I’m in bed by 9 too to face a night of broken sleep or night sweats
I’m gutted about my mate but I have bigger fish to fry like get a clear mammogram this week
It will mark (I pray) year 1 NED
I’m in bed by 9 too to face a night of broken sleep or night sweats
I’m gutted about my mate but I have bigger fish to fry like get a clear mammogram this week
It will mark (I pray) year 1 NED
@cf640 and @bex congratulations on finishing the radiotherapy x I hope you have minimal side effects from the cape.
I am still waiting for the results from my mastectomy, appointment next week. Hoping they don’t find anything else! My tummy is still quite sore from the DIEP and I have a new belly button which is a bit weird
It feel the same it is so hard to live with the uncertainty, trying to be vigilant but not overwelmed. Its good advice to concentrate on the “now” I need to work on making the most of the present. @bex your holidays coming up sound amazing! I have booked a couple of days out in May, its nice having something to look foward too.
@idcand49 I can’t believe your friend blew up at you like that. I am sure your other friend appreciated you coming out for drinks when you were not feeling great. I hope everything goes well with the mammogram xx
@deb1 I bet your friend really appreciates your support. I have a similar issue with my veins. It defintely puts you off blood tests! I hope the pains you are getting ease xx
Happy Monday xx
Hope the results are clear !
I’m hoping for some kind of reconstruction from my lumpectomy (the naughty boob is tiny & nipple not straight !)
How long has the tummy been sore from the DIEP?
I need to make sure this is not a forgotten “to do” (I was told we can chat fixing the boobs 6m after radio)
As for my friend she still hasn’t spoken to me (and we would call each other most days)
V odd
I have a scar hip to hip. It seems to be healing ok but tummy feels tight. I have to wear compression shapewear day and night for 6 weeks. I think the new boob looks good & is a pretty good match. Both boob & tummy have reduced sensation. I have started doing some physio exercises which I am hoping with help with the tightness.
There is a phase 2 in 6months to a year where you can have a nipple made or a 3d nipple tattoo & boobs evened up if needed but I think sometimes you can have nipple sparing reconstructions. It wasn’t an option for me. There’s a facebook DIEP reconstruction page thats helpful.
Sorry about your friend
Thanks hun
Good luck next week. Keep us posted hun xx
Sending big hugs @booklover1 . The worst bit is over now. You have done amazingly.
I can’t get over how strong everyone is, especially you. Having two surgeries and the last one sounds quite major. It’s not fair, cancer is cruel but we are lucky that we have this amazing treatments and this will, one day be a memory.
I know you have children, but do make sure you rest to recover. We are terrible at doing that but just like taking tablets, blood tests, etc. rest is equally important.
I have every finger, toe, legs and arms crossed for you. I hope you have the result you want. Big hugs xxx
My nipple was like that after surgery - pointing the wrong way and then I got in an ice plunge pool after the sauna (last week) - and pop! It came back to life and since then has faced forward. So there is hope! I had surgery in January.
Thanks @Bex1 for your kind words. I have been taking it easy the last few days as feeling so tired. Children are all home for Easter break and I am letting the chaos revolve around me Hope you have a Happy Easter
xx
Thank you
HAPPY EASTER
ladies. Hope you all have a lovely weekend, don’t eat too many eggs. Oh go on then. You deserve it.
Hope you’ve all had a nice long weekend ladies and everyone who has had treatment and surgery recently is recovering well?
I’ve been struggling a bit recently with the lifespan thoughts again - it was my mum’s 26th anniversary recently and my dad’s 18th, one breast cancer, one lung cancer. BUT, it’s done me some good, today I’ve booked a holiday, going in less than 2 weeks . Took your advice @bex1 live each day……
Although physically I feel a lot better, apart from the arthralgia from Letrozole, I’d been holding off, thinking I might have had news of my next mastectomy, not really wanting to go somewhere hot with one big tit (my partner jokes he’s coming anyway), and a giant jellyfish prosthetic. I thought if I wait until October time, what am I really waiting for? If my surgery takes place in the summer, I may not be recovered and we’ll have missed another chance. So sod it all, we’re off holibob time
Off to buy my sun cream………
Get that holiday booked
We have all waited far too long, we are off to Portugal in 2 weeks too and I’m hoping it will help my aches … tho first holiday in about 30 years with short hair !
