oh dear not looking forward to next weeks poisoinng then! Sally I like the sound of your brass band bottom… bet you kept the man outside thoroughly entertained!
Honestly, I really was the wind section!
Had to go out 20 minutes after got home for gp appointment he was running over half an hour late and just got in. All in all a long day after going oug at 8 am. He gave me a prescription for clexane as I’ve not had an appointment from the hospital which I was told I’d get to review. He’s going to refer me himself. He asked if I was going to sue and said he would if he were me which is nice to know.
Sally, just read on Wikipedia that if diarrhea is severe then then should reduce you dose on the T by 20%. Just been reading up about it because I start the T next and already suffer from IBS D so know what extreme diarrhea is like, (please excuse my language here ladies) but it’s this peeing out you ass. Not pleasant and very embarrassing when your caught short. I’m going to talk to the oncologist about it to see if prevention can be done i.e Imodium instant taken the day of treatment so at least I can get home. From what I understand it the meds leaving your body that is causing it and will do for around 80-90 hours leaving the body. If 4 or more episodes or severe contact helpline or gp. Hope this helps. Please read the Wikipedia, Macmillan and breast cancer care info pages some good information on there for this side effect and the others too. Take care and drink plenty of water and may be dioralite (think that’s how you spell it, if it allowed) to replenish body salts. Take care and much love xx
P.s it also says don’t eat or drink grapefruit as it makes symptoms worse. Will try to put screenshots on in a min. Is yours done through cannula for about 1hour every 3 weeks? It also suggest slower with more fluid or one a weekly basis xx
Ooh thanks Michelle, thats something to look foward to hey! I’ve always had the opposite with my IBS and in fact its actually been better since chemo… weirdly… or I’ve just got so much more to worry about I haven’t thought about it. How are you feeling today?
The diarrhoea though isn’t site.ce I’ve been on the T, it’s since I’ve had to have the anticoagulant injections and also a sometime side effect of metformin for diabetes. Normally when I get iy it’s very first thing in the morning and I’m ok from about 7.30 onwards. Yesterday just came a bit later…sods law really.
And there’s no chance of me eating grapefruit
EVER! 
Sorry I should have read all in one hit.
Mine is once a week through a canula but I’m Taxol (paclitaxol) not Docetaxel)
Morning Kip. Think you have a bit of chemo brain, you have called me Michelle a few times, don’t mind usual get called Sarah as a mistake, must look like one. Feeling surprisingly chipper thank you. Manage a quick trip to B&Q for some gorgeous flower and some new plant pots and a food shop and steak stir fry yesterday! Was unknown on last 2 because felt so ill on them, Ryan has send you sure you had your chemo, it’s weird, waiting for the slump to kick in. Knuckle still red and vein blobby but that’s about it so putting hydrocortisone cream on it. Posted a couple of pics of hair loss and lightening. Still got some but gone really light and didn’t loose on cycle 2 just odd normal strand. Liking plain turbans with twist knot head bands at the moment, that is till get sweaty and whip it off in middle of street, which produces some funny looks. How you feeling? Is yours IBS C or IBS Mixed? Had mine since food poisoning abroad for many years and tried all the drugs. Control with diet and Imodium now. Would love to eat certain foods but stomach can’t tolerate them i.e Curry’s, fizzy drinks, lager and eggs surprisingly, love Lisa xx
Sorry Sally my mistake, must check my leaflet later to check which one mine is, Taxol is the original drug and Docetaxel is a derivative of it from what I understand. Be Sod’s law I’m reading the information on the wrong one ? xx
I think they are very similar. From what I’ve heard the taxol tends to be very well tolerated and so far it has been so me.
I think I have the same turban thing as you I the middle picture. It’s not been cold enough for me to wear it. I still have loads of hair although got a bit thin on top but I can cover that by sweeping hair back. I think the rest of it is still growing though the way it’s sticking up all over the place.
Got a couple of them in red, blue, black and grey. They are pretty on their own but wanted to jazz them up a bit hence the obsession with knot hair bands atm. Loads on eBay in very pretty patterns at cheep prices. Brought a couple to match color wise for all of them xx
Elasticated backs and like a entwined knot at front xx
Yeah I got mine on ebay. I think it was only about 2 quid
HI Lisa (yayyy) sorry for calling you Michelle - definate chemo brain! My IBS started when I turned 40, had a few years of lots of tests, scans etc and they put it down to that. I suffer more with C than D and it has really improved over the last year or so, I tend to get flare ups which leave me with indigestion and pain higher up. Thankfully its not been too bad of late. Garlic upsets my tummy though. I love your photos, you look fab and you still have some hair, thats good too, mine is 1/4 inch (if that in places) of spikes, but a bit sparse and looking very white so still pretty much bald. I love your hairbands with the turbans, I hadn’t though of that, might have to do some online shopping in a mo! Glad you are feeling good this time around, you deserve a good round don’t you. I am having Docetaxal (T) not the other one sadly has SallyG seems to be flying through hers. Hope mine is as kind.
It fine Kip honestly, as I said get called Sarah a lot, and because there is a lot of L names in the family I usually get called one of the others or blondie! Had my IBS since in teens from a holiday in malia. Long time to get it under control and still have cheat days but make sure not going anywhere, love a dippy egg and soldiers. At 39 just started suffering with heart burn and indigestion during chemo and wish I hadn’t, gp given me some heartburn tablets, as it gets so bad feels like a panic attack. Just checked and I’m having the Docetaxel to, chemo brain thought it was but had to check xx
Hello ladies
Can I interest any of you in a game to help us combat chemo brain??? It’s on this forum in the coffee lounge /chat and games section and is called word association again. I’ve been trying to play but it only gets s very occasional other visitor and it’s not much fun playing against yourself
I think this link might take you to it
forum.breastcancercare.org.uk/t5/Chat-and-games/WORD-ASSOCIATION-AGAIN/td-p/159964
Hope to see you over there: Let’s get that gray matter pumping ???
Sue xx
Hi Ladies, Sue did one for you. Been playing words with friends on messenger with the other half for chemo brain, that tends to help me if any of you fancies a game xx
I get an infusion of ranatidine with the taxol to stop heartburn and indigestion.
The one the doctor gave me are one a day hard capsules of Omeprazole xx