Oh Carole so sorry you are poorly again this bloody chemo thing ? I wish you the speediest of recovery for you I feel for you but I’d rather be put right than not, not long to go now xxx
Morning ladies.
Absolute rubbish that you’re back in hospital Carole. Hopefully they can deal with it quickly this time.
Michelle, thanks for sharing your positive energy. ?
You sound very loved up. Good news that the SEs don’t seem too bad.
Hope everyone else is doing okay.
I’m sitting on a bucket drinking take away coffee in what used to be our utility room, surrounded by diggers and mud. Hoping the builders don’t get rained off today. ?
My SEs are the same as the last two T. Horrible mouth, achey legs and generally feeling off my head.
So happy that this is the last time. Hoping I don’t get the chesty cough everyone around me seems to have at the minute. Feeling upbeat. X
Hi
Just to let you know that I got out of hospital yesterday evening. The worry is that I have a blood clot in my lung (PE) so waiting for CT on Monday to check this out or any other reason for coughing and being short of breath.
They have given me injections to break up blood clots (like the ones you have post surgery in hospital but stronger dose) and Dexamethasone to help with inflammation and coughing, so I will be climbing the walls soon from steroids. At the moment it’s hard to just get out of bed without coughing to the point of nearly blacking out.
I feel and look so old and frail and just want to get well enough to have my final chemo.
FtF I don’t know how you cope with your house in disarray. It will be lovely when it’s all done xx
Oh Carole, that must be so worrying and unpleasant. I know the blood thinning drugs are very effective, a friend of mine had a clot problem and the treatment worked very quickly. Is there anything you can take meanwhile for the cough? They don’t sound very certain whether it’s a clot or just a random cough, but either way it’s miserable for you. Hope you soon feel better, sending you lots of hugs and sunshine.
Feelthefear, well done for sounding so upbeat when surrounded by chaos! Hope the se’s stay well behaved.
I’m looking forward to the day when food tastes normal. Surely not long now?
Oh Angela great to hear you enjoying positive vibes!!! Love how even the builders isn’t damping your mood down ? you have done so well through your chemo and really managing your SE well
Carole glad your home now and hope your CT goes well I will cross everything for you
Missa hoping you are now OK too! Eeeh me and you are nearly at last one too never been so excited to have another chemo as I am but it just means nearly there!!
This chemo has been so kind compared to the other ones even the pains I got were nothing I couldn’t cope with defeat think the positive vibes from having a new little girl in my life have spurred me on and strangely I feel like my dad is with me in spirit somehow saying come on Michele not long let’s get this thing done and dusted ?
Kimi hope you are doing OK and Tatanya you too are hanging on in there
What a fab bunch of strong ladies we all are I never thought I had it in me! Reckon I could take just about anything on (but no thank you all the same!!!) ??
Michele, it’s just lovely that the se’s are being kinder to you this time, you’ve had more than your fair share so far. How wonderful that your gorgeous little Ella is giving you such great positive vibes even though she’s so tiny! And your dad would be so proud of you, it’s great that you feel he’s still rooting for you. It’s really nice reading this thread and finding so many positive thoughts-- thank you everyone!
Isn’t it tatanya, I’m so pleased that we are all nearly there it’s been a long journey for us all x
Yes Tatyana, a bit of a worry but chemo was never meant to be easy. The “bonus” is that I’m having an early CT of my chest done so will see what the little nodule in my lung is doing. This is the bit that has worried me from the start and dreading getting results for.
Tatyana, for me I think the grotty mouth has been the worst thing. I’m stuffing my face as I never feel satisfied. Everything tastes of plastic cheese.
Just ate a whole packet of black jack chews and they were actually nice. May need to stock up.
Carole, you’ll feel great once you have the ct out of the way. Get rid of any niggly doubts. I’m waiting for my appointment to drop through the letterbox.
The builders didn’t arrive. Apparently there’s nowhere to get rid of mud on a Saturday. We have one clean room to hide in. We started this process before bc came and bit me and there’s no way I was going to halt our plans for the future because of it. The house was dying when we bought it, and it seems I would of been too if I didn’t go to the docs. The way I see it, we’re being reborn together. ?
Who’d have thought you could live on a building site during chemo and not get any infections. ?
Well, I’m back on the bucket but about to pour a prosecco instead of having another coffee. Only for medicinal purposes of course. Take the edge off the SE’s. ?
FtF that’s a great way of looking at it "being reborn together ". I like that. But two of the most stressful things at the same time- phew!
Haha yes Carole. It’s definitely been a rocky ride. I don’t think I’m as stressed about the work as I would of been before the bc though. Helps put things into perspective (don’t sweat the small stuff)
After months of reading all of our posts on this thread, I can definitely say we are all amazing, strong women who can cope with anything. I’m so proud of us all. And that’s before the prosecco kicks in. ?
Can just picture it sitting in your building site with a prosecco on your hand haha well done you!!!
