July 2024 chemo starters

Sorry you are feeling like this, it is a tough journey and you are not alone in feeling like this, I just try to stay positive by just counting down the treatment and days, time does go by quickly and it will be end November before you know it.

I also struggle with fatique, felt breathless, nausea and severe pain due to jabs, I have been prescribed stronger pain killers, extra anti sickness meds and been told it won’t be as bad this tine round, if it is they will look at reducing my dose! Time will tell :thinking:

I hope you soon feel a bit better :smiling_face_with_three_hearts:

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Hi All

I am a week past my first EC and found it alot harder than pac which made me panic a bit - a mix of sickness, fatigue, feeling weird on steroids and the dreaded injectons. Having written that I feel a bit better this morning and have been out for a walk eith the pup and eaten 5 shortbread biscuits. The only things I want to eat atm are beige :rofl:

Hope EC and injection symptoms are easier for you all this next time round @caz1970 @kerrylou1 and @cf640. It is hard keeping going when you feel so ill but we are getting therexx

I have appointment to discuss genetics results and another to discuss surgery coming up. Beginning to feel “chemo” bubble coming to an end.

Is anyone going to do a moving forward course? I think I will need too when I get through radiotherapy. I can’t imagine going back to work yet although I need to start thinking about it…

Sending everyone hugs todayxx

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@kerrylou1 @cf640 @cf1979 @bex1

Hope the cycles are kind to you

Nov is around the corner and chemo will be done :raised_hands:t2:

I actually videoed my last injection -
I loathed them as much as chemo
Don’t miss it at all

@booklover1 I found it hard when the chemo bubble ended but radio has now distracted me so have booked my Move it Forward Course in Dec (5,12) Think I need it

When are you due back at work? I’ve never left but wish I had. I’m not mentally fit & my tolerance for low level colleague issues has dissipated

I also have no sympathy for my friends health woes (bad I know) I have a friend who always thinks she’s on the brink of something bad and decided to Google her blood test (just baseline for ear issues ) and was freaking out
She was in normal range lol but not smack in the middle

She was short with me saying she was upset and worried :woman_shrugging:t2:

In any event she’s a hypochondriac and she’s fine

What I would do to be in that position !!!

Hope everyone is having a good Tuesday

Think we GAIN an hr this weekend

Whoop

If inky I wasn’t suffering from insomnia lol

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Forgot to add
The joy of where I’m doing radio is it’s so deep in the basement of the hospital I can hear the tube!

Hi I had 6 months sick leave that ends January but have option of half pay sick leave for a few months after that so I am really lucky. My last chemo is 17th December then surgery and radio. Thinking maybe February… Are you able to have a more gradual return? The mental health side of it is as important as the physical.

I had been looking for something else before diagnosis so not even sure I want to go back although work have been really kind. Perhaps the moving forward course will help me resolve some of these things. I also don’t want to go back to running myself ragged for my family (as much as I love them). I am rebeling :rofl:

I can relate to the lack of patience with colleagues too :joy: Your friend/colleagues sounds very annoying!

Hope the insomnia improves.

& interesting about hearing the underground! Basement must be deep!

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I was looking for a new job too!
The thought of disclosing my medical situ worries me

I need to have zoladex done monthly for 3-4 yrs & then have the bone infusions twice a year for 3 years

Not sure many new employers will be flex

Legally yes they are meant to but reality … hmmmm

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I totally get how you feel but they would be lucky to have you. Good luck with the search when you are readyx

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I went in for my last lot of bloods today and took some goodies in for everyone. We were talking about it being my last chemo tomorrow and when I went in the blood room, a gentleman asked me if it was my last chemo. I asked him how many he had left and he said he had 1 tomorrow and last one in 3 weeks time. I asked him how he felt about having his last chemo, was he looking forward to it or a bit flat. He said he felt really flat about it as he was worried about being on his own without any treatment. Felt like he needed a good chat, but sadly we were interrupted.

Sounds like we’re all feeling the same about coming to the end of treatment. Lucky to be able to have it, but worried/scared at the thought of being on our own.

Hope everyone is doing ok on treament. I found EC really, really tough, mentally and physically but you’re all stronger than you think. I remember thinking, how does everyone else cope better than me and gave myself a hard time for being so ill. How much of a burden I was. Why couldn’t I just get up and be the parent a used to be. Strange how this all makes you feel.

My last docetaxel tomorrow. Hopefully it won’t be too bad so I can try and enjoy some of half term next week with my children xx

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@idcand49 think your friend needs to give her head a wobble :laughing: xx @fluffy888 good luck tomorrow hun. After my last one on Friday ive been waiting to feel ill. But not too bad unless it catches up later in week. I’m a little achey and have headache but nothing like the last two times. I started injections today so we will see what tomorrow brings. Take care. X

@debi1 ah thank you. I wasn’t too bad after my 2nd dose. My worst day was exactly a week later, was typical that it just so happened to be my birthday. Don’t get me wrong, I wasn’t skipping about as normal the rest of the time, but was nowhere near as I was bad as I was on the rest of chemo. Hopefully I’ll sail through this one, it’s half term next week, kids are home so won’t have any time to myself.

