Which will you have first ? The carrot or raspberry jam?
Mine would be jam 
Hope youāre feeling ok x
So sorry love. Thats do bad. Luckily no i havenāt had any problems measuring up to machine. Really hope its better tomorrow sweetheart. Will be thinking of you xxx
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Thatās rubbish 
Hope tomorrow is a better day for you xx
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I cheated and had the jam!
Meanwhile they have cancelled my last EC and want to prioritise surgery over chemo. Iām on a high dose of steroids and i think my stomach couldnāt cope with steroids and chemo and colitis. So they want me to reduce the steroids in time for surgery.
I can have my PICC line out.
But it feels like a hollow victoryā¦one friend suggested i hadnāt been managing my stress levels. I was wondering that myself. The professionals didnāt say that but they donāt know meā¦
Iāll ask when they phone me today. Iām going to try not to fret!!
I hope the radiotherapy is sorted for today, @ldm
Xx
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Ah glad you have a bit of a plan.
Iām sure you have been trying to manage your stress as much as you can 
. Donāt beat yourself up youāve been going through a lot. EC is tough! Iām only just feeling normal now 2 weeks after my last one and I didnāt have all the other tough stuff going on Xx
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I think a situation like this deserves some jam
Sorry youāre skipping an EC but if itās doing more harm than good then itās the best solution
Does this mean steroid wean btw now & Jan?
Hope it does mean some respite for a few weeks
X
Hi @idcand49
Yes, Iām going down by 10 every 5 days so i just come off them a week before surgery.
I am wondering if anyoneās treatment has gone ahead without a hiccup or incident? Reading back through our posts, it seems as if everyone has had some problem!!
Xx
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Sorry about the last EC @cf640. Its tough when the plan changes last minute. Hope the call with your team was reassuring.
It will be good to have the PICc line out. New year swim?
If you are ok with the jam maybe a cream tea:)
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Hope it goes well (the weaning) x
@ldm I hardly dare ask - how did today go? X
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@pipspops - ended up there nearly 4 hours and had to go in twice. The 1st time they finally got the position but didnāt fit in the margins. The team leader (who was lovely) went for some advice. Ended up going back in and after nearly an hour managed to get the correct position within the margins. However as the team leader pointed out this would be too much for me to go through for 15 sessions (and tbh my arm where the lymph nodes were all removed, really hurt by the end to the point I thought Iād have to ask them to stop).
Iāve got to go back today to see how quickly they can get me in the correct position - they managed to get all the images yesterday. If timings are ok they will go ahead, if itās too long I will have to have another CT planning scan which would mean a delay. Iām totally expecting the scan.
Issue (I think) is they think boob is bigger than when had scan. I got asked twice If id put on weight (I havenāt, if anything Iāve lost a couple of pounds) or if Iād noticed any swelling which I havenāt - I get a bit of swelling round my lymph removal scar, but not my boob and that hasnāt changed for months.
If they say I need another planning scan then I think Iāll get the BCN to check there isnāt any swelling that isnāt obvious to me. The operated on boob is larger than the other one now, but again I noticed that months ago and I donāt believe itās changed since my original scan.
On a positive - the team were really good today and explained why they were doing things and apparently this does happen sometimes and itās there problem to sort. The planning lady who deals with problem cases like mine acknowledged what Iād been through this year and understood how hard a further delay would be. If it is another scan then Iām concerned the same thing could happen again, plus Iām not sure how Iām going to cope with a delay as the thought just really upsets me xx
Thank you to everyone who sent supportive messages - this group really is full of some amazing people
Just out of interest - how long did people wait from their planning scan to starting radiotherapy?
Apologies for the long response!! Xx
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Hi @cf640
I also had my last EC cancelled this was down to a personal decision by me as it was affecting my kidney function but more importantly I lost my Mum recently, she has been in a care home for 2yrs with dementia so although she is now at peace I will miss her dearly 
just glad she saw me through the worst of my treatment.
I have since been busy planning her funeral and just needed to have the strength mentally and physically to get through this. I have surgery early Jan and picc line being removed today 
Just thought this might help you know you are not alone.
Xx
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@caz1970 so sorry to hear about your mum passing. You have had so much thrown at you this year. Sending lots of hugs.
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@caz1970 so sorry to hear about your mum passing. Sounds like a good call to cancel the last EC and focus on what you need to with the arrangements and your health & get to the surgery as strong as possible. Sending you lots of lovex
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I was thinking of you yesterday and it was definitely a busy day for you @ldm 
. Iām pleased that you were dealt with both nicely and sensitively, even though itās not over yet it sounds like youāre in good hands. Goes to show it can happen, and perhaps our body shape can change a bit without us realising it, when we look at ourselves everyday we donāt see any difference.
My radio set up was done 2 weeks prior to starting (on my last chemo week).
Definitely easier said than done but take each bit as it comes - if all goes well at the next appointment you may have been worrying about all manner of problems that you may not need to. Youāve enough to think of 
Just a funny to report - walking down a hospital corridor this morning and the main doors were open so there was a breeze. I actually felt the wind through my hair for the first time in months! Felt really strange to have my hair blowing in the wind!! 
Hope all goes well today for you xx
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@caz1970 sending big hugs to you, Iām very sorry for your loss x
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So sorry you are going through this. From my planning and scan. Was around 2 weeks. Hope it gets sorted quickly for you. Sending love
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Many thanks @bex1 @pipspops @booklover1
xx
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@caz1970 i am so sorry for your loss. I think you made the right decision for you. Thinking of you hun. Take care of yourself
Many thanks @debi1, I didnāt take the decision lightly but just knew I couldnāt handle anymore 
I had 12 Pac/carbo, 3 EC all at full dose and latest scan was showing great response xx
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