I think the lifespan thoughts will always be there, sending love
Good to hear holidays are being booked I have booked a trip to Spain in June, first time abroad since March 2024, as just after this plucked up the courage to get my lump checked and the rest is history
I am just about to start cycle 3 of Cape so nearly half way through! Had tummy issues, nausea etc but anti sickness is helping with that! I also had first zoldronic acid infusion 3 weeks ago and had flu like symptoms for a couple of days after.
Been back at work for a while now but do find chemo brain is still a thing so struggling a bit with that! Still have radiotherapy to go through probs July time, but for now just want to get through Cape
Hope everyone is doing ok and finding ongoing treatment ok
Xx
Ha ha, never thought about the hair (makes a bloody change )! Yes, same timing for me.
I’m waiting to see how hard it will be getting out of the plane seat after 3 hour flight- be a right old woman
Have a fab time, one and all xx
You’re inspiring !!
I need to throw caution to the wind (in life as well as hols)
I’m just on my way to find out my mammo results from last week
Feel sick tbh but hubby mtg me & will have a toast whatever the news is
Only live once as they say xxx
Really hope it’s good news for you sweetheart x but do toast a year of progress, regardless
I think it has to be “if not now, when the hell?”. My feelings are currently “not dead yet, so get on with living while you can”. A luxury not afforded to everyone a year from diagnosis, so how lucky am I to be as normal as I am?
Our last hol exactly a year ago this week was already booked before I’d found my swollen boob, so we went away with a new diagnosis confirmed and surgery date set for a couple of weeks later, thinking we didn’t know when we’d get the next chance of a holiday abroad.
What a difference a bloody year makes eh? How many unexpected experiences, tough feelings and pigging hard shit have we been through? Even got to find out who our friends really were!
So, out the other side of all that shit, I’ve not to think about what I look like with the one big tit (I’m damn sure I care about this WAAAY more than anyone looking at me). My partner needs a proper holiday, hell I need a proper holiday and a change of the four walls.
Literally dusted my suitcase off today and maaaan it felt good
Good for you onwards and upwards… we all soooo deserve our holidays/days out etc. xx
Enjoy looking forward to your holiday!
I’ve realised absolutely no one gives a damn what we look like so why should we?
I went back to work and I said to someone - I’m back and they said why have you been off? I said yes for 11 months! Like I said no one gives a damn
Enjoying being back at work though - despite some people not even noticing I’ve been off x
How was your mammo?
I’m wondering how my boob being squeezed will feel after surgery???
My original lump wasn’t even seen to be an issue on the mammo/ or ultrasound despite me showing them an obvious lump and I was sent home. (I had an mri 6 weeks later after an eventual biopsy after pushing for a further check) and that’s the only thing that picked it up) so I’m wondering how I can trust the annual mammogram?
I’ll prob be worrying that much I’ll want to go in to have it checked anyway??? Anyone else feel like that?
Oh bless you that someone hadn’t realised you weren’t there- I don’t know whether to laugh or cry at this
I’d be sceptical in your shoes for the mammogram too, I got sent home from the GP surgery 2nd January last year and told to take ibuprofen for a month when I showed them my boob with a quarter chicken fillet swelling across the top… but after your mammogram I’d certainly be upset. I went private just for my diagnosis after I’d waited almost 3 months and no sign of a breast clinic appointment (as well as the 1 month ibuprofen fob off). I was 2 months shy of my 3 yearly mammogram by then but I wonder now if something was missed on the previous one, when it took a 3D colour mammogram to show up what was actually happening. Dense tissue apparently.
I’d like to think with our history now, perhaps a more detailed ‘look’ at the results? Hard isn’t it? As an ardent and lifelong supporter of the NHS, in this case my going private for a mammogram to get an answer may have improved the outcome as it probably made up some of the time lost in fobbing me off and diabolical waiting lists to get through the breast clinic doors. I had a diagnosis in 10 days after months of radio silence.