I’ve heard good things about pennybrohn, @booklover1. My daughter wants to visit there sometime - maybe we will get round to it. The courses sound interesting. Worth considering- it’s prob really good for our brains!
Xx
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Omg. You are ace. Enough said! 
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Glad things went well with your oncologist and your Ec went well. Like i said before l know everyone is different but i didn’t have many problems with Ec Just the T last time. My second one tomorrow morning 
hope im ok for my oncologist appointment next Wednesday. When it gets closer i might ask advice on what questions to ask. But for now. Good night god bless All. Xxx
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@cf640 personally i didnt have mamy problems with the EC, but the paclitaxel knocked me on my backside. However, i spoke to the nurse about this and she said its because its cumulative and it wouldnt have mattered if i had the paclitaxel first and then the EC, that the 5th round of whichever chemo was bound to knock me on my backside.
Saying that, most people ive spoken to have said the paclitaxel was the one they had the muscle and joint paint with.
I think its just a personal thing with how your body reacts really.
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Hi @zaran
Oh interesting! I was first admiited to hospital after my fifth round of paclitaxel- a temp spike and high blood pressure that settled down.
The admission after week 6 was worse. They should have changed my drug to nab-paclitaxel after that. And then 7 was catastrophic!! Really we shouldn’t end up in ICU. Imagine if all chemo patients did. I was advised to raise a complaint, which i will do in the hopes sthey tighten up their care.
Yesterday went well but you know, the steroids!
I haven’t read of anyone taking chemo sleeping well though.
I hope you sail through your treatment- have you had bone pain?
Xx
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Hi All,
I have been catching up on all your news. I have been a bit quiet. I have completed my 12/12 weekly pac/carbo infusions yesterday. I haven’t had if too bad, I have mild neuropathy in my fingers and toes, A dodgy tummy and fatigue but nothing I can’t handle. Oh and lack of sleep because of the steroids- hence the time of writing 
However, I had a car accident on Saturday. It was my fault, ending up clipping another cars wheels on a narrow road. No one hurt but both cars were towed, I have insurance. I have now lost my nerve driving and think it was a reality check that my body isn’t functioning 100% and I need to slow down. Which is hard when you are a mum of 2 teenagers and mum taxi.
I have 2 weeks off, before starting EC - 3 weekly on 10th October. I’m pleased to hear some haven’t felt it too bad. Fingers crossed.
Wishing everyone best wishes as you hit 3 months into starting chemo x
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@cf640 had my 6th round of chemo yesterday, i feel ok at the min but it usually hits me during the weekend so we shall see!
I had horrendous bone and joint pain on the 5th round and i too ended up in hospital with that one. I dont know if its the chemo or the bloody jabs they give you… because im normally fine until i start those.
My first 4 chemos were EC and then the 5th was paclitaxel so again… dunno if it was the pax or jabs or just the 5th round. Its all a guessing game lol
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you’ve made me belly laugh for the first time in ages! Thank you! Just what I needed this morning xxx (I’m just about to draw mine on before I go for treatment……. The temptation to do the last picture is overwhelming!)
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Thats bad luck @bex1. Just what you don’t need- another loss of freedom.
Do you get a courtesy car?
I had my first EC. I came home with a list of anti-emetic and steriods to take but only for three days. Then we’ll see! Im expecting to be very tired by then.
We just keep going though, dont we?
Xx
Sorry to hear about your accident. Glad to everyone was ok. Take care xx
Im just sat having my 5th chemo now 2nd Doxetactel. And my nurse has just told me the same that its cumulative so it would get worse anyway. Something to look forward to again next week. Ah well only 1 more then onto radiotherapy xxxxx
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Wishing you all the luck with today. Although its crap, we get through it. Theres light at the end of the tunnel 
Haha!! Youre welcome haha xx
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We will my love. Im home now need a nap lol. No sleep whatsoever last night. The nurse did say try taking steroids breakfast and lunch next time instead of at night. Take care xx
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@debi1 hope you’re ok after your latest Docetaxel. I’m on same as you but a few weeks behind. I had 3 x EC but it’s the Docetaxel that I had on Monday that has completely floored me. Was ok for first few days but now I have numbness in toes and fingers, tingling in lips, racing heartbeat, tightness in chest, headache, backache, light headed, feeling of a lump in my throat and difficulty swallowing plus my mouth seems to have a coating on it. Anything I eat tastes greasy. I know in a week’s time I’ll be feeling much better and I’m trying to focus on that but it’s so hard when you are going through it.
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I’ve had my 4th chemo this morning, my first doxcetacol which I was dreading as I had heard so many reports of reactions. All good so far, but sooo tired, like everyone else the steroids seem to be keeping me wide awake 
This journey is absolutely rubbish but we will get there… eventually xx
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Hi love keep an eye on your symptoms they may subside on there own but be mindful. I did get more of a coating on my mouth with Doxetactel but taking the tablets they gave me did sort it out. My nurse did say it probably wouldn’t have made a difference which chemo drug i had first its the amount thats in our system thats causing the side affects. Good luck. It took 3 days after my first Doxetactel to start to feel rough. Stayed in bed until lunchtime most of the week. Lasted around a week. Take care ill keep you posted how this second one affects me. 
xx
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Thank you, I will bear that in mind.
Starting a different drug has thrown me emotionally as it’s looking out for the unexpected again!
Thanks for the support xx
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@alisona1 are you struggling with sleep too! It’s 03:19 now?
I’m feeling really nauseous and wide awake on the steroids!!
Again, I think it’s the accumulation of the drugs, I completed 12/12 of the paclitaxol and carbo on Thursday.
#icantgetnosleep
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Hi all
My sleep patterns have changed with the steroids and omce they’ve worn off, i still cant sleep through the night. I get about 5 hours most nights.
I asked my GP for Zopiclone after checking with the oncologist. I didn’t have many prescribed but i take 2 a week just so i get at least a nice stretch of sleep twice.
Might be worth a try?
Xx
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