of the 6.
Has anyone started with six and then been reduced to 4. - if so why?
I have read that only 4 cycles are necessary in many cases and the job is done with 4.
can anyone shed anymore on the subject please as it appears 6 to 8 is standard either before or after surgery.
love to all xxx
Hi Starfire, I’m from the December thread & only had 4 cycles of chemo. The first time in 2016 I only had 4 cycles too. I was meant to have 6 cycles this time as I have a 1cm nodule in my lung. A repeat CT after the 3rd cycle showed no change at all so my oncologist stopped the chemo after cycle 4. She explained it to me that 4 cycles were a belt & braces when there was no spread/lymph involvement. 6 cycles if there was any spread. Xx
Starfire pm’d you lovely ???shi xx
Thankyou everyone for advise and support it’s the most support I feel I have for discussing issues.although I’m not on a lot I follow feed and benefit from all discussions. So big thanks x having got half way through done 3 fec I was on a high but hit low again after checkup as was bombarded with taxotere info and radiotherapy info as well as lymphodema clinic on same day…made me realise how much more is ahead isn’t it such a drag was swimming but now paddling and splashing x
Hi Shocked,
It’s totally okay for you to feel like this… I hope you have a better day today. If you don’t mind I wondered if you could explain more about your neuropathy. I too have it in my fingers and toes after round 3. If you prefer to pm me that’s ok? I didn’t see my regular onc last review and it sent me into a whirlwind of emotion as she didn’t know anything about me and my existing issues. I felt like saying “it’s alright you sitting there and dishing out more chemo…have you actually been through this s**t and felt the emotional and physical pain and suffering?..
Hi shocked and starfire 
It’s the mid point explosion ladies, perfectly normal and you are allowed to have ???times because things do build up no matter how ???we keep there are still the ??moments that sometimes slip through the bolted door. There is always the BCCF helpline too that is another avenue to discuss things with and can listen which is something you don’t always feel happening at appointments. I was lucky my onc always listened to me. Just enjoy being on the raft gazing up at Thor’s pecks today ???shi xx
Hi Starfire, I met a girl outside the chemo unit who was offered 4 or 6 sessions. I’m now only going to be 5 but after the last one would happily stop now. Feeling it this time…very low day today.
Shocked…bless you I can’t imagine how you’re dealing with this and PD. You’re more than entitled to fight for your answers this is such a scary complex journey we need to know as much as possible…
im rafting today ladies as my coordination has given up on me again xxx
Aww shocked how awful. You should be entitled to time to discuss issues with your consultant.i think the chemo nurses see it all the time and kind of harden to what we go through though think you would have to to be able to stand the work! It’s good you got to discuss it and sometimes the only way is to make a stand as we are just in a busy system in and out the door if not. So you weren’t a drama queen just standing up to question it all and make sense of the best options so well done xx
Is that 2nd tax…just think only one more after next if not and may not be as bad …but they should listen to symptoms I was told a lower dose could be given if too severe on symptoms may be an option?? Good luck let us know how you get on.
Aliand , now you’ve mentioned Gerard Butler I’m on ! SE have eased now day 9 and I’m up for floating on that raft in calmer waters x ???
Oh Shocked it does suck indeed…
Im emerging from my chemo fog now but still out of sorts…my surgeon told me not all implants get effected by radiotherapy…I hope not because I need it post my op. I dont know how you are doing the whole PD and Cancer thing, you absolutely deserve the odd rant. Besides its your life and you need to understand what effects this will all have on it…you are as you said only 44. Sending you a huge hug.
Anyone got any sleeping tips…I now wake aprox every 1-2 hours all through the night…Ive tried relaxation apps and sleeping pills from the docs that just build up and make me feel blah…just need to sleep.
Isnt it funny how we all started off thinking about hair and wigs and how we will cope and the further you go in to this the less you care about it…my hair was growing back realy quick on T after the first big loss, but its abandoning me again now with FEC…
Argh Im rambling now…Im getting on the raft for a rest xxx
Hello all, Shocked please read x
just back from meeting with my onc prior to next weeks round number 4. I wasn’t going to post until tonight but feel I need to off load the details…
firstly last time I saw a new onc who I didn’t like and gave me a guilt complex for not taking a full dose and didn’t even know what cancer I had.
This time I was looking forward to seeing my original consultant to find out that my consultant has returned to India… W *F. I HATE CHANGE.
I go in and meet my new consultant and start from the very beginning… allergic reactions etc and now numb finger tips and shivers from hips down front of legs.
Well he said
I THINK YOU SHOULD STOP CHEMO.
Long story short he says do I want permanent nerve damage which can start with Abraxane. He can’t change me over to T as I am allergic. Apparently hormone positive cancers don’t respond as well to chemo. I’ve been sent home to think about it. appointment to see him again next Tuesday to discuss what I want to do. He is going to speak to his superiors and get their views. He suggests my options are; having 4 in total and 4th at 75% both Abrazane and Carbo next Wednesday as planned or stopping now after 3.
I am stressed and confused.
any thoughts ladies…I’m sinking and feel like I’m abandoning our raft xx never let go…
.
Starfire darling, see if you can go back on fec, my last one was fec because of my reaction to t, so I had 3 fec, 2 t then 1 fec, 1st fec was full dose then remaining chemos 80%. I thought something on the chemo front was better than nothing. I can understand your onc concern for permanent nerve damage. You are also entitled to ask for a second opinion. Ring the BCCF helpline and get some guidance my darling, I’ve been where you are now and ready to go stratospheric, so I do understand, luckily ladybowler and mai7 scraped me off the ceiling. Hope this helps darling ??shi xx