Ps Silly Whatsit, the whole reason I started to write this was to give you all a laugh, I’m laying in bed with my sparsely covered bald head covered in castor oil & a disposable shower hat on, allegedly it encourages hair growth, got to keep on for two hours… I’ll keep you posted??? (& that should be wine not wind, although…)
has anyone any tips for diarhea and stomach pains… and when will my taste come back … i have no interest in food at all
Hi fairy! Tips for diarrhoea: take imodium if your chemo nurses say it’s ok; they are usually happy with it. Avoid fruit, veg, high fibre, in fact almost any healthy food! Stick to mainly bland carbs like boiled or mashed spuds, white bread, rice etc . Eggs (hard boiled) are good. Custard! The problem is to make it taste of anything, you don’t want too much spice as this can irritate the gut. Just try and eat a little of whatever you can. Above all, drink as much as possible. Water, weak squash, watered down pineapple or apple juice, but probably avoid lemon and orange.
I am now on day 11 of the cycle, and my taste buds are getting back to normal. If it’s like last time, in another couple of days they’ll be almost back to normal.
Kimi, you gave me a good laugh! Even more because I misread it at first and thought you had a parsley covered head. Well, that could be nature’s answer to the wig problem!
Crikey, not sure parsley would look good, although it would cover bald head! X
Well baby update first ladies! After a very long and difficult birth little Ella Charlotte arrived at 6.15am weighing in at 6llb 8oz not bad for a 10 day early baby x it was the most beautiful thing I have experienced ever watching her arrival x the the floodgates opened up could stop crying for around 20mins!
Skipped into chemo the disaster strikes.
Not even 5 mins into infusion became extremely unwell, all face swelling up, airways then a pressure in my head with a feeling it was going to explode with flashing silver lights felt my sf going couldn’t breath the started to fit, lucky for my the heard my friend shouting help with seconds while team around me whipped out drugs gave an antidote put me on a trolley and toik me to emergency room next door on fluids.
Explanation was can’t continue treatment regime blood pressure was dangerously high hence fits and head pressure, anphelctic shock, can’t ever have doxetaxol again! Said it could kill me, explained immun system cells were fighting it probably from last episode of mild reactions to it following last infusion then nuets carry on x
I’m so bloody angry with my body for doing this to me I. Scared as a triple negative lady with no options for hormone therapy what will hawif I get a recurrence us another thing I’m curious about is have to wait for onc app as he is till on hols, he won’t let his registrars deal with me so I have be put on hold apperntly they with holda MDT meeting on his return to discuss options if a replacement drug can be used for last two i fusions or whether my body has had enough will all depend on a scan x I’m furious as now I’m on hold my treatment will go on longer though today would be start if end for me i want some answers and can’t have them I’m sick of this bloody **bleep**ty illness and a it throws at us was on such a high just wanted to get done so I could finally move on but no, goal posts being move again which means this could go on December before I can start my rads 
sorry for the rant I’m just feel so deflated I hate being a failure feel like such a tool atm x
Anyway girls back to baby she is absolutely beautiful and one silver lining in this very black cloud is I can do some bonding in my hopefully not too long little holiday x
Angela pleased your having a good time on treatment Tatanya pleased your home a mind feeling better Kimi thanks for best wishes fairy hope you get your trots sorted!. Please ladies I hope I haven’t frightened any of you was not my intention I just wanted to make you aware that these things take seconds to creep in and to be aware I’d you start feeling strange act quickly they did say it was quit rare for such a bad reaction so please don’t panic x
Mishy, sorry to hear you had such a bad time, thank goodness they reacted quickly. Of course it’s very worrying, but they will have other options so try not to see it as all bleak. while you wait for them to decide what the options are, your body can get some strength back. And most importantly, you can enjoy little Ella Charlotte – what a lovely name, by the way!
