Good luck today new starter ladies. X
Just finished and back home now. It took 2 hours in total. Quite anxious at first but feel much calmer now I’m home and I know the first one is done. Just waiting now to see what side effects surface. I have a bag full of anti sickness so hoping it keeps nausea at bay. Hope the other ladies starting today have got on ok xx
Millasmummy and Belle. Good to hear your both home and things aren’t too bad. Hope all other ladies are doing ok to. Xx
So glad you’re back home and ok xx xx xx one step closer
Glad your ok Belle and Kalimera. I’ve just taken the dog for a walk and feel ok, sitting down now thou. I feel fine, but the colour has drained from my face, I definitely look paler. Anybody have this already? No sickness yet! But tired but nothing major. How are you feeling Foxy214? Thanks Netti37 and Buster for messages. Hope you all have a good night. Xxx
Sorry to hear that Mollymay. These decisions are so hard to make. I hope your treatment goes well and you have an easy ride. Big hugs
How are people this morning?
I had a rough afternoon/evening. Didn’t actually throw up but was horribly nauseous. Also diarrhoea, aches and feeling cold. Didn’t have too bad a night, slept till 1ish, dozed till 3 - discovered ginger beer at this point and oh my, it is sooo good! Then got another 4 hours so pretty good all things considered. My tongue is very tingly and mouth is constantly dry so I’m drinking plenty. Still got diarrhoea (lovely!) but the nausea isn’t so bad. Planning a day of dvd watching I think.
B x
Hi all, I’m OK yay!! 3 days in and just tired and the steroids have kept my head above water. Stopped taking the anti sickness today as I feel fine and I’ve rediscovered my appetite past few days too.
Feel shattered but not sleeping great but only 2 more steroids to take tomorrow then I’m hoping sleep will come.Kids at their dad’s this weekend so a lazy day for me tomorrow chilling out on the sofa, bliss!
All in all not been too bad, slight constipation but not anything to be concerned about. X
Hi ladies. My 2nd day has gone better than I expected. I’ve had a dry mouth, things taste a bit different and feel a bit tired, but nothing major, no sickness either yet. The nurse asked me if I was sick during pregnancy or got travel sick and I answered no to both, and she said you might not feel sick, and touch wood this has been true so far! I’ve also had my bone scan result which was clear. So that’s one bit of good news 
Xx
Hi Ladies, hope everyone is doing OK after your treatments.
Belle, I had really sore mouth too, at one point it felt like my tongue was swollen (it wasnt but felt really strange) getting better now, I found a taste for strawberry milkshakes and they definately helped and Ic e cream and Jelly. Feel like im a child again.
Had my mid way check up today, bloods only slightly down so that good, the injedtions they gave me to boost my immune system must have worked.
I had a bit of a scare this morning, woke up at 2 am with really bad achy pains in my lower back and groin and shoulders, took some pain killers and it seemed to ease but was a bit worried, been told it is normal side effects of both the chemo and the injetions they have given me, and also my kidneys may be irritated and to drink more, this was a side effect I didnt know about it.
My 2nd treament is booked in for the 22nd June. Just starting to feel human and its going to start all over again.
Keep strong everyone.
Julie
Hi everyone, just an update. I came in hospital on Mon (had chemo on Fri 3rd) with suspected infection of the Hickman line I had put in on the 2nd ? really shivery but temp no higher than 37.7 (this centre not too worried if under 38). I felt weird but as just had chemo, what weird is expected? Anyway been on IV antibiotics since. Moved to solitary today as white cells dropped. Had a nightmare with food. As a vegetarian and a tad nauseous i was basically offered cheese and biscuits for each meal, some kind lady yesterday though managed to get me an omelette off the children’s menu. I find some staff do really try to be kind. But after being offered chicken stew by someone else because"some people think of chicken as vegetarian as its not a mammal" I lost it a bit and almost cried. Getting frustrated not getting back to normal as id hoped, then low and behold they now suspect a clot on the lung and the Hickman is blocked after just a week ?. I keep trying to pick myself up and be strong for the family but I’m getting increasingly scared. Having the Hickman line in in the first place was bad enough with having to try several times and now I dont know what they’ll do. On a good note the SE of the fec were minimal in comparison. Similar to you after the initial few hours of nausea needing an antisickness injection, things settled well. I just hope they can save the line and get on with the next session without any more drama. Thanks for letting me vent, I feel because the staff see this every day some if them think you’re a diva if you ask for anything different. But woman cannot live on cheese and biscuits alone not if I’m to fight this off. I’m glad you all seem to be comfortable and being the warriors you are. Big hugs Buster 1
Thinking of you buster1.
Xxx
Thanks Julie and B, I need a hug this morning. The supervisor did come to see me on Tues with an array of menus promising allsorts but then chicken arrives or something different from what I order. Depending who’s in its a take it or leave it. Some are lovely and try to find something. My family do offer to bring anything I fancy, my89 yr old mum would love to send me veggies if I let her ?. It all got a bit much yesterday with the chicken comment and everything seemed to be going wrong. I feel a bit calmer today, just waiting for a scan but they cant get a vein again. Never mind I have you lovelies sending me hugs. I’ll perhaps give my hubby a list of treats id like, maybe !! xx lol
Hi Buster1, sorry to hear about your Hickman line I hope they can get that sorted ASAP so you can go home. It’s unacceptable about the diet, you’ve got enough to think about and conserving your energy than to have keep reminding the staff whose job it is. I hope after their blunders they’ve now got your diet requirements firmly recorded for all catering staff to see.
