July 2024 chemo starters

Sorry you had to see this argument on top of everything else. You were there and you have your take on what happened. Sounds like your son is there all the time so sees what you are going through. If your brother cant relate to that well thats on him. Try and switch off and think about yourself. Hopefully it will all blow over. Take care xxx

Thank you @debi1
I think they both wanted me to intervene somehow but all I could think about was how awful it was that they were arguing and were they going to punch each other.
My son isnā€™t really speaking to me now! I think a mixture of shame and anger. My brother doesnt think he did anything wrong so yes, im going to leave it now and hope they both feel ashamed. No more house guests!!
Xx

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Well after a week only speaking with my mum on the phone as she had shingles i decided to go to see her on Monday. Well walked in to see her on the floor. Sheā€™d caught her foot on a chair leg. Bless her. Bit bruised but was able to get her up and walking around. Bruising really came out today though. Really does seem to be one thing after another. Mini stroke, shingles now this. Oh she had a new knee at the beginning of the year. And another operation the year before. Sheā€™ll be fine im sure but it doesnā€™t stop you worrying. Ive got an appointment to discuss radiotherapy next week so fingers crossed chemotherapy on Friday doesnā€™t knock me off my feet again. Night night. Hope youā€™re all ok. Xxx

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Morning @debi1 thank god you went to check in on her. Bless you It must feel like a lot on your plate.

How are you feeling treatment wise?

I have to say bar the usual days 3-5 & a runny bottom (sorry if TMI) I just feel tired. But still managing to work etc

Speaking of which, I updated my boss (one of the Founders) about my next stage (radio) & she obv updated the other Founder.

This one actually said something like ā€œI didnā€™t realise you are being blasted some more. Is this because youā€™re being cautiousā€?

Iā€™m furious at myself for not saying something OTT like ā€œno I need to do this so I donā€™t die from this in the futureā€.

Sorry but how the hell can anyone think I CHOSE my treatment plan because I was being cautious? Itā€™s really unnerved me :face_with_symbols_over_mouth:

@debi1 hope the radio appt goes well - I used chat gpt to get a list of qā€™s lol (thatā€™s how I discovered I should have been offered the boost as part of the plan)

I have the CT planning scan THIS week - last week they said it could take 2-3 to get in

Again it all feels so fast but guess when one treatment door closes the other one opens quite swiftly

I even have my first ovarian injection 7 Oct! The doctors are determined to keep me in menopause thatā€™s for sure :joy:

I hope that everyone else is feeling ok and ticking the treatments off seeing the light at the end of the tunnel

Iā€™m dying to wash my hair properly but still shedding (not as crazy but more than normal). I have kept over 2/3 of my hair and the bald patch on the right side can be hidden so my wider headbands will be needed for a while yet.

Happy Wednesday - almost the weekend (which for me means more teen chaos lol)
Xx

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Morning love. Yes it does seem a lot with mum. But hopefully sheā€™ll be ok. I cant actually believe what your boss said at work. People should get their head in gear before they speak. If im honest im dreading next chemotherapy because of how it affected me but hopefully wonā€™t be as bad. Everyone in my house is full of cold. Canā€™t believe Iā€™ve not caught it. Not sure how i feel about radiotherapy. Not thought too much about future treatment if im honest just dealing with things as they happen. I hate hair wash day and donā€™t even comb much now just wear bandanas all the time. Still got plenty on sides and back but very thin with bald patches on top. This will sound weird but i wish it would fall out altogether as I canā€™t bring myself to shave it off even though i know Iā€™d feel better without if falling out all the time. Take care lovely :heart:

Morming Ladies,

@cf640 hope things soon settle down with your son and you get your treatment back on track soon :+1:

@debi1 sorry to hear about your Mum hope she is feeling better soon. :smiling_face_with_three_hearts:

@idcand49 does irritate me alot what people say as no idea what we are going through, want to just hide away and come back when this is over most of the time. Hope the CT planning scan goes well :crossed_fingers:

So had my last weekly pac yesterday, didnā€™t sleep well last night but feel ok this morning, Overall I coped well with this treatment, most side effects were from jabs and medication etc, apart from treatment 2 & 3 when I suffered a reaction of nerve pain I tolerated it well just got more tired and less evergy towards the end.

So next Tues I have 1st of 4 (3 weekly) ECā€¦what joy!!

