Wots your friends name? I will check with my sister
Hi Ladies, just gearing up for Round 2… should be starting at 12 o’clock but as we all know, that’t not always the case… its so hot here today, I hope the hospital is cooler as can’t bear the thought of a heated pillow on my arm and being this hot, might just throw my wig off mid chemo… hope they’ve stocked up on ice lollies! Take care all, I’ll be reporting in later with round 2 news… enjoy your days…
Kip
xx
Wishing everyone having chemo this week, minimal side effects and speedy recoveries!
Be kind to yourselves too!
Xxx
Hi everyone. I’m back from my weekend away! Not been able to update you because there was no signal or Wi-fi!! We did cycle up a big hill on Friday evening so we could check in the ‘kids’ (21 and 18!!).
We had a great time and the fly fishing was fab. Check out Exmoor Fly Fishing FB Page if you want to see!
CDC I also ha be ulcers on my lips. Igloo helps a bit. Other than that I am well as far as SEs are concerned. However, being allergic to the pile cream the dr prescribed has not been fun!!!
Love to all Kxxxx
HIi,well round 2 done but had slight hiccup as hospital called to say white cells low so had to go early to have another blood test, after wAiting and hour they were high enough for chemo then had to wait another hour for drugs to arrive but administer in 15 mins! Now have the dreaded injections to use… any tips most welcome… do I give them morning or night are they painful? Also have the antibiotics too,loaded up to the brim with stuff now. Feeling ok at moment. So fingers crossed …
JuJusorry didn’t see you I don’t think, I was right near the door but may have missed you u, hope it went well.
Ktk sounds fab fishing glad you had fun. Make the most of the good days… go have fun! kip xxx
Thank you Ladies for all your kind comments, I’m feeling a bit better now. Dealing with “Chemo brain” now, the feeling of a constant head cold. The heatwave has been killing me, I look like an old Granny when I go out with my long skirt, cardigan and wide brimmed hat. But I have no choice, my skin feels like paper. Lots of moisturising is key.
Going shopping this week for fruit and vegetables to create some juices, have been craving beetroot and apple juice as well as carrot, apple and ginger. My daughters are taking me for a spa day as a belated birthday gift, I can’t wait.
I hope everyone is getting on well with their treatment and catch up with you all soon. Xx
Kip, the injections aren’t painful. I was doing them morning but I’ve switched to night for the second lot just to make my morning routine shorter when I’m Tring to get out the door at 6.30 am! I’ve had the bone pain twice with them but only the day after the last injection. I might ask if I can have a couple less next time to try and dodge it altogether.
Glad your second one went OK. Despite the cold cap I am losing a bit of hair but it’s not noticeable… I’m keeping it in a plastic ziplockbag so I can keep track.
My 3Rd one Friday. I’ll cold cap again and see how it goes.
Pinch?
I just shove 'em in like I do my insulin. I do have to count sides though to remember which side I’m doing it, I remember where I took the first one and count from there.
Injections are fine. Pinch an inch any go in at an angle of 45 degrees. Definitely take the syringe out 30 mins ahead to warm up, otherwise it stings a bit. Also, don’t forget to dispel the air first. I had one night of bone ache, but now have codeine so will take before bed next time.
BTW did I say that I have started to shed?! I hope I still have enough for the school prom on Thursday. Don’t want to scare the kids!! Kxx
Thanks for tips re jabs, I’ll see how it goes tomorrow, nurse suggested about 6pm to take it and to use paracetamol for bone pain. I had a practice on. Fake belly at hospital today.
ktk … the shedding has begun, oh dear thAt was distressing for me but now bald and it’s fine, quite bravely took wig off in chemo… it makes you rebellious I find!, hope you don’t scare the kids at prom, my son has his on Friday and I’m going to see him off nausea or no nausea!, No BC is making me miss that.
Hello Kip, yeah sorry we missed each other. I had my MUGA today at 8.45 which finished at 10.30, went down to day unit to see if they cud bring chemo forward but too busy. So walked up to Greggs for a sausage roll!! Got back at 12 but they still didnt do chemo till 1pm. Finally left at 4pm. Very long day. Bit tired now but ok really. I was in the bay behind reception today.
Kip, whats the injections that you are all talking about that u administer yourself? Dont think i will ever be able to do that? My veins were playing up today for the MUGA dye, had about 5 attempts in various veins before one was ok. Thank god my chemo goes in via a picc line. Julie x
It’s the Filgrastim to boost the white blood cells Juju.
