The pain is awful. I can’t remember the name of the new injection, but it’s much better just doing 1 injection instead of the 5, especially since there’s no bone pain. When I had my next treatment though, the nurse was surprised that my Oncologist had prescribed it and said it was hardly ever given. I can only assume it has something to do with cost but not sure.
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Yes it is a cost thing
It rarely gets funded but now you’ve had it hallelujah ! 
@zaran the injection kicked my butt my last cycle tbh - and I did all the things to combat it antihistamine, hydration , ibuprofen
Think my body just had enough. Do you it at night? I did so that I could sleep through the worse bit (although what is sleep again? 
)
How is everyone doing joint pain wise? I need to call my GP this am and get some Diclofenac. I was in agony walking yesterday
And to think next week my ovaries will continue to be suppressed & hormone blockers starting soon. 
@debi1 did you have your radio chat? I’m curious to compare as haven’t been advised on any creams to put on etc guessing just aloe but finding I don’t know much about the aftercare
Guess after chemo this is considered a walk in the park lol
@jayveebee thnx for puppy tips. I’m defo not there yet haha but think a dog will be part of our future once we get through 2025 with some travels first (this year has been a write off with 3 cancelled)
Hope you’re all well & ticking the cycles off this week
Xxx
Hi. I was also indecisive. Which turned out fine! The top got really thin first with me so i wore a variety of baseball caps to hide it. Eventually, my daughter clipped the last bit off with my husbands clippers when i couldn’t cope with hair everywhere.
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Hi all, I’m struggling to navigate this app. Must be meno/chemo brain LOL. So sorry for random answers popping up. Anyway last night i wrote a long post about acid reflux that I’m struggling with. But not sure where its gone now. Anyway, anyone have experience of this being so bad you can’t face another round of chemo? I’m on 3 tablets this round 4 but still grim.
I’ve only had it bad btw cycle 2 and 3 and used a lot of Omprezole
Are you on this?
Plus I had a lot of yoghurt/ kefir
Think people use pillows for propping themselves up too?
Hope it subsides
And chemo / meno brain is a thing ! I’ve completed my TC and the brain fog is unreal.
The gift that keeps giving lol xxx
I’m on 40mg Omeprazole x2 daily. 10mg metoclopramide x 3. 1g sucralfato x 4. Sleeping on 5 pillows. No spicy or acidic foods. No tea coffee sugar chocolate. Sob. On kefir, acidophulus, almond or coconut yogurt. Gluten, soya and dairy free. For a foodie, I’m literally in purgatory! Between round 3 and 4 there was not a days respite. I was wanting to stop chemo it was so bad. At least now the pain at oesophagus opening is lessened so hope its healing. I’m thinking of taking up oncologist offer of gastroenterology referral. Hope get fast tracked. Won’t need it by usual waiting times.
Not going to lie this sounds super rough & you’re trying all ways to mitigate it
Hope it gets better 
@jayveebee Hi, I haven’t had this during chemo but I did have this really bad a few years ago. I couldn’t eat, couldn’t lie down, couldn’t sleep. It was awful, lost a lot of weight, I feel your pain. I was sent for an endoscopy and think (from what I remember) I they found some inflammation. I was also sent to see SALT as it was affecting my throat and voice and she explained that Omeprazole and Lansoprazole etc would stop so much production of acid and Gaviscon would put a barrier so it didn’t come up further. She said if I was going to eat anything that I thought would irritate, then to have a Gaviscon before and also before I lay down. She said drink a lot of water, although sometimes I felt it made it worse, because it helped water it down and get rid of it quicker. I don’t know if any of that will help you. It’s awful that you have this on top of everything else. I hope it starts easing soon.
@jayveebee I did had a very sore mouth and oesophagus though with my first docetaxel, next one due tomorrow. Was hard to eat some days but it wasn’t off reflux, was just the chemo. My Onc said it irritates all the lining inside your body. Why can’t any of these side effects be good ones. Wishful thinking I know!
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Well I’m probably at a better weight now but it’s a grim weightloss programme. 4kg on first round was not fun.