Firstly congratulations on the birth of Ella, how lovely for you all & I’m so glad you were there for her arrival, hope Mum is doing well too. I’m so sorry to hear of the other part of your day, what a bloody nightmare, but get strong & well, wait for your Oncologist to get back, they must have experienced this before, we are all warned of these possible side effects before they administer the first ‘T’ & why they put it in slowly & we are regularly asked if we feel ok during treatment. You are far from a tool, you are a brave & courageous lady, you have some recovery time now (and lots of Ella cuddling time) & then you can discuss an alternative with the Oncologist, may not be finished as quickly as you hoped, but hang on in there. Xx
Morning ladies feeling a little better this morning reflecting in yesterday’s dramatic reaction I know they can let me have any more T but feel I do want to try something else if I can this new hurdle hS thrown me as always wanted to see through All treatment offered I think it’s recurrence that’s scaring me the most being TN diagnosed I know they removed it but was grade three and although clear margins I did have a macromestases in my sentinel node I know it was only one node effected but I think after Ella was born still gushing BTW 
I felt like right come on Michele let’s get this. B…H finished and get my life back on track K for this little one I think losing my dad to cancer so quickly has frightened the crap out of me seeing what cancer can do first hand if not caught in time it’s definitely really shook me up that I might get a recurrence without all planned treatment I think to settle my nerves in meantime I’m going to ring my BC nurse till I can see Inc I know he will put something in place for me just need reassurance for now, hope you are well today going to hospital to see baby for another cuddle I need it x my daughter is fine just tired but loving being good a mam she looks so happy so have decided not to tell her about reaction yest just going to say cancelled due to bloods little white lie but not going to burst her bubble for anything loving being called Granma too xx
Apologies for all the typo errors in my last couple of posts I look illiterate! Flipping predictive text haha should check before I click post super pleased to here you are all doing well welt and my fellow T drama ladies are in the mend! Isn’t it funny how the human body can react so differently for some of us I think that is what makes you feel so deflated when things go wrong I’m not exactly over the hill but some older people at the day unit seem to have breezed through their treatments so just shows you, apologies for such a horrible negative post yesterday not want anyone wants to read when going through treatment I promise all posts from now on will be very upbeat even if I fall behind you in terms of treatment times will stay on here fellow chemo buddies mind u might have to bother the August ladies to been popping into May to see if any of them experienced similar no luck so far but I know a few of them suffered there own T dramas! Angela go girl you have had great results on your regime so hopefully you will fly through rads I’m def having those regardless sk for now going to enjoy my little chemo break lots of spoiling Grandaughter time then onwards and upwards for next part whatever it is got to official enjoy wearing my big over size granny knickers big girl pants now and look forward positively like you all said yesterday and have faith in my onc, he was entitled to his holiday after all haha!
Morning Michelle and congratulations. ???
Enjoy your cuddles today and make the most of this break between treatments. There will be a next treatment for you, I’m sure Your onco will have a plan. If he didnt, then I’m sure he’d of just let you see one of his registrars. It’s because he’ll have a plan that he needs to see you personally. They’ll of dealt with this before.
I can totally understand how frustrated you must feel though. Once we’ve accepted a plan of treatments for us, we grit our teeth and count down the days for it to be over. Anything that puts a spanner in the works is obviously hard for us to take.
I know what you mean about wanting the maximum treatment available as well. I asked if there was any chance my oncologist could increase T as I was worried about still having periods when everyone else has stopped. ? he says he’d never been asked that before, and no, he couldn’t.
There will be another plan in place for you soon and when you say goodbye (or worse) to 2017 I’m sure your treatment will be over and you’ll be able to move on from this forever.
Ella Charlotte will be keeping you way to busy to be worrying about changes in the treatment you’ve had.
My daughter Charlotte is 23 tomorrow. She’s as lovely as her name xxx
I hope everyone else is doing okay today. I’m good apart from the furry mouth. Another treat from T was that my hearing was odd yesterday. It felt like I was going through a tunnel all morning. Seems to be normal again now. Chemo is like a box of rotten chocolates, you never know what you’re going to get. ? x
Michelle, please never apologise for having a rant. You bloody deserved it. We all NEED to offload sometimes. Sending you a big hug. Xxx
Good Morning Grandma. Don’t you worry about your post or predictive text (usually gives me a smile), that is surely what it is for, we don’t want to bother our loved ones, so we can put our feelings down on this forum & look from reassurance from the other “club” members!! This whole thing scares the crap out of me if I’m honest, like you I have a grade 3 diagnosis with 1/2 node involvment & as they only took that amount of nodes, how do I know it’s not in others? & the thought of having to do it again??I’m putting my faith in the fact that this horrible chemo does it’s stuff & mops up anything left, (my nurses told me there are over 200 different types) but like you have days where I worry myself silly. On a sensible day I tell myself these Specialists know their stuff, they’ve seen it all before & we have to trust them & I’m sure like me you have friends/acquaintances who have been there, done it & “got the t-shirt”. We certainly won’t abandon you, even if you are a couple of weeks behind now, keep going, go & have some fun with your beautiful Ella Charlotte (that is such a lovely name), they will sort it. Xxx
Congratulations Grandma Michelle! My niece is called Ella. It’s a lovely name. Glad your daughter is doing well too. Sorry to hear about your reaction though. I’m grade 3 TN too with lymphs and we’ve had slightly different chemo to each other- I did weekly Paclitaxel and Carboplatin initially so that might be an option? Obvs your oncologist knows best.
