Crazy times cordadyl made mine worse - ditch it the bendiazipine is I think difflam - much better. I got gel sachets too. I’ll look up name tomorrow.
Mine got better in about 3 days xx
Rosie H same thing happened to me - it’s imroving though ! Managed 2 glasses on Sunday.
Evening all.
So I spoke to soon! After a great day yesterday this afternoon saw me spike a temperature of 38.7 and guess where I am right now - you got it - hospital on intravenous antibiotics. My blood count was really low so as a matter of precaution they’ve brought me in. I have to admit to feeling 100% better now though to when I got into hospital! My little boy broke his heart when he left me tonight and it’s gong to break mine tomorrow when I tell him they want me to stay until Sunday ?. I feel absolutely devastated and all I am asking myself now is whether this is going to happen each time ?. Still a small price to pay to give me the years to see my boy grow up xxx
Thanks for the advice my lovelies. Just got off the phone to OOH Gp, gotta go get a script from chemist for some gel. Yeah they reckon oral thrush. I’ll admit it’s not horrendous…but everything just tastes yucky. Wanted to capitalise on the times I don’t feel sick to eat well - but it’s hard when everything tastes like cardboard!!!
Same here. I took my book, kindle, music, sweeties, magazine and cross stitch pattern!
If your cold capping take a warm blanket too.
Hello ladies
Hope you’re all doing well and have had good weekends so far. So I’m still on hospital ?. My temperature hasn’t dropped below 37.8 despite being pumped full of antibiotics! I’ve got to have a full blood count done this morning and if my white blood cells look like they are increasing they may prescribe me oral antibiotics and let me home, however, if they aren’t, I’m set for another night or two. I’ve got the most awful pains in my jaw and neck and I am convinced that my glands are swollen but no test has confirmed that. I’ve had a good old cry this morning as I feel as if I’m just not getting well despite being given all the meds. Only when I’m pumped full of paracetamol do I feel human! I’m now doubting myself about the rest of my treatment and wondering how I’m going to get through another 7 lots of chemo. Need to stay strong and a positive that’s how!!! ?
Here it is Tracey…def seems to be another Chemo thing. I hope you get out of there soon and back home to your little one…community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/52926?returnUrl=https://community.macmillan.org.uk/cancer_types/breast-cancer/f/38/t/52926
Fec are you doing better now?
Dealdoh how’s the leg?
Xxx
Tracey, sorry you are having such an awful time. I think about you all often, you are all so strong and are such a massive support. Thank you. Big hugs ? xx
Thanks RosieH. It’s incredible isn’t it how may different side effects there are! Without the aid of paracetamol at the moment I can’t even open my mouth to feed myself - it’s so painful ?. I’ve also just overhead someone saying room 23 won’t be leaving today so looks like it’s another lonely evening ?. Hey ho I know deep down it’s the best place to be. Hugs to you all xxx ?
Morning all ladies
I have popped in from the November thread just to turn the light at the end of your tunnel up a little bit brighter.
I have completed by 3 x FEC and so far I am 1 of 3 T down! And it does feel good!!
I had a bad time on my first FEC. Mainly with the nausea and the fatigue.
The nausea was the worst thing, got home from the unit at 3pm, started feeling nauseous at 5pm and throwing up at 7pm. It was sort of down hill from there.
It wasn’t until Day 6 that I got in touch with my unit to flag that the FEC had FEC’d me!! I was doing that very British thing of not wanting to be a nuisance and cause a fuss.
Literally 45 minutes after speaking to a doc I had a change of meds and was beginning to feel better.
So my one piece of advice would be sing out loud and strong if you don’t feel right. It is so much easier for the units to deal with a small problem, than a bigger one further down the line.
The fatigue wiped me out for days. I was getting up but that was about it.
But what I can say is that as you ‘learn’ your own side effects and the meds to deal with them, subsequent rounds become easier. Honestly!!
Staying well is a big thing. I have been lucky in that I can live alone and work from home so have pretty much isolated myself save for a few select individuals, but I didn’t see my OH for 34 days at the beginning when he got the dreaded flu virus!!
Vick - First Defence is a good tool, if you are going to be mixing in big crowds, use if as a precautionary rather than after the event. It will kill alot of the bugs before they take home.
I was dreading my first T - it was like starting again, all new side effects and not knowing how I was going to cope with it.
But fingers crossed, it hasn’t been as bad as it could have been. And currently at Day 11 and feel ‘normal’. Just 2 more cycles to go!
I will apologise, I haven’t read your whole thread but a couple of other tips for you if you havent already had them.
If you are having the GSF injections, taking Clarityn whilst having the injections pretty much wipes out the majority of the very nasty pains you can get with them. This has been endorsed by my ONC and she is now prescribing them for me.
Udderley cream with extra urea - designed for cows… perfect for chemo skin! I was sceptical but brilliant for the hands and feet.
Look Good Feel Better sessions - definitely get booked in. There might be a wait, mine is going to be a week after my final session but it will give you a lift and you get lots of top quality goodies! What’s not to like.
Take up the offer of any complementary therapies that your trusts offers… again, anything that gives us ladies a positive experience has got to be a good thing. I was offered a healer. Not something I would ordinarily try but it was a great session and I have another 5 to look forward to.
And finally if something is on your mind, then ask. We have enough going on without dwelling on things.
I quite often pop on threads infront of mine to ask questions about things that are bothering me - we are all here for each other and will do everything we can to hold hands to get over the finishing line.
hope Sunday is being kind to you all - any questions, just send them my way
Lesley
x
Thankyou Sue and Lesley. Just what I needed to read today. Day 6 on TCH and struggling with sore mouth, headache and fatigue. Feeling bad for my dd’s (6yrs and 11yrs) cos I’ve bearly been able to hold a conversation with them this weekend. Trying my best to keep strong, but today is not a good day.
