Hi Kimini
I know what you mean about the head pressure. It’s the strangest feeling and I also had hearing changes with it, everyone sounded like they were talking from the bottom of a bucket or on helium!
Stay strong
Jacq x
Also got my nails painted black yesterday! They added a powder which makes them look sparkly blue/purple ?
Morning all, another day with the ole monster mouth… still sore but i think slightly better but just tried weetabix and they taste like carpet! Oh dear.
Cdc sorry to hear the sicknese has hit again, i think this is your last EC? I havent had any sickness with T so hopefully you wont either. Frozen grapes sound like a good idea i have a try.
ktk is it T today? Good luck, eat as many ice lollies as you can whilst having it … Its supposed to help with sore mouth … ill be eating 50 next time ?
Oh well must get up and make an effort… Take care all Kip ,xx
@cdc1811
Thank you for the suggestion but the thought iof anyone putting needles into me makes me nervous. I understand that acupuncture is pretty painless, but I’ve never been one for therapies. I own a beauty salon and have never even had a massage or pedicure! !?
All best wishes
Jacq x
Hi Clare. There was no problem moving the chemo. In fact my second session was moved on a day to fit in with the oncologist clinic and my final session has been put back to the Wednesday Kx
In the chemo ward as I type.
Not going quite as well as I hoped. Appointment was at 9am but the computers were down. In the end my Herceptin injection came up to be administered at 12.15, but I have to have a four hour gap before T is administered in case of reaction. So what was already going to be a long day is set to be longer.
Saw the oncologist yesterday. She was encouraging about T but warned me to expect more bone and muscle pain especially as I’ll still have the injections. She advised salt water mouth washes twice a day to help prevent mouth issues. Also to keep nails v short. I asked about painting dark, she said paint whatever colour I wanted but to use loads of hand cream and massage round nails to keep blood flow good. I asked about peripheral neuropathy, she said phone at the first hint. Have to say I’m most worried about that especially as I do a lot of handcrafts.
Hugs ladies, hope things are going well or improving.
LJ
In 10 minutes early! Felt a little woozy after the Piriton went through but it quickly passed. Out in less than three hours and have slept all afternoon, again the Piriton affect!! Will make up a bit for the lack of sleep from the steroids. Kx
Cdc, the mouth wash was prescribed by the oncologist as he said my mouth was get sore. It’s worth an ask to see if it was suitable for you. As for the mermaid ?♀️ and unicorn ? items it was mainly primark and w h Smith’s, lovely unicorn bedroom items in Asda, and mermaid ones in matalan atm including mermaid tail blanket and duvet cover xx matalan.co.uk/product/detail/s2678596_c323/mermaid-tail-blanket-pink?gclid=Cj0KCQjwk_TbBRDsARIsAALJSOYHHnpAkeoQz0FTrRYVTFiyayZgzUCWxukX6SG01GayduJDdlMU0ckaAok7EALw_wcB
So it seems I can also have Zolmeta which is given in 6 intravenous doses over 3 years which helps to protect the bones . Just have to see dentist first to get go ahead cos one of the possible side effects can affect the jaw.
Is that the bid phosphate Sally? I will be having that too. Kxx
Bisphosponate!
Yeah that’s the one
Lisa Marie Thanks so much both for the info re the mouthwash and especially ideas for places to purchase mermaid items. The tail is amazing! X
Will definitely check out moving my chemo day so I can do the cooking course.
Sorry to hear you’re needing more injections ktk, LJ and Sally. How do they decide you need them or will we all get them on T? Hope you all manage to get a good nights sleep.
Hugs to everyone xxx
It’s not injections Cdc, it’s infusions and it only for post menopausal women as far as I can make out. Onew every 6 months for 3 years is nothing so no hassle at all really.
Yes that sounds right Sally. Not even made 2am!! Kxx
I had a good night - went to bed at 11pm and woke about 7.30am, with a couple of wee breaks through the night - one of the drawbacks of copious amounts of water!
Steroids takens, just making breakfast now - porridge and plum compote. I’ve already unloaded and reloaded the dishwasher and tidied round the kitchen and walked the dog. Making the most of the cooler weather and feeling not too bad, which I’m sure won’t last.
I think with the injections, it’s luck of the draw with the approach the Oncology unit takes. So this time I’ve got three days of steroids, last one today, no Ondanstreton only Metoclopramide if I need them and the blasted injections. They’ve given me muscle ache over the last cycles and the Oncologist warned me that the T aches hit about the time you start taking the injections so I’m expecting a double whammy!
Hope your days are good ladies and side effects minimal.
LJ
Well hi ladies, sorry ive been quiet but currently languishing in Casa NHS! Temperature was 38.2 yesterday rang hotline and got sent to A&E for few hours. Now isolated in a room until they come back up. Habing iv antibiotics but they are still 0.1. im so fed up, mh son got his gcse results todsy and i couldnt be there… so shed some tears. He passed them all tho so immensely proud. Bloody bc takes all mh precious moments. Im hoping to see onc tomorrow to see if j can have injections to boost cells.
Im glad to hear you are all doing well, look after your mouths girls mine still hurts. My room is underneath a dementia ward so the screaming and shoutjng from one oftheir patients continues through out thd night, its so sad to hear a grown man screaming for his mother.
Take care ladies
From colditz
Oh Kip, sorry to hear you’ve been admitted. Sending all best wishes to you for a speedy recovery.
Jacq x
Oh Kip, what a tough ride. Well done to your fab son. Look how well he has done, obviously taking strength from his brilliant mum! The end of your road on this hideous journey is in sight and he is in a great place to start his journin spite of it. It is incredible what gives us strength. Get well soon and get home to him!! Lots of love Kxxx