@cdc my mums cousin had breast cancer which is my first cousin once remived like you ( mums dads brothers child). Is that a close enough relative to form a link? They asked me at the hospital if anyone in my immediate family has had cancer. My cousin has but her mum and aunt and cousins not on my side of the family have had or have BC.
Ps. I was on the rosco trial but have come off it as having surgery in london as got a second opinion. London want me to do all chemo first. Have had 3 FEC but the size didnt alter after 2 cycles. Am now having 4 docetaxel and then an ultrasound. If i respond 2 more docetaxel. People usually respond to docetaxel they have said so assume 4 more cycles. x
That should say 2 docetaxel then an ultrasound.
Hi Linda
My appointment is at 10 on Wednesday. I will look out for you. I’m having the docetaxel first, two rounds done and I have no idea yet if there has been any response. I’m sure I will find out soon enough. ? Hope to meet you in the real world Wednesday.
Jacq x
@Jacqb Didn’t you have an ultrasound after the second cycle? I am using the cold cap so start at 10 really. Yes I will look out for you too. x
Morning all, welcome Reddi. Day 5 if 1st chemo session, not words I was expecting a year ago but that’s it I’m here. And to be honest after over doing it yesterday I’m pretty ok just achey. Insomnia still here lol, other half snoring peacefully at the side of me. I am blessed, and have told him your suggestions regarding Macmillan and encouraged him out for a drink with mates so I hope he does. He has said he is coping and just wants to support me the best way he can and to tell him if he can do anything differently. I truly am blessed. Today I will be taking it easy in the shade while him and the step children potter and play in the garden. Happy positive day covered in factor 50 and under the pagoda the other half loving built to keep me cool. Hoping you all are well and staying healthy and positive as can be, sending much love to you all xx
Me again. Quick medical one ladies. Pill and injection day change for me today and last night I noticed my ankles swelling looking puffy. Heat? Drugs? Steroids? Any one else had this on their first round. Xx
Morning Lisa Marie,
Not had swollen ankles I’m afraid so can’t help you there? I don’t recall seeing anything about it in the list of possible side effects either so it may be the heat. You’ll just have to sit with them up and a cool drink 
I’ve woken up with the back and hip pain again. Bang goes doing the garden today. I had it at the same stage last time, the middle weekend between chemo (I’m every two weeks) when I finished the course of injections. I’ll definitely ask this week if I can do say 6 instead of 8 then I might get away with it next time. Hopefully like last time it’ll only be for today.
Morning Sally. Hopefully like you say it will only be for a short time with the pain and you can go back to less injections making it more manageable. Sounds like you could do with the feet up in the garden too. I start the injection today and the ciprofloxacin so not looking forward to the side effects from those that you have all mentioned tbh. Hope you have a great day and are in less pain later on xx ps Lisa is just fine, Marie is my middle name and usually only get called that if I’m naughty (even at 39) lol ? xx
Thanks Lisa,
I’ll be feet up watching trash TV and football today I think. It hurts less when I lay down so I suppose I’ll have to force myself to do that. I’ve seen a few people mention antibiotics but Ive not been given any. I think different areas/hospitals make up their own rules.
@cdc. I am having my op at the Royal Marsden. The hospital locally only asked re my nuclear family. I am Er+ 8 but will double check later so thats the highest it can be then. In Looe again for a nights break to help get us through this as no hols abroad prob this year. Its raining here heavily. x
Hi Cdc,
I was told by chemo nurses the best thing for any sore mouth issues is warm salt water gargle. It works a treat for sore throats so will probably do the job.
I’d love to be in Looe right now. I love Cornwall and even though only down there a month ago it feels like too long ago.
Hi all. Wow I’ve missed so much chat no logging in yesterday, I’ve had to read through to catch up. The chats regarding genes etc are very interesting, my team didn’t ask much, I have aunt on both mum and dad side who had BC, and they said it didn’t count? I am her2- and er+ 8/8 does that make a difference? You seem to know so much more than me. Glad you all seem ok, hot though isn’t it? With a wig hotter still… now starting the count down to chemo ,2 tomorrow, getting the fluids in. Kip
My onc nurse said use salt water, the help line said i corsydyl but you may need to water it down as it’s quite strong, I also used biotene mouthwash it’s designed for people having chemo and helps dry mouths. My soreness went after a week.
In my family I’m it as far as BC goes, no family history whatsoever. As they reckon one in three gets cancer and I’m second time around, I reckon I’m taking one for the team.
Been reading up on the connections between oestrogen, breast cancer and type two diabetes which I was diagnosed with a couple of years after the first breast cancer despite not fitting the usual profile. Bloody hormones, who needs them.
Hi Kip. I was having bloods at 2.30 yesterday and chemo tomoz at 1 so may see you. Got my MUGA tomoz at 8.45 so theres going to be lots of waiting around for me. I will be with my sister so if u see 2 ladies in their 50’s it will be me and my sister!! (Altho we look a lot younger ha ha!!). Theyve put me in the “coastal” section last 2 weeks so i mite be in there again? The nurses are brilliant up there x
I blame the oestrogen on having to pluck my chin, still at least the chemo should sort that for a while
@cdc. Yes Looe was fab ta. Had a lovely meal yesterday with 3 types of fish. Do you mean the possibility of keeping the left one? I am ER+ 8. Èek. They said it was a good thing as hormone treatment would work for 10 years. Not sure after that though but I don’t think theres any research yet. x
Kip, only had two lots of weekly chemo so far. Have felt sickly most mornings but havent been sick. Dry mouth and constipation are my side effects. Trying to introduce more fibre into my diet to see if it helps. Dont think my sis knows anyone else whos going through cancer? BTW my name is Julie x