So feel apprehensive about this one and feel my luck may soon run out :pensive:

I also have onc meeting next Thurs, they were not sure at first whether I will need radiotherapy but may find out more then, my next plan was surgery then Pembro for 5 sessions every 6 weeks!

Good luck to everyone on your next treatment :smiling_face_with_three_hearts: keep going and keep strong :muscle:

Xx

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@idcand49 and @debi1
Thatā€™s impressive- you still have hair and are you both still cold capping? Iā€™m giving up now Iā€™m moving onto EC- like you @caz1970, Iā€™m scared. Pac was bad enoughā€¦and EC has a whole other list of side effects.
I have a meeting with the new oncologist today. Iā€™m going to ask about what happened to me with pac, my eye issues that are related to pembro, and what can she suggest to do to minimize any reaction to ECā€¦hopefully something. But maybe nothingā€¦
Xx

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Good luck with your appointment hopefully you will find EC a breeze :crossed_fingers: its like starting again going onto a new treatment :pensive:

When we have a mix of drugsā€¦I had Pac/carboplatin and Pembro twice its so difficult to know what is causing the side effect, but defo felt alot better on weeks with pac only.

xxx

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@caz1970 @cf640 i know some have gad a hard time on EC but i didnā€™t have many problems at all. So fingers crossed for you both. Im not cold capping. Only did it the first one and half way through 2nd. So done 2 and half without it. I do wish i was brave enough to shave because i really do hate loose hair. Maybe it will all come out after my 2nd Doxetactel. Xxxxx

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@Deb1605 i dont know what to do about my hair. It will start falling out but the idea of going to the hairdressers and sitting in front of a mirror feels too hard xx

Sorry @debi1

@deb1 hope your mum is ok. Just as well you chose to go round at that moment! Hope you avoid the cold. My daughter is also full of cold but have avoided it so far. It is that time of the term they all have one bug or another!

@cf640 good luck with your appt with the new oncologist. I hope you are able to put together a treatment plan togetherx Also hope your brother & son are able to sort thinfs out between them. I guess they are both trying to protect you in their different ways x

@idcand49 good luck with the ct planning scan. Good that it got moved foward. Sorry about your boss at work sometimes you wonder if people hear what they are saying!

@caz1970 good luck with your first EC. I have 2 more weeks on paclitaxel then I move to EC so right behind you.

I saw my oncologist this week who said I need to organise a planning meeting soon, after I get the genetics results which would effect the type of surgery. Made me realise I have been in a bubble of the weekly treatments and now need to take steps forward.

I posted last abouut having low mood. This week I have done a couple of online courses at pennybrohn. One on hypnotherapy dealing with uncertainty and the other one was tai chi movement class that were both very good. They are free to people with cancer but you can donate if you are able. Its not everyones cup of tea but I found it helpful.

Other news we adopted a puppy! He is adorable but hard work so keeping me busyxx

I hope everyone on the thread is doing well x

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Thanks @booklover1 and great news on the puppy, that will certainly take your mind off things :grinning:

I have been getting bloods done the day before Pac treatment but was told I need to do them approx 3 days before with EC, is that what others have been told??

xx

If youā€™re not sure what to do with your hair then my advice is donā€™t do anything. You will know when the time is right. Ive known ladies who just wear hats and bandanas and havenā€™t had their hair cut at all. Xxxx

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Great advice! Thank you!! Xx

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@idcand49 omg, whoever said that to you at work needs to give their head a wobble!! How ignorant!! We dont choose what we have, and even if we did, i always say ā€œno cancer, no opinionā€
They dont know what weā€™re going through so they should keep their gobs shut lol.
Sorry, rant over :joy::joy:

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Me and my 9yr old son made some fun out of my eyebrows falling out. He thought this was hilarious :joy::joy::joy:

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Love it :laughing:

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@zaran love the pics

Your 9 yr old is very creative :wink:

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My new oncologist saw me yesterday afternoon and by 5 30 i had a letter summarising the key points and actions. Amazing!! She was reassuring.
I had my first EC today. I was treated so well- a quiet bay, a senior nurse who had time to talk to me about my treatment. I felt really looked after.
Now Iā€™m home- still wondering if my body will do something strange but so far, all is well.
Iā€™m feeling much more optimistic. Long may it last.
Xx
PS my son even ran a bath for me. No eyebrow drawing like @zaran! What a lovely bit of fun! X

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