Has anyone has their covid vaccination while going through treatment? I’m struggling to get hold of anyone who can tell me whether it will make me feel worse or not as I’m due for Doc 2 next week. Tempted to just hunker down and not see anyone for the next few weeks but my son works with children and I still have to go into hosp for line care etc.
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@emevers I’ve got mine (and flu) booked for Tue - just after bloods, then second doc/phesgo on Thu. I have a call with oncology tomorrow so am going to check they are happy with that. V keen to get my vaccinations with two kids at different schools!
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I’ve got the covid vax booked but it’s not until 18h oct, which is just before my last chemo. I haven’t heard anything about the flu vaccine yet. I’m assuming I got the letter for the vax as we are considered more vulnerable, I will double check with the onco team but I think it’s ok to get it.
I know covid has been going round quite a lot where I am (north wales) including the day service my son goes to, as well as all the usual cold viruses.
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Hi everyone
Day 5 of my first Phesgo Docetaxel cocktail. Blimey the all over random body pains really are a thing aren’t they! Lay in bed for a couple hours this morning before giving in and taking some co-codamol. I’ve got to say, my team have been very good at listening to what I say about the side effects and have kept trying new stuff until something works. Ever so grateful for that!
I’d an awful day Monday. The cooling cap still hurt after 20 minutes and I was sat in the chair crying with my hands over my face. I think it all just got to me! Not felt that low again thank goodness. How’s everyone feeling emotionally? I live alone but my mother and sister are taking turns to stay with me during chemo, which is really helping. I hope you all are feeling supported x
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I asked my oncologist and I’ll be getting my bloods done the Friday pm before Monday chemo as usual, then I’ve the Covid jab booked for later that afternoon and the flu jab for the next morning. Hope you don’t feel too wiped out after your jabs 
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Hi @Hawketower , hope you are feeling a bit better now. Are you doing filgrastim injections too? They can be a big culprit for aches and pains too.
I’ve been very up and down with this whole thing, I think it’s completely understandable given the circumstances we are in, it is emotional to go through this, even now I don’t like saying out loud that I’ve been diagnosed with cancer. I’ve cried a fair bit in the last couple of months, when I was in a lot of pain, in front of nurses, a couple of good friends, and yesterday in the supermarket when I nearly lost my bag with purse and phone in there due to chemo brain fog….
Through McMillan I have been speaking with a counsellor, they can arrange for 6 free sessions over the phone or video chat. I’ve found it helpful to talk to a stranger, they are outside the loop, you can say the things that you may not want to say to those closest to you.
Onwards and upwards though, I’m looking forward to the day this chemo is over with!
Hope everyone is doing ok
X
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Morning all! Hope everyone is feeling OK, sending hugs to all those who need them. It really is OK to feel down and to cry, this whole thing is a shitshow and we wouldn’t be human if it didn’t get to us sometimes. We’re still all getting through it though, day by day, and that is something to be proud of.
Latest challenge in our house is that my husband has Covid! It’s also his 50th today so we’ve had to cancel all our lovely plans (we were so happy that it was week three so we could have a lovely lunch out!)
I have my Covid jab tomorrow and chemo on Thu so testing daily and really hoping I don’t catch it (he’s isolating - but this also means I’m now doing everything for him as well as the kids!)
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Oh that’s so pants about your husband’s birthday @Vanelliope 
I hope you stay free of it, and can fit in a belated celebration later. Bloody covid, like we haven’t enough to manage!
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@emsj Same! I really struggle with saying it aloud, I think I’m handling it just enough not to overwhelm me. I’ll look up that McMillan info you mentioned 
I’m currently on the ward having IV antibiotics for 24 hours 
had a rubbish few days of high temps, constipation then diarrhoea, vomiting, no sleep and all those good things 
rang my hospital helpline this morning and have been in since 11 am. Due another infusion soon then hopefully I can get some sleep and escape tomorrow.