I was due round 5 today but my bloods came back low (I’m on two kinds of antibiotics for yet another infection) so sent home and told to come back in a week. The EC has so far been a pain in the arse! If you’ll pardon my French. Two infections, hair starting to fall out thick and fast despite the cold cap, and my neuts have barely stayed at 1. Sorry for the rant ladies, but like Michelle I got it into my my head that once today was over the end was in sight. Given how prone to infections I’ve been after just one round I’m getting the feeling that the last two might not be much better.
I’ll end on a positive though. Saw my oncologist last week and the tumors “have shrunk to barely anything” so the tax/carbo did a cracking job. When they did the biopsy in May they each measured 2.8cm and now I can’t even feel them ?
Thank you ladies for all your kind words and congratulations baby came home today and she is just well what can I say the best medicine when you feel blah! Missa we aren’t having much luck are we!!! Quick update got a phone call from oncology Secretary she had an email and has given me an emergency slot with him on Monday at end of his clinic on his first day back! Have a feeling he might not be getting home on time I have lots of questions! But they can all wait feeling much better now x I just want to enjoy the rest of my week then deal with the whatevers once I have seen doc!!!
Bye for now girls and again thank you xxx
I’ve ended up in hospital again with temp and infection of source unknown. Luckily not neutropenic, so on IV antibiotics and hoping to go home later today or tomorrow. I did feel very rough yesterday with shivers, feinting and nausea. Also got a cough. Wondering if it’s anything to do with flu jab which I had last Wednesday and then chemo on Friday?
Sorry your in hospital again, it’s awful but I know after speaking to the doctor on Monday after my episode that Doxetaxol is the one where you seem to be more at risk with Temps infections etc, I was fine with my flu jab had it the Thursday before but it does make you think! Glad you are not Neutropenic though or you may have had to have treatment suspended x hope you are better soon and they find the source of infection chemo is def the gift that keeps on giving! Blah
Sorry to hear you’re in hospital again Carole. ?Hopefully you’re not in there too long and everything is good to go for your next infusion.
Chemo dramas will be behind us soon. Roll on.
I’ve got a bit of a sore throat and lots of phlegm today. I had this the week after my last T as well so I’m hoping it’s just an SE. Off out for my daughter’s birthday meal tonight. I have to pop out and pick up a cake first. I think I’ll need a bottle of Powerade. Feel knackered today and have managed to put 4lbs on, so feel just generally yuck. I blame it on the only thing that tastes of anything at the minute; desserts. I think I’ll skip that course tonight.
Hope everything else is doing okay. X
Carole, sorry you’ve been struck down again, these unscheduled mini-breaks in hospital are such a pain. Hope they get you sorted out soon, with luck they might send you home with oral antibiotics soon.
Mishy, good luck with the oncologist!
Feelthefear, I have had sore throat/snuffles/hoarseness round about day 7-10 of each T cycle and it came to nothing, hope it’s the same for you! Enjoy your desserts, it’s not your fault if that’s the only thing you can taste, you’ll soon get rid of the extra weight when you get back to normal activities.
Good luck everyone who has treatment this week!
Just seen another dr. Going to do bloods again and if ok and temp stays down they’ll let me home late afternoon on oral antibiotics. Asked about flu jab and he said it possibly could be that with my reduced immunity.
This Tax is definitely more challenging than FEC and even without infection all my joints and bones hurt. I also seem to have put a few pounds back on with Tax despite not eating that much. Really had enough of chemo now. Thank God I’ve only got one more x