Good luck with the tits and hair. Bless ya made me smile big hugs x
Great news the tumours has shrunk
@pipspops howās the ānew boobā? Your message made me smile (tits and wig) gotta find humour where we can
@booklover1 2 of my 3 are in school (y11 y13) and I have told the school
We are quite private but with 2 being in exam years I felt I needed to. Plus there is SO MUCH school comms, I wanted them to know I may not be totally on it. My husband (bless him) isnāt as organised. He even asked my youngest this week āwhat year are you againā when looking at revision books.
Iām still in a funk like many of us seem to be but think Iām emerging from it a bit
Think the change of season and still much to do treatment wise feels emotionally heavy
I hope my cycle goes ahead Thur - my vein is being annoying and I seem to have artificial thrombophlebitis and mild extravasation. I didnāt want a port or picc as my hospital couldnāt do it for cycle 1 so I thought what was the point for the next 3. Not sure I made the right decision ā¦ anyways just hope I get the green light for Thur
Does anyone else get anxious before the next treatment? I keep grinding my teeth / have restless nights
Happy Sunday all x
Hooray re scan result !
This must feel like a win
Xx
The ānew boobā had its inaugural outing yesterday afternoon for an early tea , thank you. Iām glad you feel a little movement out of the funk
Feels okay, clothes hang better, but itās a little weird to have āsomethingā in a gap Iāve kinda got used to. Iām reasonably big (GG), so the weight feels fine in my bra - something I just couldnāt replicate with softies and bags of rice!!! It just all feels a bit āout of bodyā - my chest wall is still pretty numb, so I donāt feel it against that, and when my arm touches something that isnāt part of me, unlike the other side, it feels a little alien. It does have a nice cooling gel on the inside which is rather pleasant in my internal fire moments
Hooray for the first outing with it.
And, gosh I may need a cooling gel too! The hot flushes are insane lol
@deb1 and @idcand49 thanks for school comm experience. I think I have figured out how to get in touch with daughters tutor & welfare and will get in touch with them tomorrowā¦New college is so big after school! Other daughter going back to Uni soon, maybe a good idea for her to let her tutor know too. She is a bit worried about going back.
Made me laugh about comms & husbands. There have been so many emails sent to us both already from the college & not sure he has noticed them lol
I hope your veins are ok this week @idcand49 for the treatment. Is it the last one? I had my port put in last week, a bit delayed but I still have a way to go (should finish December).
Glad you had a good outing with your new boob @pipspops the cooling effect would be welcome here too
How did you get on @cf640? I hope the treatment was ok this week & you didnāt need the overnight bagxx
Wishing everyone a happy Sundayxx
hi idcand49, yes radiotherapy referral is usually after cycle 3, and then you get invited for a day to show you round the unit and explain the procedure, radiotherapy is daily, although they usually start you off half way through the first week, and finish 15 days later, thats week days. My only tip is to practise holding your breathe, as they are treating your breast area ie over you lungs, you have to keep that area still whilst being āzappedā , Dependant on the team you get some are great and ask you to hold, then breathe out, without much breather holding but for the big area i found it helped to be able to hold my breathe forā¦30 - 35 seconds. you can do this. The bad teams or trainee teams ask you to hold your breathe, let a little out, then breathe in again, which is not an easy task to do. I pointed this out to them, and they improved. but i had to tell you because then you are aware. but you will get through this and then you will have a 2nd bell to ring, and if you want a group photo, let the nurses know. I hope the pictures on the ceiling are as impressive as we had at Oldham, they were of Dovestones reservoir. lol moonsox.
@moonsox - This is really helpful to know. Iāve got Radiotherapy after Chemo and wondered when the planning started. Iām currently on week 2 of cycle 3 of EC (start 9 weeks of palitaxel next) and so will mention it at my next Oncology appointment x
Hi everyone
Gosh Iāve missed a lot on here!
Iām afraid ive been admitted yet again- this time was very dramatic and I ended up in ICU. Thereās been a debate about infection or adverse reaction but they have found pneumonia and are treating me for that so perhaps it wasnāt the drugs after all.
But now I have the fear about chemo.
They wont do Pac/carbo anymore but move me on to EC once Iāve been given the all clear. But Iām still anxious.
Anyway, one day soon, i hope to be home and be fully independent. I hope to never be dn inpatient again. The staff are brilliant though and they make it bearable. And most of them recognise me now!!
Clare xx
Hi @ourkirst
Yes. I started a diary after i was diagnosed and it was positive and counting blessings and generally upbeat.
Now all i want to weite about is how much i hate cancer and what a horrid disease it is and how i hope they find a cure or a vaccine.
Clare xx
Sorry to hear you have been admitted again, youāre having a tough time of it. Hopefully now they know what it is youāll be out quicklyā¦. Sending hugs
Sorry to hear this Clare - hope they get you well and home again soon . Take care xxxx
Sorry to hear that Claire, you have certainly had a rough journey through all this, hope you are home again soon and feeling better xxx
Sorry to hear this Clare. Hope you are feeling better and back home soonx
Clare, so sorry to hear youāve been admitted again. I hope you can get home soon. Sending big virtual hugs.
Someone mentioned hot flushesā¦ I just want to say Iām really struggling with night sweats and hot flushes. Iām 45 and the chemo definitely pushed me into medical menopauseā¦ I donāt know what I can do about it?
I have a fan at the side on my bed. Very useful xxx
Oh my ladies so much going on. Sending love to the lady who has been admitted again you really have been through the mill.
I had my first āpaxā today and touch wood I seem ok at mo.
The hospital have been fabulous but today was a bit of a long winded journey.
So when I got there at 11 they said that I hadnāt been booked in for treatment although I watched the nurse do it on a Friday and she had written it all down for me. So they booked me in for 12. At 12.30 the nurse who booked it came to see me to say there had been an emergency in the chair I was allocated to so they were looking to reallocate me. 1.30 she came to see me to say they were going to take me through but my treatment hadnāt arrived from the pharmacy ā¦. Eventually I got treatment at 2.30 and got home about 4.45 ā¦ā¦ I met some lovely people in the waiting room but could have done with not being in there for nearly 3 hours! Good job Iām easy going and had nowhere else to be.
Just switching my brain off and watching TV now
@cf640 hope youāre doing ok lovely.
@louc what a day you had. Glad you got there in the end. They say these things are sent to test us. Well i think we all are certainly getting tested. I had my first session on Doxetactel fri. 2 more to go. Was ok until yesterday afternoon. Wow i donāt think there was a muscle that didnāt hurt. Same today so just taking it easy with painkillers and rest. Hopefully pass soon. Take care of yourselves x