Thanks Sally. I guess at some stage i may have to do that then? Only had 3rd weekly chemo so far, another 9 to go before i go on the 3 weekly Fec. Which takes me to December, roll on Xmas is what im saying this year!!
Sounds like you’re doing yours in the reverse order to me juju.
I think different places do things differently. A few ladies here are taking antibiotics as a matter of course but I’ve not had to. It also depends on your blood test results. Having said that, my first results were fine but they still gave them to me.
Well morning 1 following my second weekly pacletaxol treatment and am awake with the birds. I have to say I had very few se in my first week. The worst I can claim were very achy legs on days 3 & 4 but I don’t think that cleaning my granddaughters play house inside and out helped them much ?.. but a couple paracetamol soon sorted it out. I did feel very tired usually around the mid afternoon and was ready for my bed between 8.30 & 9 most nights…i think i need to listen and take notice of my body so that i don’t over do things but I was able to work from home pretty much every day and managed to venture out to watch the football at my son’s house and spent a lovely afternoon on saturday with family celebrating what would have been my dad’s 73rd birthday (we lost him 18 months ago to cancer).
So my treatment yesterday started really well. As I am still waiting on my PIIC line I made sure I drank lots before to help with the cannula. Pre meds cocktail all went in fine and cold cap was still bearable. When they put up my taxol as before they said if you feel anything different let them know. My OH went of to the pharmacy and within 2 mins I had the “anything different feeling.”. just felt like a swirling feeling in my tummy that was moving upwards.
Fearing that I was going to be sick, which I am not good with at the best of times so in front of quite a few strangers is not good, I pressed my buzzer. As this weird feeling rose I started to get very hot and flushed. In seconds I was surrounded, the drug was stopped and as quickly as it started it stopped, thankfully minus the sicking part. I was given some hydra cortisone and restarted 45 mins later and I felt fine, the doctor has now recommended that the hydro cortisone go in as part of my pre meds. It did take a really long time to drip through the taxol following my blip so ended up being a long day.
So far this morning i am feeling ok so fingers crossed it stays that way.
I have been reading everyone’s posts over the last week and it really does help in all sorts of ways. My OH and my family are so supportive and I couldn’t wish for better. But you ladies are supporting in some of the ways that they can’t and for that I am grateful.
Hope everyone has a good day in what ever shape that comes in for each of you.
Much love to you all
Xx
Ps sorry for the long post i will try and do smaller ones in the week ??
Hi Kell. Don’t apologise for the long post. They are all great to read, long or short.
Glad you enjoyed the FB of me fly fishing cdc. I can’t wait to go again. It was really interesting learning something completely new. I can’t recommend it enough.
The prom is our Y11 one at school. I am their HOY, and feel so bad that I abandoned them in the few weeks before their GCSEs. I promised them that I would still go to prom (took enough effort to organise it!!!) so I do want to see them arrive at least.
Taking my daughter to Cardiff today to meet her uni friends and view their house for next year.
Next chemo session on Wednesday 11. Can’t wait ?. Have a great day everyone xx
Hello all, well day 2 and feeling ok, I was very tired last night but was hot didn’t sleep great… so hav3 laid in this morning once daughter got off to school and just read, nice just to chill.
cdc … I have my bloods done 2 days before chemo but the white ones were low so had them redone yesterday. Was just glad chemo was done as don’t want any delays getting this over with.
juju … I must have missed you coming in then, I was sat right in front of reception in Country bay… and was there from 11-2.30 it’s so busy in there though isn’t it? Maybe next time, I’m in on 23 July. Glad you are doing ok though. At Ipswich they give you antibiotics for a week each cycle to help the blood count but if they don’t work then you get injections to help… I’m doing first one tonight ??
just got a new turban style hat in the post, only £1.99 from eBay, quite comfy but not sure if I look more like a fortune teller! Perhaps I could make some money on the side. ?
Jell my darling keep eye on yourself for any funny feelings nags this cycle, I was like that on my 2nd t, I got put back in fec for my last Chemo and other ladies who reacted to t went on abraxane, just to let you know 
Gives you options when you speak to your onc ???
shi xx
Hi Kip
Wore my bandana to visit mother the other day, I quite like it…she asked me where I was keeping my crystal ball! ?