CDC - what can I say… I think our hubbies were separated at birth! I can imagine how you feel about his discussion, the two situations are completely different, like you say we are thrown into this without a choice in the matter and its a very personal thing. You mentioned before the upbringing with the step children, that must be so difficult. My OH is terrible with emotions, very cold sometimes and its so hard because I am a very huggy person, I like to talk things through and always just need a hug to bring me round but he cannot and will not do that even though I have explained that to him. A child’s upbringing has a lot to do with how they end up. I too love him dearly but could have hit him with a bat this morning. I find out that my OH manages to discuss my BC with the “ladies at work” and that hurts because he doesn’t do that with me. I know he is trying to be strong for me and he has to let it out somewhere but still its a shame he doesn’t do that with me. Personally I think he is struggling with looking at me without a breast, I am completely ok with it, but he has not really looked at me/it since the op but then again I am completely ok with nudity etc and happy to undress in front of him, however, he has always been very prudish and never undresses in front of me , likes the bathroom locked etc… again upbringing I guess. Not sure what we do with these fellas, I do definatety think that if it was more men who got BC they would not be on a forum like this, so thank goodness we are ladies and have each other. Here’s to a better day. Big Hugs…xxx
@CDC, a massive hug to you too. How can our men not know that they are being totally inappropriate? I suppose to be fair to them, there’s no how too manual about supporting us through this.
I hope you enjoy your time away with daughter and mum.
Jacq xx
Still waiting. An hour after time and nerves are kicking in waiting in the hot waiting room. Torn between let’s get in there and get it over with and don’t want to do it because I know it will make me feel bad and only just started to feel myself again. Must stop the internal debate and take my own advice and put my big girl pants on and get this done. Staying strong ?? ish and fighting xx
Oh joy of joys we hve a brand new side effect! Day four of Filgrastim and I’m experiencing bone pain for the first time. It’s absolutely horrible. Thighs, hips, arms, everything aches. Didn’t expect this as not had it previously. Let’s hope the jabs keep me out of hospital this time. BC really is the gift that keeps on giving! ?
@JacqB If your temp is not elevated, you can take 2 paracetamol for it – that’s what they gave me in hospital when I couldn’t sleep for the pain. I also found that I had no pain in cycle 2 from the injections – either because my marrow wasn’t jumpstarted (I’ll know when I get my blood results on Friday) or possibly because I was taking an antihistamine (just antihistamine, no painkiller) for hay fever, which apparently can help. But worth calling chemo hotline for advice on one or both fronts. They will have advice.
My oncologist gave me a supply of cocodamol for the bone pain which thankfully I only had for a day the first three cycles on the middle weekend. Last cycle of EC I had no pain and so far on T I don’t need the injections at all.
My GP gave me codeine for the bone pain I had in the first cycle because normal pain meds didn’t help. She suggested I took a dose before bed and it has helped.
Clare I was so sorry to read your post. It seems that we are all hypersensitive at this mid cycle stage and perhaps our OHs have become normalised as we are all coping so well ?. They don’t know how lucky they are. And we are lucky to have each other too.
I’ve had a nice day today. My daughter and I went to see MamaMia2. I cried at the christening scene. My own mother died about 20 years ago, and the thought of not being there for my own daughter just hit me! First time I’ve cried really. Anyway, in spite of my encouragement she seems reluctant to start a family. I think that being 21 and not having a boyfriend is a pretty poor excuse! ?
Just taken delivery of the “New” soap from Lush which Shi mentioned for helping grow hair… smells lovely and my baldie feels so smooth… Anything worth a try! No hair yet though hee hee <li-spoiler> </li-spoiler>
Morning ladies, chemo went ahead in the end and went ok. Didn’t tap out, small issue of vein going red and tracking up the arm. Got hydrocortisone cream to put on in to calm it down as the had to go in at my knuckle. Feeling ok suprisingly but tired. Not took any of the multiples of drugs yet though. In the words of Bon Jovi Woah, we’re half way there
Woah, livin’ on a prayer
Take my hand, we’ll make it I swear
Woah, livin’ on a prayer! Xx
Love it Lisa…glad you got it done! And a sense of humour still in tact… bloomin’ chemo can’t take that away! Just trying to figure out if its possible to do the hand movements to D.I.S.C.O (might be a too older a song for you to recall) but change the lyrics to “C. H. E. M. O” :smileyvery-happy:
Oh I know D.I.S.C.O, not sure about getting the hand movements to fit chemo though ? might have to give it a try ?. Got me thinking though if we need a walk out song when all the chemo is finished and we are ringing that bell ?? Nothing immediately springs to mind other that I will survive or Katy perry roar. Needs further though I think ? ? xx
Ooh yes, definately need a song. Do you have a bell in your chemo unit? We don’t :smileysad: but we do have one in radiotherapy. Perhaps I will bring my own bell?? I’ll definately be skipping out of there though… or possibly crawling depending on T!! I’ll think of a song… mmmmmm…
Loving this train of thought ladies, keep them coming. The is a bell in our chemo unit kip. Think they need to get one, I know it’s only end of part of the treatment but it a big part of it and I will truly be thankful when this part over. I’m sure I saw one on Facebook that does the bells will have a look and send you the link xx
I like this thread:
How about Nina Simone singing “feeling good”!
Bloody well hope to be after all this chemical warfare …
Day 4 of T, 2 injections of filgrastim (not sure about spelling), feeling pretty bad today, dizzy, tired, no appetite, headaches and lastly NAIL PAIN???
Anyway bring on the end of this treatment …
Hope you are all doing well,
Em
Xx
Had diarrhoea halfway through but I get it cos of other meds sometimes so have a good early warning system. Had a second lot later and the noises coming out of me…OMG! The man outside the loo in a wheelchair must have thought I had a brass band in there with me.
My next appointment next week isn’t till 2 pm. Today I was there at 8.20 and got out at 2.15 so gods knows what time I’ll get out next week.