@booklover1 good to hear from you. We are on the same treatment. I had my 3rd EC last week and am really struggling. I didn’t leave the house for a week. One more to go- which I’m dreading. But im feeling ok now - day 10 since chemo but have stomach issues and feeling fatigued but can get out and about.
I didn’t cold cap and it was growing back before my last EC and it’s falling out again. So hopeful it does grow back quickly.
I’m sorry to hear of people still struggling post chemo. I’m so desperate to get back to life without cancer!
Hi @Bex1 I’m glad to hear you are turning a corner from your last EC. It really is miserable isn’t it? I am both dreading the 4th one and and looking forward to it being finished.
Good to hear your hair is growing so quickly even if it gets wiped out again by the EC. It gives me hope that mine will grow back. My husband has offered to put his clippers through my hair, I am still considering his offer
I hope everyone here has a good week and the side effects from the chemo, radio and new drugs are more easy to deal with. We all keep saying we have to be patient and healing takes time but its only human to be reaching towards feeling stronger and healthier and being ourselves again
I have bought a craft kit online (embroidery) which is really funny because its not my thing normally but maybe it will be my new thing!
Thanks for the hair update. I’m ten days post chemo. Feel ok but have been taking it mega easy.
Yes I’ve found some friends have sent one message and that’s it. Others text me daily or ask me to meet up (which keeps me sane) People are busy but I always say no one is that busy to send a message once in a while!
I had a little cry last night - seeing everyone getting on with their lives (with nice hair they can blow dry) . Yes I know it’s just the hair but we all know it’s not just hair .
I’ve had one zoldaex ten days ago and not sure if I’m getting the occasional hot flush? Just feel a bit of sweat on my hairline but nothing more yet than I had with the chemo and GSF injections…
Ah we must keep updating our thread with our lives.
I’ve been told to start my tamoxifen late December……until they decide I’m post meno.
Smiling at friends’ ‘ailments’ . Apparently our chemo brain is ‘just like me at the moment’ according to my increasingly irritating and all about her ‘friend’ of mine. I nearly agreed with her when she said her only symptom is not knowing what day it is. Gosh yes, you’ve got it. Spot on, that’s it exactly. Not a clue.
I think you may all see where this increasingly nasty friendship is going. I realised I started making excuses for her rudeness when I was relaying things to my partner that she had said over the last 6 months. “It’s not all about her anymore is it?” was his reply. Never a truer word, and some people just can’t stand it.
(Just thought - the contrast here is a lovely lady who works on the tills in a local store. Every time she sees me she asks how I’m doing, where I’m up to on treatment and even gave me a secret nod when I went in for first time in my wig. The kindness of near-strangers)
Hi lovely ladies. Had 4th radio today 11 to go. Its going well thanks @idcand49. Like a few have mentioned post chemo aches and pains but not too bad. Ive had brilliant support from some really special friends texting regularly and then theres my sister in law that l don’t see often but saw just as i got diagnosed in march and she was so upset for me. But guess what not seen her since and not one text. Ah well. My hubby has been great but dont get me started on the cleaning. Lets just say if l dont do it nobody does. Tell a lie. My oldest son helps. @ldm@alisona1 hope your 1st radio went well xxx @fluffy888 hope you are doing better my lovely. Congrats on your last radio on Friday glad you had some support frm mum and friends. @pipspops glad your 1st week is done. Love the pic. @booklover1@bex1 thinking of you with ongoing treatment.
Sending hugs to everyone
Hi all
Ive had an angry about chemo day today!
I should have had my last EC last week but delayed because of colitis from pembro. Hopefully this week I’ll finish as long as the bloods are good and my stomach has decided to calm down.
Meanwhile the steroids are puffing my face up and I’m super energetic 4-7am, then crash for the rest of the day!
Interesting times…
Great to hear the advances you are all making. Hair! I can’t wait to see new hair. Maybe I’ll get some for Christmas??
Xx
Fingers crossed all goes to plan this week for you - boy do the steroids blow routines, let’s hope you’re free soon.
“Dear Santa
We’ve been very good girls this year, warriors no less. Can we please have our hair* for Christmas, respite from aches and pains and a bit of a break from any other crap bits
*eyebrows and eyelashes would be a major bonus, but we understand if there’s not that much room on your sleigh.
Love
All the ladies from July 2024 Starters
Xxx”
Sorry about the colitis @cf640 that sounded awful. I hope the steroids have helped and your stomach is ok this week and everything goes smoothly for your last chemo
I am also hoping for hair and eyebrows for Christmas
Thank you!
It was awful for a few days, especially when they said they might admit me and i was thinking about how few toilets there are per person on the wards…!!!
I’m on a no fruit or veg diet which is very strange. Hopefully soon I can have a carrot or two or even raspberry jam.
Xx
Not had the best start to radiotherapy. Yesterday was postponed and today they couldn’t get my position to match the planning scan and so couldn’t deliver the treatment as they have to hit the right places. They are going to try again tomorrow - I’m feeling so fed up. Has anyone else had similar issues?
Oh sweetie, I really feel for you. How frustrating.
Fingers crossed it’s all sorted tomorrow, or an explanation why it’s not aligning. Not like you’ve grown 6” in height is it? X
Thank you @pipspops. I definitely haven’t grown in height and I weigh the same! I’m totally stressed out now in case it happens again tomorrow. I managed to hold the tears in till I got to the car today but if the same happens tomorrow I’m not sure I’m going to manage that. Xx
Oh bless you…… breathe and relax first of all, don’t be too upset, it will get sorted.
I think yesterday was very unfortunate as a starter but could happen at any time (machine breakdown, staff sickness etc) so whilst disappointing and compounding todays hiccup, try to look at todays as the first day. And one that can be sorted tomorrow hopefully.
I would be honest tomorrow when you go in and say you were upset and you are hoping for a positive experience as it is causing upset. Put the onus on the staff to give you a good experience tomorrow . If there was a mistake made in the setup it needs sorting. If there was a machine or operator misread, it needs sorting. Is there an option to ring someone this afternoon and ask what they plan to do with you tomorrow to resolve this?
The conveyor belt appointment times don’t help in sorting problems as they occur, but if you know how they plan to sort it, hopefully you’ll get a better night’s sleep and not be anxious when you turn up tomorrow.
Really hope you get sorted xx
)
but nothing more yet than I had with the chemo and GSF injections…
. Apparently our chemo brain is ‘just like me at the moment’ according to my increasingly irritating and all about her ‘friend’ of mine. I nearly agreed with her when she said her only symptom is not knowing what day it is. Gosh yes, you’ve got it. Spot on, that’s it exactly. Not a 
tomorrow is better xx