Good news about your SEs though, not to horrendous. Hope your back home soon. Big hug x
Hi all. Day 3 after chemo - appetite has changed a bit, seem to just want to nibble food, but often, and water tastes different but still drinking it. Wierdly my forehead feels bruised! A little bit of nausea this morning but seems to have gone now. Steroids are making me a bit hyper, but also given me energy I guess. I’ve just been for a walk but now need to lie down. How is everyone else doing, those who have and haven’t started yet? X
Hi everyone, I’m so glad to be able to read all these messages. I’m going to be seeing the oncologist soon. I had 6 / 15 positive nodes after my axilary clearance and lumpectomy on 3rd June. It has been so informative to read about what I should expect to go through. Diana.
Hi ladies
I start chemo on the 24th June so thought I would join if that’s ok. I went to Christies and got my wig yesterday. I found the experience quite liberating as I feel that I’m taking charge before anything happens. I also looked at some beautiful head scarves and hats which I am planning to get on the 22nd when I am next at the hospital to have my bloods taken before chemo on the Friday. I’ve read all the information they have sent me and it all sounds so frightening but obviously because I haven’t started I just don’t know how to feel.
It feels very strange at the moment as I am quite calm about it all. I’m scared but not overly so. There is so much to take in and there is a lot to absorb. The patient support department were absolutely brilliant, making sure that I knew that they were there to support me through all my treatment. I have already been booked on the look good, feel better course next month.
My OH and I talked about everything really early this morning. I think it was about 2 o’clock this morning when he woke up and wanted to talk. This doesn’t happen often. He surprised me by how seriously he is taking it all.
How did you prepare for chemo? Is there anything I need at this point to be ready to start?
Good luck ladies.
Love Sonya xx
Hi Sonya, the ladies on this thread are fab and are a great support. I’m in hospital at the moment hopefully going home tomorrow but am really struggling to reply to messages. You will hear from them tomorrow and ask anything you need to. I just wanted to reply so you know you’re very welcome. Xx also B I have replied to you several times today but having problems sending so will sort it out tomorrow when I get home ? xx thanks lovely ladies for kind wishes
Hello lovely ladies, I survived the first chemo!! It wasn’t easy I was completely wiped out with extreme nausea a cross between morning sickness, travel and sea sickness for 5 days. I had Emend and lots of other tablets but for a while nothing really helped. The steroids gave me horrible nightmares as well as a puffy bright red face. It was not a pretty sight! I had not expected to feel quite so poorly, the chemo nurse rang every day with suggestions to tweak my meds and says next time will be easier. I can see that some of you have also had a rough time, we will get through this, together we are stronger. Now on day 10, my appetite has returned although everything tastes sweet not bitter, energy levels better than they were and I have even ventured out to the supermarket armed with my anti bacterial hand gel. The sun has been shining it’s good to be alive? I cold capped during my chemo but am not sure whether or not to continue, my hair feels like straw and as I am trying not to wash it so often it feels horrible on my head. I figure if it thins out I will still want to cover it up with a hat or scarf, what do you ladies plan to do? The week before my chemo I had a wig consultation at a lovely salon which has a whole section devoted to hairloss and wigs. They spent time discussing the reasons for my hairloss and had lots of practical suggestions. My sister came with me and I thought I would be upset but in fact I enjoyed every minute of trying on all the lovely styles and colours. I decided to stick with my usual style so that even if I didn’t feel like myself I would at least look more like myself (if that makes sense?). The hairdresser suggested I have a slightly lighter shade as my complexion is likely to get a bit paler during my treatment. I was even given instructions on how to care for it! Now it is ready when I need it and it’s something I am in control of. I hope you all have a good day today,
Hello,
I’m a newby …
I had surgery on May 24th for a med lump in left breast and 8 nodes removed - 2/8 proved positive.
This is all from a routine mammogram in March… Thank God for Mammograms,
I’m still recovering from visiting the Oncologist on Friday and being told what’s ahead…
I knew I was seeing him, but only on the way did it dawn I was going to the Chemotherapy Clinic!
A relative who has gone before, has been so helpful and told me about this Group on here…
I’m not sure if I’m posting correctly yet…
My treatment should start this next week, but next weekend I am off to see Lionel Ritchie in North Wales on my (68th) Birthday weekend.
My lovely Professor has postponed a week, and offered me anti-sickness for going to watch Lionel - haha!
I have my Assess and chat at Halton (Runcorn) on the 21st.
PICC on 23rd at Clatterbridge (Wirrell) (Had never heard of this before!)
1sr treatment on the 24th…
Like you Belle, I have rammed the freezer with soups. My nails are pathetic already, but am putting similar protection on. On Thursday, my lovely bob will get a funky ‘Chemo Cut’ …
Best wishes to you all…
Ange