July 2023 Chemo Starters

Hi @NikiR

Good to hear at least some of the neuropathy may be relieved. Pity your GP didn’t pick up on the carpal tunnel sooner though! You should be getting a date soon shouldn’t you, they said maybe end of May for the implant? And any idea how long to wait for the carpal tunnel op? :crossed_fingers::crossed_fingers::crossed_fingers:it’s not too long :crossed_fingers::crossed_fingers::crossed_fingers:

God can you believe it’s May ladies??!! On the 31st I’ll be a year since diagnosis :crazy_face:

Hope everyone is keeping well xx

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Hi @Hawketower

How are you doing now? Are you still working?

I called the hospital today as I still haven’t got a date for my implant replacement op, I was told I’m in the waiting list, it might be June but the can’t promise anything. :cry: I said that I was told it would be replaced three months after it was removed which would be middle of May. I was told they would make a note and discuss with the surgeon when they are allocating his appointment. I have a GP appointment on 15th to discuss the carpal tunnel, I’m just going to ask for a referral for the operation as the pain is still bad and painkillers are not helping, fingers crossed the wait isn’t too long. :crossed_fingers:t2:

I can’t believe it’s May already, hopefully we will have better weather this month, everything seems better when the sun is shining. I was one year from diagnosis on 11th April, I naively thought all treatment and surgery would be done and I’d be fully recovered by now, little did I know about the side effects of chemo and how long they can last.

Best wishes x

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Hi @NikiR

Sorry for the delayed response, if i don’t answer something the minute i read it then it goes onto a list of stuff to do. And you can guess how that goes :woman_facepalming:t3:
God you must be going demented waiting for this operation date :pleading_face: Have you heard any more since you last wrote? I do hope so :crossed_fingers:
I’m ok thanks, had my 5th Kadcyla on Thursday and have mostly been sleeping and resting instead of trying to do all the things.
:crossed_fingers::crossed_fingers::crossed_fingers::crossed_fingers::crossed_fingers: for a date for both your ops xx

Hi @Hawketower,

I know the feeling, I write a list so I don’t forget and then forget to look at the list :woman_facepalming:
Sleeping and resting is the best thing you can do, how many more Kadcyla do you have left?
I got a call on Saturday, my op is on 23rd May, I’m so pleased, when I called last week it sounded like it wasn’t going to happen until July. I just need to ask then to do the carpal tunnel while I’m down for my boob :rofl:
Take care, keep resting and sleeping x

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That’s fantastic news :heart: You must be so relieved! I’m really happy for you :grinning:

I’ve done 5 and the plan is 13, so 8 left :crazy_face:

Hi @Hawketower
How are you doing? I hope your treatment is going well and you’re getting plenty of rest.
It was one year on Saturday since my lumpectomy, little did I know that a year later I would be about to have my fourth breast surgery, fingers crossed this is the last one. :crossed_fingers:t2:
I seem to have been very busy recently and I’m feeling quite exhausted. I thought the fatigue had gone but I’m finding myself needing afternoon naps again. I’m sure you know that feeling with your treatment still ongoing.
Take care x

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Good luck for tomorrow @NikiR , I hope it goes well and you’re back on the mend soon xx

Thank you so much.
I hope you’re doing well x

Hi @NikiR

How are you doing? I hope the operation went ahead and went well?


Hi @Hawketower,
I’m doing really well, the operation went well and they were able to put a new implant in straight away. I came home the same day without a drain so all good.
How are you doing?
Niki x

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Home the same day?! Blimey they don’t hang about! How’ve you been since?

I’m ok thanks, a week out from chemo, headache and nausea have subsided but I’m so tired all the time. At this rate I’m not sure I’ll be able to stay awake till treatment ends :joy:

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Hi @Hawketower
I’ve been really good, much quicker recovery than the last two ops but definitely feeling the fatigue again.

You must be exhausted, I remember getting to the end of six rounds of chemo and feeling a huge amount of fatigue that lasted months. I really don’t know how you are dining it but I know you just have to get on with it. Listen to your body and sleep as much as you need to. Wishing you well with the rest of your treatment, thinking of you x

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Hi @NikiR

Good to hear you’re doing well. Have you had any word yet re the carpal tunnel op? You must be as sick of hospital as I am!

I can’t see an end to it tbh, October is so far away. Oh well :smirk:

Take care xx

Hi @Hawketower,

I really feel for you, it must be so hard :disappointed:

I know what you mean about being sick of hospitals, I feel like I’m making my way around as many departments as possible. I now have an appointment with Orthopaedics on 25th July for the carpal tunnel, just a telephone appointment then a 20 odd week wait for treatment :woman_facepalming: I’m still under plastics for my noobs and now being referred to haematology because my white blood count and neutrophils are low and still falling. :disappointed:
I’m also waiting for an MRI from neurology and a scan from dental radiology (wisdom tooth) I think I’ll feel a bit lost once my diary isn’t full of hospital appointments :rofl:

Good luck with your next treatment.
Take care x

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Hi @emsj,

I hope all was well with your mammogram results. I can’t believe how long you had to wait, I don’t think I’d cope.

Wishing you well x

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I’m doing well, I didn’t wait for the appt, I called after 10 days and asked the surgeons receptionist for the results, all ok, no evidence of disease😀. The appt with surgeon was a bit of an anticlimax, waited 2 hrs and saw the registrar instead, who said the same thing and that was it. It’s all a bit weird, especially as I have 2 more phesgo injections and the zometa infusions every 6 months for 3 years, but that is the oncologists area.
Obviously I’m hugely relieved the mammogram was ok!! I’m dealing with some minor stuff still, neuropathy in feet isn’t going away, not painful though like yours, but they do feel like they are on fire if I’m walking or driving a lot, and constant pins and needles in my toes, feels like I haven’t put my socks on right! Also I’m still tired, my heart isn’t working quite as well as it should because of the phesgo, but even so I do feel generally ok.

I hope you are doing well, I’ve been reading back through what I’ve missed, you’ve been through the wringer from the sounds of things so I really hope things are settling down now.
Seems like @hawketower, you’ve had a rough time too, I hope you are okay too.


Good lord it never ends does it!! I think you definitely get the Blue Peter badge for number of appointments!

Have a good weekend x

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Hi @Hawketower, how are you doing?

I can’t believe we are in July already, I’m now 16 months on from my diagnosis, my treatment is now all done, latest surgery is healing well but still really struggling with aches and pains.

You are another month closer to the end of your treatment, you’re getting there, I really hope you are coping with it okay.

Take care x

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Hi @NikiR :blush:

Great to hear your treatment is ended. How is the noob doing?

I’m plodding on. Chemo 8 this Thursday. I’m sleeping soooo much. Even a walk needs a nap afterwards. Doctor suggested I take multivitamins to deal with the fatigue :roll_eyes: Tamoxifen is giving me bastard hot flushes. But hey ho nothing else to do but carry on.

Lovely to hear from you x