Hello,
I’m new to the forum but am starting my chemo on Tuesday, eek. I think it’s 3 rounds of EC (no F for me, hope that’s a blessing!?), then 3 of T. I’ll be having Herceptin infusions after that so 18 rounds all up!
I’ve been reading through the thread and made a shopping list of things I might need so thank you everyone for the info.
It will be good to keep in contact on here with others going through the same thing, is this the only January Starters thread?
Cheers,
Amy
Hi ladies. Just popped in from Oct thread. I had my last T on Friday. I wanted to let you know that you can get through this tho it might not feel like it sometimes. I had a stay in hospital after my 2nd FEC but have been ok since. I can’t add much more to what Lesley has said but if there’s anything specific let me know or pop onto the Oct thread and I’m sure someone can help.
Cassie x
also ladies forgotten to mention, although I am very positive and upbeat at the moment and have been thru most of my chemo to date … there have been days/moments/times when I wanted to screw, leave me alone, I can’t do this!!!
Us November ladies were discussing on Friday to give in to your emotions. There is a big expectation that we will be strong and get thru this, but it’s ok not to be strong, to be the one that needs a hug.
I understand how difficult if must be when you have people around you that you love that you try to protect from the worst of what is happening, but sometimes it’s good to let yourself be looked after and say today isn’t a good day … I need you!
PM anytime or pop on November if you want anything!!
Thanks Sue and Aliand 
Yes I did a clean up today in preparation for possibly being out of action for a while come Tues. I’m quite lucky that I only have 1 small child (I knew that was a wise decision, lol) and my OH is really good round the house and does all our dinners anyway so it’ll probably only be my work that’ll miss me?!
I’ve gone for an implantable port since I’m going to be having so many cycles, first will have to be canella tho ?
Amy x
Hello January 2018 cohort,
I’m from the January 2017 thread. We got so much amazing support from each other that we started up a Facebook group round about when most of us were finishing our radiotherapy last summer. Recently some of us were wondering about you and how you’re getting on. I said I would come on here to send you a message of support from your ‘sisters’ who are one year further on. We are all doing so much now - a year makes a huge difference.
I know that dark, bleak January is not the kindest month to be embarking on chemo ( is any?) but I hope it will reassure you to know that there is definitely light at the end of the tunnel, and as the months go on it will get steadily brighter. I likened the experience to climbing out of a deep, dark well - but you will get there.
My advice is: keep posting on here - you will really help each other with advice, tips, support and encouragement; keep a side effects diary - it helps your medical team, and it reminds you of what to expect; accept all offers of help going, especially from the brilliant charities that offer so much - BCC, Maggies, the Haven, Mulberry, Look Good Feel Better, and more.
Sending you lots of love and support. Thinking of you.
Robin x
Hi January ladies, I’m shi from Oct 2017 thread. Just remember how amazing and ???you all aware, you will get each other safely through this, it’ll take 
???and plenty of ???also you can see if your onc’s will lower your chemo doses both on fec and on t. On the t if whike they are giving it you, you go hot and chest tightens, let the nurses know immediately so they can stop infusion, if your pee burns without them above 37.5 rapid response it, it’ll be a uti and antibiotics are required. If you get thrush mouth or down below get fluconzole from onc, don’t get fobbed off with drops. Best antisickness meds akynzeo and metoclopramide, get 2-3 litres of fluids in everyday. When on t use udderly cream with added urea, get from amazon as hands and feet will get really dry, either paint fingernails and toenails black to stop uv light getting at the nails it’ll preserve your nails also some ladies use some uv blocker nailpaint again for amazon I think, keep cuticles we’ll moisturised and wear gloves for housework. Silk pillowcase is kinder on hair when it goes and for when it’s coming back, hope that helps a bit ladies, you can do this, hang onto each other and keep ???the Oct thread is here for you if you need us, pop over and leave a message if you need us. ??
shi xx
Shocked, rapid response that reaction on your recon boob, my trust advised it could be reaction to the chemo, best to make a 2 minute call and be safe darling ??shi xx
All the best for Tuesday Shocked. I hope your rash sorts itself out, last thing you need 2 days pre-treatment! ?
Hi Dealdoh, i am from Sept thread and the pain from GCSF made me cry too! I ended up in hospital after first fec, due to gcsf pain as i didnt have a clue what it was. I found the best way to deal with it was 1xco codamol with 1 paracetamol then 3 hpurs later 2 x ibuprofen. Repeat this to keep the pain at bay. Take laxative powders to help go the loo and omeprazole for heartburn. Good luck and hope it improvrz xx
A loratadine antihistamine and Epsom salt baths help with the bone pains ladies ??shocked, sorry I thought you had already started, ??thumbs up for you. Dealdoh, keep ???you get ticking the chemos off, I kept a post-it next to kettle and ticked them off as I completed them with a big note to ring the bell against the last one, hope your trust had a bell for you to ring when you complete. Also it might help you all to give your thread a journey, us from Oct have our ?the nov girls have a ?and when anyone has a delay we call it a 
?stop and then we all make sure each other safely back on board, we’ve uploaded tunes to help party through the steroids and also a lot of online steroid induced shopping (you can’t help it, it just happens) ??there is a lot of love, support, kindness and compassion on these forums, you will have people cheering you on 24/7 and off load to your hearts content, hair issues, botty issues, anything, you support each other with everything believe me, our Oct thread has covered bum buttering and everything ???shi xx