July 2024 chemo starters

Both sessions of Doxetactel i was sent home from hospital with fluconazole to take 7 tablets started on 5th day. They did sort the fury mouth also levofloxacin again on the 5th day 10 tablets. Xxx

Hows it going with new :dog2:. My husband really wants one and has done for a while. We have looked after friends and families dogs for a few years now and dropped on lovely well behaved dogs. But now hes got his eye on a Frenchy puppy. His favourite dog. Ive always put my foot down said we have enough to deal with and im worried at lot of it will fall to me. Even though heā€™s promised it wouldnā€™t. Hes retired so has plenty of time on his hands. He has suffered with mental health problems in the past and im thinking this would help him. so Iā€™m thinking am i being selfish. It is a big decision and will obviously affect everything in the future. Holidays abroad maybe. Im just trying to weigh things up. Oh my! disisions disisions. There is only 1 of these puppies left so would have to move fast. Xxxx

@debi1 it sounds like your diagnosis and treatment are similar to mine. I have an apt on the 16th to discuss radiotherapy. I think Iā€™ll be having 5 daily sessions. It might sound strange, but I canā€™t wait to be starting radiotherapy. I think just for the fact that chemo will be over with.

Hope youā€™re doing ok after your 2nd docetaxel. I havenā€™t found it anywhere near as bad as EC. Iā€™ve had bad fatigue, sore mouth and throat and the odd rash. My oncologist changed my injections from daily ones to just 1 injection that covered all of the days and Iā€™ve had no bone pain. Xx

Tbh i wasnā€™t too bad on EC but 5 days feeling rough with muscle and bone pain after 1st Doxetactel just waiting to see what the next few days brings. Got my meeting on Wednesday to discuss radiotherapy. Its like wow finally coming to the end of chemo hopefully radiotherapy will be a breeze. Well weā€™ll see. Take care wishing you all the best. Speak soon Xxx

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Afternoon all. I hope you are all doing ok.
Iā€™m just totally exhaustedā€¦ā€¦
Iā€™ve had a mastectomy and also and then a follow up full lymph node removal. Have had 3 x EC and have number 4 of 9 paclitaxel tomorrow. I also start Pshygo (think thatā€™s how you spell it!) injections once every 3 weeks for a year tomorrow. Has anyone started these for HER2 positive?
Iā€™m working full time but from home but starting to think I may have to reduce hours soon ā€¦.
Canā€™t wait to ring the bell on chemo and to get the radiotherapy over and done with fingers crossed before Christmas.
Is anyone else having aching in their tummy area ā€¦ā€¦ I feel like itā€™s my overuse aching!!!

Sending positive vices to you all. Keep being amazing xx

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Hi @louc

There is a thread for HER2+ buddies here if you would like to join. Some of us have completed our treatment and some are on going. Some are on Herceptin others on Phesgo.

:smiling_face_with_three_hearts:

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Hi well we are cycling between thinking getting the puppy is the best thing we have ever done to omg what were we thinking :astonished: :scream: . He is very sweet but chewing everything atm.

I would say if your husband is ok for the early mornings to take the puppy out that would be good as I am finding that bit hard this week. Husband and daughters have been really good so far but its only been a week :rofl: It might have been more sensible after treatment & surgery.

I am looking forward to going for walks with husband & pup. I think getting out is really good for mental health especially with autumn coming so might really help your husband as long as its not too much pressure on you. But it is defintely an extra tie if you are planning to go on holidayā€¦

Good luck in your decision xx

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@booklover1 now I want a puppy too!
Pls post how itā€™s going & pics

X

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Those eyes :eyes:ā€¦ā€¦.melt :heart_eyes: x

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Evening lovely people. Does anyone else get throbbing back pain with the filgrastim? Or is it the paclitaxel that causes it?
Had my 2nd jab last night and have had throbbing back pain on and off all day. Its not as bad as it was last cycle but just wondered if anyone else gets that. Its almost like my pulse aching in my back :confounded:

Not in my back but i can feel my arm bones! Im wondering if youā€™re drinking enough and your kidneys are feeling the strain of making more white blood cells? Im struggling what to eat or drink as all tastes fowl but can manage bubbly spring water. Hope this helps. X j

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@zaran hi, I had really bad bone pain off those injections, in my back and then the next treatment was my back and neck. Itā€™s something to do the cells multiplying really fast in your bone marrow. I think thatā€™s what my Oncologist said but my memory is rubbish at the moment. She changed the daily injections to just the one injection and I havenā€™t had any bone pain with the last treatment.

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Hi, the short story is we got a 12 week old rescue corgi puppy the week after i started chemo. I did say i thought was wrong as Iā€™m the one to do all. So agreed no poop scooping, clearing up wee etc. And they have kept to it. Iā€™m so lucky that he has turned out to be a poppet and does help my low moments and we are well matched with short walks LOL! But i will say that Frenchies are adorable but short-lived and the whole breathing thing is a big thing to take on. Also they often are attacked as other dogs think they are staring at them which is v stressful (my friends frenchie cross and our daughters normally placid dog canā€™t go within 10m of each other :frowning: So please think carefully about your breed. Def not an energetic spaniel for example or working breed as they need so much imput from day 1. Terriers have literally a mind of their own and i wont have them anymore because of the stress! Hence our 2nd corgi. So yes it could be a great tonic IF you get your breed right. Good luck.

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I think im drinking enough, i get about 5-6 pints a day in of weak squash.
Its in my shoulders and neck too. They gave me codeine to take if i need it and thats taken the edge off slightly. Xx

yeah thats what im thinking too. I reckon its the jabs. Might ask if i can reduce how many i have. Theyre awful!!

Hi @zaran I get this with the jabs. Pulsing pain in lower back and in my thighs and arms. I take the injections at night with ibuprofen which helps a bitā€¦BCN said it was the white blood cells growing.

Hope it gets easier for you x

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The pain is awful. I canā€™t remember the name of the new injection, but itā€™s much better just doing 1 injection instead of the 5, especially since thereā€™s no bone pain. When I had my next treatment though, the nurse was surprised that my Oncologist had prescribed it and said it was hardly ever given. I can only assume it has something to do with cost but not sure.

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Yes it is a cost thing

It rarely gets funded but now youā€™ve had it hallelujah ! :raised_hands:t2:

@zaran the injection kicked my butt my last cycle tbh - and I did all the things to combat it antihistamine, hydration , ibuprofen

Think my body just had enough. Do you it at night? I did so that I could sleep through the worse bit (although what is sleep again? :laughing:)

How is everyone doing joint pain wise? I need to call my GP this am and get some Diclofenac. I was in agony walking yesterday

And to think next week my ovaries will continue to be suppressed & hormone blockers starting soon. :pleading_face:

@debi1 did you have your radio chat? Iā€™m curious to compare as havenā€™t been advised on any creams to put on etc guessing just aloe but finding I donā€™t know much about the aftercare

Guess after chemo this is considered a walk in the park lol

@jayveebee thnx for puppy tips. Iā€™m defo not there yet haha but think a dog will be part of our future once we get through 2025 with some travels first (this year has been a write off with 3 cancelled)

Hope youā€™re all well & ticking the cycles off this week
Xxx

Hi. I was also indecisive. Which turned out fine! The top got really thin first with me so i wore a variety of baseball caps to hide it. Eventually, my daughter clipped the last bit off with my husbands clippers when i couldnā€™t cope with hair everywhere.

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Hi all, Iā€™m struggling to navigate this app. Must be meno/chemo brain LOL. So sorry for random answers popping up. Anyway last night i wrote a long post about acid reflux that Iā€™m struggling with. But not sure where its gone now. Anyway, anyone have experience of this being so bad you canā€™t face another round of chemo? Iā€™m on 3 tablets this round 4 but still grim.