Glad you’re doing ok, :crossed_fingers:t2: you’ll sail through the rest of it and can start to get back to some sort of normality. Xx

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Managed to get through 2nd EC yest but felt a bit grim throughout both mentally and physically!!

I sm having to dose up on metoclopramide as feeling slightly nausea! Had a mammogram just before and results then sent to surgeon :+1: so that will be my next step, not sure yet what it will entail but a meeting due in Nov :crossed_fingers:

I am in same position as you @booklover1 and my half pay kicks in mid Dec, not sure what I will do but also wanted a change of job before all this so need to give this some thought :thinking: well done for working through it @idcand49 thats amazing.

Hope you all have a good Wednesday take care of yourselves :smiling_face_with_three_hearts: xxx

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@caz1970 :crossed_fingers:t2:for mammo to make your next step clearer
When will you know?
@fluffy888 I am off for a few days next week for half term too but as my kids are teens I’ve had to diarise time with them :joy:

They said the mammo was requested urgently so hopefully not too long to wait :crossed_fingers: they said a few weeks back meeting with surgeon would be mid/end Nov and surgery in Jan.

Xx

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Hi All

@fluffy888 hope it goes ok today & congratulations :confetti_ball: on getting to the last chemo. I hope you are able to rest up the rest of the week and have a great half term with your kids.

@caz1970 fingers crossed the symptoms are shortlived and the next steps become clear. I am not looking forward to my second EC.

It feels strange thinking about work again. I had a coffee with a work colleague yesterday who had treatment for skin cancer a few years ago and her 3 bits of advice were 1. Don’t rush back if you can manage 2. Try and get away for a break first and 3. Go for a gradual return if possible.

@debi1 hope the injection side effects are kinder this time. Congratulations :confetti_ball: for getting through. Will you have radiotherapy?

@idcand49 also have teen at home and half term I have to book time ahead. Last year we went to pumpkin farm this year its shopping :joy:

Happy Wednesday everyonexx

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@fluffy888 :crossed_fingers:for you feel ok lovely. @booklover1 yes I’m having 15 sessions. Not sure of start date but after 7th Nov. Feeling good and strange at the same time. The treatment takes over so much. I think as others have mentioned ill look into courses like what next? Still feeling ok ish after chemo. Take care ladies. Xxxx

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Hope it comes soon soon and surgery confirmed xx

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@booklover1
Your colleague’s advice is spot on and I wish I had followed suit. I am already being asked when I am coming in person more (already doing 2 days a week in the office DURING radio) I am actually a bit upset. I work 4 days a week so in person 50% of my working pattern while running to the hospital for radio.

Think it is my hormones (or lack of) that made me cry today wishing I worked for a more empathetic company.

I have entered to the lottery so wish me luck haha

And yes, gone are the pumpkin patch days for me too. Shame as the weather looks great for half term! I am also shopping and lunching haha

@deb1 – amazing you feel ok but get the “strange” feeling. I still have wobbles despite feeling physically better each week.

Hope you stay physically feeling ok.

x

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Great advice re: work thank you will bear that in mind, especially time away :grin: xx

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@idcand49 Well I think you’ve done amazing working 4 days a week. I certainly couldn’t have done that and have been off since I was diagnosed and won’t be going back until I feel good and ready. Your company want to be grateful that you’ve been in at all and should not be putting any pressure on you to work more. Sadly, it’s something that some people don’t understand unless they have been through it themselves. I don’t think your hormones have made you cry either, it’s the sheer unbelievable lack of empathy from your work place and no fault of your own. Hormones or no hormones, although I do blame them for most things. :joy: Hope you’re ok. Not want you need on top of what you’re going through. Good luck with the lottery. :four_leaf_clover:

@deb1 glad you’re feeling ok after treatment. Hopefully you won’t feel too bad at all over the next few days and will escape any bad side effects. Last treatment went smoothly today. Feeling a bit tired at the moment but ok. Hopefully won’t be too bad for me either.

@booklover1 last treatment all done. Feeling tired but ok. Hoping I’ll not feel too bad for half term.

Hope everyone is doing ok today. Xx

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I am sorry your work are being so inflexible. I feel annoyed on your behalf, as @fluffy888 says some empathy wouldn’t go amiss. You have done amazingly well working through this :heart: :four_leaf_clover: for the lottery, someones got to win it:)

I hope the radios going well & you are feeling ok. Enjoy your lunch dates next week with your kidsx

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