July 2017

Hi tatyana, glad you got some rest. Just taking it steady and trying to find some old fashion fairy lights, I am not paying £20 quid for old fashion fairy light when you used to get a box of them for a fiver, just fancy some of those coloured ones for the house this year like old fashion Christmas ?:sparkles:?:sparkles:?shi xx

Shi I know exactly what you mean but I don’t know where you might find them! I hope you will also have a real tree and plenty of Holly. We need a new tree, we usually get a potgrown one and after Christmas it lives in a pot outside till next year. We can usually keep it going for about five years before it gets too big. But the current one got very straggly and lost too many leaves so we need to start again!

Artificial prelit trees this year, germ fobic till after chemo. They are ex next display trees got them in jan sales when they were selling off for £8 each, bargain, love it when that happens more satisfaction if you can get things and then they are on sale too ???:sparkles::heart::sparkles:?shi xx

Yes, great bargain, and very sensible as you are still in chemo land! ???

Well done Tatyana, sounds as though you’re getting along really well & you’ve trained Charlie now!! Don’t forget to rest though. Aah Christmas, do you think we could push it back a couple of months? Going shopping with friends after RT today, no-one knows what they want, maybe I’ll treat myself to a dress instead!!! Glad everyone is doing ok, have a good week. Xxx

Morning everyone hope you all well today Tatanya pleased to see you got Charlie sorted and it’s not keeping you awake
Have any if you got sore eyes mine are really dry and sore one is itching too I got some drops off the doc but not really working think I might have to go back x
Good luck today Angela you start your rads x

Angela good luck with rads, it’s not a small thing, but trust me, it’s a breeze compared to chemo!

Rainy morning. Charlie didn’t disturb me, but it wasn’t a great night. Dad phoned at 11pm, yet another health crisis with mom, my oh forbade me to get out of bed and went straight round there himself to hold dad’s hand until the after hours medics arrived. They diagnosed another UTI and gave her antibiotics. Hubby got home at 2.30 . The problem isn’t solved because dad is basically not coping anymore but is refusing any more help. So we swing from one crisis to the next, heart in mouth every time the phone rings. I’m desperately sorry for them both, but also I’d like a bit of peace to concentrate on recovery from surgery and whatever comes next. And hubby deserves a bit of a break, he shouldn’t be having to look after my parents as well as me!

Hi tatyana, glad charlie behaved. Sorry to hear about your mum, hope the antibiotics kick in soon for her and love to both your mum and dad and you :heart::heart::heart::heart:???shi xx

Thank you Shi! Things seem to be settling down,vl fingers crossed.
Today’s big news: post-op bowel movement achieved without pinecone syndrome! Yes I know, too much information, but I had to tell somebody! The medjool dates are doing their stuff, and they’re yummy, too!

Hi tatyana, fingers crossed for your mum. And celebrations ???you’ve not had backward pine cone ??so glad you’ve avoided that little post op surprise ???:sparkles::sparkles:shi xx

Afternoon ladies.
As I haven’t had the chance to logon for a while I’ve been reading through your posts to try and catch up.
Tatyana, it’s brilliant that your op is over and you’re home recovering. ?? you’re well on your way down this bc road now. It great that you’re drain free. That was the worst thing for me. I hated it. I was relieved when it started to leak and they took it out.

Great you’ve had your scan now Michelle. Any idea when you start? My appointment today was at 2 but they told me to get there early. I got there at 1, but wasn’t seen until 2.15 so it was 3.15 before we left. The actual treatment was no problem. They’ve given me early morning appointments as well so I’m very happy.
How are you both doing Carole and kimi? Any sore skin yet? I’ve been advised to drink a lot of water but we don’t even have a loo right now so I’m not sure about that. ?? we’re using a pot during the night then off to my mams to use her loo at 6am every morning. It’s awful.
Shi, I too would like some coloured lights this year. I’m so bored of trees having only two colours of decorations as well. Really hoping the house is ready for xmas. We’ve even been out and bought a huge musical, moving, light up fairground from the Range ready to put on our new sideboard. We only need a miracle to make it happen before Xmas.

Miss a, brilliant news about the boob. I hope we don’t have to spend the rest of our lives worrying about every niggle. I really hope it wears off as time goes on. ?