Hi @fluffy888. I’m kind of at the end of my tether as drinking at least 3 pints!of water a day as cant bare much else and v restricted diet? Sleep on pillows etc. Just living from one of the 9 diff tablets a day i take for it to the next, hoping it will quash the next wave. The 24-hour helpline nurse has just rung back to say they have emailed oncologist and BC nurse to say next step is gastroenterology. And yes its affecting my voice too as chords constantly washed with acid. Hoping i get a quick appointment. Wondering if its the old bug that causes ulcers. Almost hoping, as thats an easy fix!
Hi got meeting with oncologists tomorrow to talk about radiotherapy. Ive been quite bad after Doxetactel again. Its floored me. I’ve just arranged a lift because i don’t think ill be up to driving. Ill let you know how i get on. Xxx
I’m so fatigued from it and had to Uber today to a shopping centre as didn’t trust myself driving in the rain!
I’m glad I’m done as this fatigue is blah
Hope it’s kinder to you tomorrow and the appt goes well xx
Thanks lovely. The fatigue really does knock us back doesn’t it. Although i cant believe how much pain comes from muscle. I didn’t know i had that many 
definitely attacks my already sensitive areas. Sending hugs x
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I had my first Docetaxel on Friday after 3 EC treatments and OMG I’m not sure what I’ve been hit with. I know it’s cumulative etc but this has been far worse. The pain is so bad, I’ve spoken to my chemo nurse who isn’t concerned but it has frightened me and I’m usually quite resilient.
The fatigue is awful too, I told my husband I didn’t want to continue with treatment and just wanted to die. Anyone else experiencing this? Struggling for some positivity at the moment 
xx
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How many weeks btw treatment will you have?
I find the fatigue is like a rollercoaster & there will be some good days so hang in there
I didn’t have much muscle pain til the end & think it was from the horrible filgristrim
Sending a virtual hug as it is crap!
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Could it be a mixture of reflux and the chemo causing inflammation of the lining so you have a double whammy? It’s awful when nothing helps, it really gets you down. My tongue felt a bit swollen and was so sore off the first docetaxel but it didn’t hit until a few days after I had it. It was sore all the way down. Have you had docetaxel?
Hopefully they’ll fast track your referral and get you sorted. It affected my ears as well. I’ve had tinnitus in my right ear and I’m blaming the reflux for that too! God I sound like a right train wreck! 
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@alisona1 I have to admit that I did say that on EC as I was so bad on it. The fatigue is awful on docetaxel. The first one absolutely floored me. My heart was racing and felt breathless trying to do anything after about 4days, but that went around day 10. I spoke to the nurse and she wasn’t concerned so must be a thing on docetaxel. I have round 2 tomorrow.
Just think that you’re 1 docetaxel down and only have (I’m assuming) 2 left and then you’re all done. It’s awful at the time but you’ll get better each day. Just take 1 day at a time. You’ve been through so must crap since this all started and the chemo is nearly over. You’re stronger than you realise just getting through what you’ve been through so far.
You can also speak to your oncologist in case the dose is too high or anything else they can give you or change. They’ll never want you to be where you can’t manage. Hope you’re doing ok. Xx
@idcand49
thank you, I’ve got 3 weeks between each, so time for some recovery 
start my injections tonight just to add to the mix! Sending hugs 
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Just catching up after a magnesium salts bath. I can really recommend it for helping with the aches. Good price in tk-maxx!
Also i wanted to say definitely report all side effects to your nurse and oncologist. Here my oncologist calls me before every round and then decides on next treatment at their review meeting. The first round was crazy but i didn’t know what was normal then. When i told my lovely oncologist she said she would change things or i would end up hospitalised! They lowered my dose and it made a huge difference. Still works though. At midway assessment It had gone from 22mm to 9mm in 3 rounds. Round 4 they doubled the time of the 1 drip from 1 hour to 2. Also helped. So there is a lot they can do.
By week 2 of round 3 I also swore i couldn’t take any more (the reflux thing) and that I would stop. I’d lost any sense that i could do it regardless of friends and family trying to say i could. But the hospital did listen and though I’m still struggling with the reflux they have eased reflux soreness and the fatigue and pain is less so that helps. That they listen and change things for me has meant that I’m now more hopeful that i can make the last 2, so please talk to them.
On the Filgrastim injections. I too blamed them for making me ill. But now realise it was my body dealing with the docetaxel (sp???) and Phesgo still. It helped when i reframed that the injections are actually helping make the white blood cells you need to get better, and yes, this task asks a lot of our bodies but aren’t we amazing?
Thank July 24 starters for being here today. X j
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