Yes bc has a way of putting things into perspective including friendships jobs relationships etc life is so precious and shouldn’t be wasted away on things or people that are not really important to you I totally get the being reborn together thing like me with the new baby!!!
Morning Ladies. Glad most of us seem to be doing ok, last chemo Weds, Thursday & Friday I wasn’t too bad, and then yesterday it hit me like a brick, that’ll teach me to count my chickens too early! Felt faint all day and sick last night, on sofa now aching and feeling very low and sorry for myself. Think I’m panicking about radiotherapy as well, have put it to back of my mind, but got CT scan & assessment Friday, so bit more real now.
Good luck wishes & vibes for CT scan tomorrow Carole, this cough/ breathless thing has been going on hasn’t it, I’m still coughing and have what I can only describe as a claggy throat, so hopefully all will be fine for you and it’s just taking it’s time, & you can finish those steroids ASAP.
Angela, your posts make me smile, I have visions of you on the bucket with your coffee, hopefully all this building work means not much housework? You and your house will most certainly be re-born and something to focus on. Cheers to the Prosecco.
So glad you’re feeling better Michelle & you’ve got that baby to cheer you up, hopefully things will smooth out for you now.
Oh Tatyana, I’m so with you and the taste thing, it is disgusting isn’t it? For the first time I actually don’t want to eat anymore, I’m sick of everything tasting slimy and what I can only describe as something from the bottom of a bin!
Sorry to hear you’re feeling rough Kimi. I know what you mean about starting to panic about the other hoops we have to jump through. Just remember, you’ve already battled the mothership. You’ll cope with anything now.
I’ve got a cold as well. Coughing up plenty of phlegm. Yuk.
How are you today Carole?
I’m getting ready to go out for a late lunch while my husband finishes off making the temporary shower.
I’m going to Northumberland again on Tuesday to stay in a caravan for a week. We have friends up there who are off for the kids holidays, so it should be fun. Big Halloween party to look forward to Saturday. I’ve bought a pumpkin outfit. Hubby didn’t even laugh when I tried it on. Just said I look ridiculous. ??
Everyone else cried with laughing though, so it’ll be worth it to make people smile instead of worry for a change. X
Ftf, I’m chortling at the thought of your pumpkin outfit! Have a great time in Northumberland with lots of laughs, it’s what we all need.
I’m missing the granddaughter’s third birthday cum Halloween party next weekend, it’s a long way to go and we decided a room full of toddlers and their hangers-on is probably not the best place for avoiding infections. But at least there’s Skype and there will be loads of video later, so I won’t miss out on the giggles!
Kimi, sorry that old brick hit you, it happens every time but it’s never predictable. How does that work? Hope you soon turn the corner. I’m on the uphill path now, but boy is it uphill. Had a weepy day yesterday for absolutely no reason (except cancer! ha!) but better today, had a half-hour stroll in the sun and a coffee in a new local cafe which turned out to be lovely, so they’ll be seeing me again!
What a shame you’re going to miss the party tatyana. Thank goodness for modern technology. Three year olds are some of my very favourite people but they do tend to be forever snotty and runny nosed. ?
I’ve definitely caught my grandson’s cold. I don’t feel poorly though, so I’m sure I’ll be fine. We’ll make up for all of the missed events next year.
X
Thank you Angela you’re right, just get this next bit done and hopefully all will be well.
My Lovely friend came round this afternoon, with wine, (struggled with that today), & cheered me up, people are so lovely and try and re-assure, you don’t realise how worrying and stressful all this is do you until you actually experience it do you?
Well Angela, the pumpkin outfit conjures up all sorts of images, will we see a photo? Hope your caravan is cosy and the wind settles down, or we may see you here in Sussex!! Hope you have fun.
Sorry your having to miss your Grandaughters birthday party Tatyana, but I think you’re right it’s probably full of their lovely little germs and safest to watch on a video.
Here’s to a good week everyone. Xxx
Kimi sorry your feeling rough, it’s bloody awful when you feel like that I know rads next but I have heard they are easy compared to chemo, so fingers crossed not on now though, Angela have a lovely time at the caravan sounds good fun!!!
Tatanya yeah it’s a shame to miss the party but you’ve had problems before and don’t want to risk anything this time!
This avoiding germs is tedious isn’t it but I think asyou know neutropenic is not good not long now eh
Carole hope cough is clearing up and your cat scan is normal
How’s Missa hope you are well I’m not doing bad this new chemo I’m on is definitely a bit better recently SE than the T I wonder if it’s because it’s expensive hahahaha my chemo nurse probs shouldn’t have told me that!!!
Had my walk out with pram this afternoon introduced Ella to Izzy my lab, she was really good we took them both for a walk together I had pram and Oh had the dog it was a lovely autumn afternoon ???
Bye for now everyone stay well x
Thanks everyone for your good wishes. I seem to be improving slowly. Perhaps meds are working. Another steroid wide awake night coming.
Will post again when I get CT results x