P.s. Tatyana, sorry to hear your Mam isn’t doing so well. And I totally understand just wanting some peace to get yourself back on your feet. Having to look after and worry about elderly relatives can be exhausting. X

Hi FtF
I’m on day 6 of rads and getting a bit sore. My “boob” has got a huge blister on it tonight. Don’t think I can wear a bra much longer, which is going to look silly as I only have one boob if I can’t wear prosthesis.
I’ve got 9 more rads to go ?

Carole, that blister sounds horrid. I do sympathize about the bra thing, I’m still too sore from surgery to wear mine for more than an hour or two, I’m trying to work my way up, but meanwhile relying on floaty scarves in a futile attempt to disguise the lopsidedness. As I’m also wearing scarves on my head in preference to my wig, which looks ok but never really feels comfy… I’ve learned a whole lot about how to tie and drape scarves!

I’m a scarf fan too, but don’t like to wear them on neck and head at same time. Never wear my wig, too insecure and uncomfortable. Gone back to a softee with bra today so lopsided but not just uni-tit.
Last few days my little remaining hair, about 10% left seems to be making an exit again. Nothing much growing yet a month on from chemo ?

Me too, now 7 weeks and not a hair on my head except the baby fluff I’ve had all through. And not an eyebrow or eyelash or any hair anywhere! There was a girl on the ward who is only a week ahead of me but had a lovely head of short curly hair already, not like she had before but you could certainly go out in it, it looked really cool! I suppose we all vary, and I’m in my 60s so maybe it’s slower.

Hello Lovely Ladies.
I’m sorry to hear about your Mum, Tatyana, what a worry for you, but what a lovely OH to go & be with your Dad, my husband has been a star looking after me & does lovely kind things, & puts up with my tears & tantrums!! Congratulations on solving “pine cone” problem!! What a relief!!
Can’t you get the coloured fairy lights in Poundland Shi, I agree about the price of them, I saw some I liked in TheWhite Company & when I asked how much was told £140, even with 20% off, really???
Hope your eyes have improved Michelle, I have the occasional day with them watering & itchy, scared of rubbing them in case few eyelashes I have left fall out, think the eye drops I got work.
RT going ok so far, no.13 of 20 tomorrow, thank you Angela, I’m trying to drink plenty & moisturising night & morning, don’t envy you peeing in a pot when they want you to drink lots, hope your house is ready for Christmas & you get to put your new deccie in the sideboard & even more get a working loo soon. Had yesterday off work & went Xmas shopping with friends, no-one will give me any ideas, but still
managed to spend enough!
Hope that blister soon gets better Carole, that sounds sore bless you, probably best without a bra to rub it further, but can see it won’t be that easy for you.
I have got a bit of hair, but not enough to walk about without the wig, it’s strange how we all have varying amounts, I’m not enjoying wearing my wig, but can’t do without it yet & cant do scarf thing, best off at home so I don’t have to wear anything on my head!
Have a good rest of week all of you. Xxxx

Kimi hi, lovely to hear you sounding so upbeat! 13 out of 20, that’s nearly three-quarters done, wow! Finishing line in sight!
Mom is still having problems, we’re trying to sort out a respite stay in a care home so she and dad can both have a break knowing that she’s being cared for. But it’s not easy to sort anything out in a hurry, and meanwhile she’s very confused and distressed, dad’s not coping, and it’s pretty much a war zone. The GP, carers neighbours are all amazing, but we’re still in crisis with no end in sight. Hubby has been round there twice today, I went too the second time ( it’s a 40 minutes round trip and I can’t drive at the moment!), in response to panicky phone calls. Now hubby has gone to spend the night there because we don’t feel safe leaving them alone. He’s not happy leaving me alone in the house so soon after surgery, but it’s not practicable for me to sleep on the floor at mom and dad’s house, so all in all its the lesser of several evils.
Let’s hope we can sort something out soon. It’s bad for mom, bad for dad, bad for my recovery, and bad hubby’s blood pressure! Honestly he’s been a saint, I don’t know how I’d have got this far without him!
Sorry about the rant, it is genuinely a massive pleasure to hear you guys chatting about Christmas lights and know there’s a world out there just waiting for when we get through this!
Sleep well everyone,
Tanya.

Oh Tanya, that all sounds awful for you all. I hope you’ve someone from Social Services helping you sort Mum & Dad, especially as you aren’t able to do much at the moment, they should be a priority, but don’t suppose it works like that does it? Hope you manage to sort something out soon, & in the meantime, look after yourself. Xxx