Hope all are as well as can be x
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@Vanelliope , hi hope you are doing ok and you don’t get covid! Hopefully you get to celebrate another time. Xxx
@Hawketower, fingers crossed you are home now and feeling a bit better?!? Did they have an idea what caused the temp or just trying to rule out any infection with the antibiotics? Actually vomiting seems quite a strong reaction, I hope that can be sorted out for you next round, and something a bit more effective for the diarrhoea xxx
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Hi @emsj
Nah, at noon they decided to keep me in for another 24 hours So I’m on the second lot of IVs. I’ve a tender abdomen and back pain that they’re keeping an eye on, temperature is back up at 38.3 after having gone down initially. I just want a decent night’s sleep, I’ve not had one since the Flippin steroids the day before last chemo.
How’re you getting on?
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Oh no! I’m so sorry @Hawketower, that really sucks. I hope your temp goes down and you can go home soon, and you get a good nights sleep!
I had 5th Tchp on Monday, still ok so far other than being really, really tired this time, and a little wobbly on my feet. Nausea and diarrhoea usually kicks in tonight or tomorrow, but it is supposed to get less as you get used to the docetaxel which I have found to be true, so fingers crossed it’s the same for you too.
Sending hugs and wishing you a speedy recovery xxx
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Hawketower how you getting on 
Shi xx
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@Shi @emsj they’ve decided to keep me in for another night. Temperature is still high, but I’m no longer neutrophenic. Had constipation, then diarrhoea since Saturday but apparently I’m actually still constipated according to x rays today 
Enema earlier didn’t work so they’re gonna whack more laxatives at me. MRI tomorrow I think. Swabs and stool culture results aren’t back yet so for now they’re treating it as an infection unless proven otherwise. My bowels really have turned into a pain in the butt from chemo! How are you both?
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How are you feeling after your covid jab? Hope chemo tomorrow’s ok x
Hawk tower good you are not neutropenic anymore 
yes chemo can give you botty trouble from blocked steroid bum to lava bum 
your best friend is juggling senokot, anosol, Imodium it’s a se you could do without during chemo but lots of us did the chemo bum dance so pick your tune and it’s customary while in casa nhs to do a dance to the loo and try and rope a nurse in to dance too extra points if you can rope a nurse in that’s your mission for tomorrow as well as getting home as Mai7 told me to do when I was have a 6 day stay in casa nhs google Bristol stool chart cake 
it hopefully will give you a 
like it did me when I was going stir crazy in casa nhs sending Shi xx
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Omg that stool chart cake I saw my most recent on it
Stir crazy is a good way to put it. Obviously I want them to find out what’s wrong and fix it but oh Lordy I’m back at work on Monday and I’d like to be well out of here by then. Best try for some sleep while it’s quiet, gnite 
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Hope you manage to escape hospital soon!
Covid jab gave me the usual flu feeling for all of yesterday - had to have an afternoon nap which is unheard of for me! Doesn’t help that I’m doing literally everything for everyone too, it’s so tiring.
Feeling better this morning though, just in time for chemo! Youngest has a cold so will need to avoid her - Covid tested her (and myself) and thankfully we are both negative so at least I don’t have to delay chemo
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Hawketower 
you’ve escaped home Shi xx
@Hawketower,how are things going?
@Vanelliope, good luck with the next cycle, hope you stay cold free!
To everyone, we’ve made it to October, hopefully we are all past the halfway mark?! The chemo will end, that may or may not be of comfort when you feel like shit, but it will end. I think October is quite hard with it being cancer awareness month so I’m trying to think of something to plan to look forward to, not sure what yet. I’ve also been thinking about what I can do to keep fit, improve bone strength etc:thinking:
, it’s been a while since I’ve done proper exercise, the thought of it right now is a bit overwhelming, but you know, the thought is there, it’s a start:crazy_face:
Hope everyone is well
Xxx
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